Variations among US hospitals in counseling practices regarding prematurely born infants

Mehrotra, Aanchal; Lagatta, Joanne; Simpson, Pippa; Kim, U Olivia; Nugent, Melodee; Basir, Mir

doi:10.1038/jp.2012.172

Cited by 31 publications

(27 citation statements)

References 21 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…8 Despite prenatal identification, parents with risk factors first receive prematurity education when the mother is hospitalized for preterm birth. 9,10 This "last minute" education is not ideal since parental learning during hospitalization is compromised by labor, anxiety, and medications. 11,12,13,14,15 Lack of prenatal prematurity education leaves parents unprepared to make informed healthcare choices before and during the preterm birth hospitalization.…”

Section: Introductionmentioning

confidence: 99%

“…26 Most parents do not currently receive comprehensive prematurity education at the time of identification of preterm birth associated risk factors. 9 Text4baby is the first national mobile health service in the United States that aims to provide information to pregnant women to help improve health outcomes. More than 320,000 participants enrolled in the program between 2010 and 2012.…”

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

Smartphone-based prenatal education for parents with preterm birth risk factors

Kim

Barnekow

Ahamed

et al. 2019

Patient Education and Counseling

View full text Add to dashboard Cite

Half of all premature births in the United States have preterm birth associated risk factors. • Prematurity education is currently offered to parents upon hospitalization for preterm birth. • Lack of prematurity education before the birth hospitalization leaves parents unprepared. • Smartphone-based prenatal prematurity education benefited parents at-risk for preterm birth. • In the majority of participants, the smartphone-based prenatal prematurity education did not increase parental anxiety.

show abstract

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Smartphone-based prenatal education for parents with preterm birth risk factors

Kim

Barnekow

Ahamed

et al. 2019

Patient Education and Counseling

View full text Add to dashboard Cite

show abstract

“…Differences in approaches by obstetricians and neonatologists have been well documented. 19,20 Simultaneous counseling by members of the two disciplines together, reported by only 23% of respondents here and infrequently observed in other studies of antenatal counseling, 9,21 is recommended by the Joint Workshop. 4 Offering printed materials regarding outcomes and options may ensure patients at the same center receive similar information.…”

Section: Discussionmentioning

confidence: 73%

How Are Neonatology Fellows Trained for Antenatal Periviability Counseling?

2017

View full text Add to dashboard Cite

Background Studies have shown rates of life-sustaining treatments for periviable newborns vary by center, centers' differing periviability approaches affect trainees' views, and formal communication training for neonatology fellows is uncommon. Parents of imperiled newborns report unmet emotional and spiritual needs. This study sought to understand how fellows learn to support parents and their periviable newborns through exposure to institutional clinical approaches and by formal curriculum. Methods All the U.S. neonatology fellowship program directors were invited to complete an online anonymous survey. Data were analyzed with descriptive statistics. Results In this study, 56 of 98 directors (57%) responded. Training centers differed in delivery room options offered and recommended for periviable newborns. Providing parents written information and neonatology and obstetrics co-counseling were uncommon. Directors reported weaknesses in training fellows to support parents' spiritual and emotional needs, and < 50% reported formal policies for involving social workers or chaplain. Fellows learned periviability counseling in 95% programs by observing attending physicians; however, only 54% directors reported typical joint daytime counseling with fellows and attending physicians. Conclusion Training programs exposed fellows to different periviability care approaches, identified weaknesses in teaching support provision for parents' needs, and appeared to miss opportunities for clinical modeling of counseling and comfort care provision.

show abstract

“…Though several studies have explored neonatologists’ practices and perspectives regarding periviable counseling (Grobman et al 2010; Kaempf et al 2006; Kaempf et al 2009; Mehrotra et al 2013; Singh et al 2007; Weiss et al 2007), relatively little is known about the decision-making roles neonatologists take in helping families navigate resuscitation decisions for neonates delivering at the threshold of viability. While authors have explored factors that influence end-of-life (EOL) decision making in intensive care settings (Barnato et al 2011; Bastek et al 2005; Fishman et al 2009; Janvier et al 2008; Lavin et al 2006; Mitchell 2011; Partridge et al 2001; Peerzada, Richardson, and Burns 2004; Singh et al 2007; Wennberg et al 2004), no studies have directly assessed the role that neonatologists take in making periviable resuscitation decisions.…”

Section: Introductionmentioning

confidence: 99%