2019
DOI: 10.1177/2381468318817523
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Value Awareness: A New Goal for End-of-life Decision Making

Abstract: The principal policy tool for respecting the preferences of patients facing serious illnesses that can prompt decisions regarding end-of-life care is the advance directive (AD) for health care. AD policies, decision aids for facilitating ADs, and clinical processes for interpreting ADs all treat patients as rational actors who will make appropriate choices, if provided relevant information. We review barriers to following this model, leading us to propose replacing the goal of rational choice with that of valu… Show more

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Cited by 15 publications
(13 citation statements)
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References 61 publications
(56 reference statements)
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“…In some decision making situations, rational deliberation and rational choice may be desired, while in others, they may not. 28 , 29 …”
Section: Introductionmentioning
confidence: 99%
“…In some decision making situations, rational deliberation and rational choice may be desired, while in others, they may not. 28 , 29 …”
Section: Introductionmentioning
confidence: 99%
“…Taken together, these limitations, particularly the first, fourth, and fifth, mean that our results may not apply to decisions that differ from the scenario used here, for example, decisions in which the goal might be value awareness rather than values congruence. 53…”
Section: Discussionmentioning
confidence: 99%
“…50 This might include ongoing efforts to elicit patients’ goals and values as they pertain to dialysis and other life-prolonging treatments, as well as palliative and hospice care services, and to formulate a plan for future care that reflects what is most important to each individual. 50,56,57,58,59…”
Section: Discussionmentioning
confidence: 99%