Video-assisted genetic counseling in patients with ovarian, fallopian and peritoneal carcinoma

Watson, Catherine; Ulm, Michael; Blackburn, Peter; Smiley, Linda; Reed, Mark; Covington, Rachel; Bokovitz, Lauren; Tillmanns, T.

doi:10.1016/j.ygyno.2016.07.094

Cited by 23 publications

(14 citation statements)

References 17 publications

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“…Institutions and health care providers should be prepared to offer alternative service delivery options not only to meet patient preferences but also to increase access for patients undergoing cancer genetic counseling and address the increasing demand for genetic services. 3,34…”

Section: Discussionmentioning

confidence: 99%

Factors Influencing Patient Preferences for Telehealth Cancer Genetic Counseling During the COVID-19 Pandemic

Breen

Tuman

Bertelsen

et al. 2022

JCO Oncology Practice

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PURPOSE: With onset of the COVID-19 pandemic, telehealth became the primary modality for health care appointments. This study examined patient experiences with and preferences for telehealth at a cancer genetic counseling clinic throughout the first 6 months of the pandemic (March-August 2020). METHODS: An anonymous survey assessed patient demographics; usage and prior experience with technology; emotional responses, technical experiences, and satisfaction with the telehealth appointment (via the Genetic Counseling Satisfaction Scale and Visit-Specific Satisfaction Questionnaire); preference for future telehealth; and recommendation of telehealth to others. RESULTS: Among 380 respondents, most were highly satisfied with the telehealth appointment (with 65.6% and 66.4% of participants completing the Genetic Counseling Satisfaction Scale and Visit-Specific Satisfaction Questionnaire, respectively). Multivariable analyses indicated several notable findings. Adjusting for relevant covariates, participants with less education felt significantly more concerned about telehealth than those with highest educational attainment. Participants age 40-69 years were generally more comfortable, relieved, and grateful that their appointment was scheduled as telehealth than were those older than 70 years. Women were marginally more relieved and grateful for telehealth appointments than men. As the pandemic progressed, significantly more participants were highly satisfied with their telehealth appointment and participants trended toward having greater preferences for future telehealth use. Most participants (78.6%) would recommend telehealth to others, although 50.8% preferred future in-person appointments. CONCLUSION: As the pandemic progressed, patients expressed increasing preferences for and satisfaction with telehealth. Service delivery models that incorporate individual patient preferences should be developed with special consideration to factors such as age, sex, and education level.

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Section: Discussionmentioning

confidence: 99%

Factors Influencing Patient Preferences for Telehealth Cancer Genetic Counseling During the COVID-19 Pandemic

Breen

Tuman

Bertelsen

et al. 2022

JCO Oncology Practice

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“…Utilizing a pre‐test counseling video is an efficient, effective way to provide information about genetic testing to patients in many clinical settings (Hernan et al, 2020; Watson et al, 2016). Individuals with depression had positive feedback about the video, suggesting that this population would be amenable to receiving information by video.…”

Section: Discussionmentioning

confidence: 99%

Assessing the impact of pre‐test education on patient knowledge, perceptions, and expectations of pharmacogenomic testing to guide antidepressant use

Sloat

Yashar

Ellingrod

et al. 2022

Journal of Genetic Counseling

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“…As most hereditary cancer genetic counseling and testing is provided by non-GHPs, this model is supported through non-GHPs partnering with GHPs to provide decision support [77]. Furthermore, technologybased solutions may be used to streamline pre-test genetic education, as we and others have previously reported on [78,79], and is an example of an alternative delivery model (ADM) which has tremendous potential to increase throughput and utilize the expertise of GHPs where they may have the most impact. ADMs were developed to enable genetic counselors to work at the top of their scope of practice while improving access to their services, and various ADMs serve to solve different problems [80].…”

Section: Delivery Of Genetic Counseling and Genetic Testingmentioning

confidence: 99%

An overview of genetic services delivery for hereditary breast cancer

Reid

Spalluto

Lang

et al. 2022

Breast Cancer Res Treat

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Breast cancer is the most common cancer diagnosed in women worldwide, with approximately 5–10% of cases attributed to high penetrance hereditary breast cancer (HBC) genes. The tremendous advances in precision oncology have broadened indications for germline genetic testing to guide both systemic and surgical treatment, with increasing demand for cancer genetic services. The HBC continuum of care includes (1) identification, access, and uptake of genetic counseling and testing; (2) the delivery of genetic counseling and testing services; and (3) initiation of guideline-adherent follow-up care and family communication of results. Challenges to delivering care on the HBC care continuum include factors such as access to services, cost, discrimination and bias, and lack of education and awareness, which can be mitigated through implementing a multi-level approach. This includes strategies such as increasing awareness and utilization of genetic counseling and testing, developing new methods to meet the growing demand for genetic services, and improving the uptake of follow-up care by increasing patient and provider awareness of the management recommendations.

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Video-assisted genetic counseling in patients with ovarian, fallopian and peritoneal carcinoma

Cited by 23 publications

References 17 publications

Factors Influencing Patient Preferences for Telehealth Cancer Genetic Counseling During the COVID-19 Pandemic

Factors Influencing Patient Preferences for Telehealth Cancer Genetic Counseling During the COVID-19 Pandemic

Assessing the impact of pre‐test education on patient knowledge, perceptions, and expectations of pharmacogenomic testing to guide antidepressant use

An overview of genetic services delivery for hereditary breast cancer

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