VIDDE: Visualizations for Helping People with COPD Interpret Dyspnea During Exercise

Chen, Claudia; Wu, Robert; Khan, Hashim Ali; Truong, Khai N.; Chevalier, Fanny

doi:10.1145/3441852.3471204

Cited by 6 publications

(6 citation statements)

References 43 publications

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“…Furthermore, measures suggested to meet the individualized needs of COPD patients include regular assessment of the degree of respiratory difficulty, balance control ability, and osteoporosis status [ 55 – 57 ]; sharing activity data with participants using activity trackers [ 58 , 59 ]; utilizing new technologies for systematic and long-term risk monitoring [ 60 ]; encouraging female and comorbid patients to participate in PA programs [ 61 , 62 ]; providing online peer support or digital social interventions for younger participants [ 63 ]; and paying attention to the acceptance of patient role behavior in Asian culture, along with providing psychological care [ 64 ].…”

Section: Discussionmentioning

confidence: 99%

Motivating factors for physical activity participation among individuals with chronic obstructive pulmonary disease: A qualitative study applying the motivation, opportunity, and ability model

Liao,

Yu,

Zhan

et al. 2024

PLoS ONE

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Objective The study aims to explore the driving forces behind physical activity engagement among patients with chronic obstructive pulmonary disease, focusing on motivation, opportunity, and capability. Design A phenomenological qualitative study applied the motivation, opportunity, and capability model, conducted in two respiratory units of a Chinese university hospital. Methods Participants, selected by age, gender, and illness duration, included inpatients during the interview sessions and those recently discharged within six months. One-on-one semi-structured interviews were recorded, transcribed, and analyzed by the Colaizzi seven-step method. Results Seventeen participants diagnosed with chronic obstructive pulmonary disease for over one year aged between 66 (range: 42–96) participated. Three major themes were identified: Inspiring participation motivation—transitioning from recognizing significance to habit formation; Offering participation opportunities—reiterating demand for personalized strategies and ideal environmental settings; Enhancing participation capability—addressing strategies for overcoming fears, setting goals, ensuring safety, and adjusting activity levels. Conclusions This research underscores the vital role of inspiring participation motivation, offering opportunities, and enhancing the capability for participation in effective engagement. Advocating increased attention from healthcare departments, fostering interdisciplinary collaboration, improving activity guidance and counseling effectiveness, and considering individual preferences can significantly benefit those patients with chronic obstructive pulmonary disease who hesitate or are unable to participate in physical activities, thereby increasing the dose of non-leisure time physical activity.

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Section: Discussionmentioning

confidence: 99%

Motivating factors for physical activity participation among individuals with chronic obstructive pulmonary disease: A qualitative study applying the motivation, opportunity, and ability model

Liao,

Yu,

Zhan

et al. 2024

PLoS ONE

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“…In line with Mack et al [11], the other classification, accounting for 5.9% (N=2) of our articles, was used to identify emerging and underrepresented areas in accessibility research. This category, specifically assigned to studies focusing on individuals with chronic [45] and neurological conditions [46], highlights the necessity of expanding research to include a broader range of disabilities. It underscores the potential for growth in areas that are currently not well-represented in accessibility research either.…”

Section: A Research Objectives 1) Community Of Focusmentioning

confidence: 99%

“…Analogously, personal data communication emerged as the most diverse issue addressed, spanning five communities: older adults, cognitive impairments, ADHD, autism, and others. Personal data may encompass a range of information, including physiological data [45], mental engagement [49], behaviors [7], or performance [50], but the communication of personal data consistently involves monitoring an individual's data to communicate this information to users, caregivers, or medical professionals. This process, tailored for unique requirements, frequently deals with data that is particularly relevant for individuals with disabilities, a type of data that is generally less prevalent in the non-disabled population.…”

Section: A Research Objectives 1) Community Of Focusmentioning

confidence: 99%

“…Nevertheless, in alignment with established accessibility practices [11], [42], we caution against overly generalizing disability categories. Although research on accessibility for conditions like photosensitive epilepsy [46] and chronic obstructive pulmonary disease (COPD) [45], [77] remains in its infancy [11], they can be an additional avenue for exploration in creating accessible data representations.…”

Section: B Opportunities and Challengesmentioning

confidence: 99%

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Beyond Vision Impairments: Redefining the Scope of Accessible Data Representations

Wimer,

South,

et al. 2024

Preprint

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The increasing ubiquity of data in everyday life has elevated the importance of data literacy and accessible data representations, particularly for individuals with disabilities. While prior research predominantly focuses on the needs of the visually impaired, our survey aims to broaden this scope by investigating accessible data representations across a more inclusive spectrum of disabilities. After conducting a systematic review of 152 accessible data representation papers from ACM and IEEE databases, we found that roughly 78% of existing articles center on vision impairments. In this paper, we conduct a comprehensive review of the remaining 22% of papers focused on underrepresented disability communities. We developed categorical dimensions based on accessibility, visualization, and human-computer interaction to classify the papers. These dimensions include the community of focus, issues addressed, contribution type, study methods, participants, data type, visualization type, and data domain. Our work redefines accessible data representations by illustrating their application for disabilities beyond those related to vision. Building on our literature review, we identify and discuss opportunities for future research in accessible data representations. All supplemental materials are available at https://osf.io/yv4xm/?view_only=b36a3fbf7a14b3888029966faa3def9.

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“…While not explicitly intended as an educational intervention, Chen et al 53▪▪ . explored the usefulness of displaying real-time data for oxygen saturation (SpO 2 ) and heart rate (HR) during exercise in individuals with COPD.…”

Section: Variations Of Breathlessness Intervention Service Educationa...mentioning

confidence: 99%

Patient education about breathlessness

Williams

2023

Current Opinion in Supportive &Amp; Palliative Care

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Purpose of the review Effective education enables people to modify the distress and impact of breathlessness by integrating evidence-informed breathlessness-related behaviours (knowledge, skill, attitude) into everyday life. This review considers recent studies of educational approaches focussed on chronic breathlessness as a modifiable, noxious and debilitating multidimensional experience. Recent findings Systematic assessments of text-based patient education materials and mobile phone applications specific to breathlessness indicate that while these resources are readily available, issues continue to persist with quality, readability, usefulness and availability of non-English language versions. Various forms of educational interventions for breathlessness have proven feasible and valued by people living with breathlessness and their significant others (uptake/completion, personal benefit, ripple effect on health professionals). Health professional knowledge about the impact of chronic breathlessness and effective management can be altered through structured, educational interventions. Summary Empiric studies of patient education for breathlessness are scarce despite persistent calls for better breathlessness education for people living with or providing care for someone living with this noxious symptom. In clinical practice, it is highly likely that there are effective and ineffective educational practices, both of which, if publicly disseminated, would inform future educational strategies to advance breathlessness self-management.

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VIDDE: Visualizations for Helping People with COPD Interpret Dyspnea During Exercise

Cited by 6 publications

References 43 publications

Motivating factors for physical activity participation among individuals with chronic obstructive pulmonary disease: A qualitative study applying the motivation, opportunity, and ability model

Motivating factors for physical activity participation among individuals with chronic obstructive pulmonary disease: A qualitative study applying the motivation, opportunity, and ability model

Beyond Vision Impairments: Redefining the Scope of Accessible Data Representations

Patient education about breathlessness

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