Vision and Quality of Life: The Development of a Utility Measure

Misajon, RoseAnne; Hawthorne, Graeme; Richardson, Jeffrey Ralph James; Barton, Jodi; Peacock, Stuart; Iezzi, Angelo; Keeffe, Jill

doi:10.1167/iovs.04-1389

Cited by 100 publications

(99 citation statements)

References 24 publications

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“…31,53,58 Derivation of classification system from existing measure Fourteen papers reported on measures that derived the classification system for the preferencebased measure from an existing measure of HRQoL. All but one of these studies derived the classification system using a subset of items from the existing measure as the existing measure was considered too large to be amenable to valuation.…”

Section: Conditionsmentioning

confidence: 99%

Developing and testing methods for deriving preference-based measures of health from condition-specific measures (and other patient-based measures of outcome).

Brazier

Rowen²,

Mavranezouli³

et al. 2012

Health Technol Assess

155

219

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An electronic version of this title, in Adobe Acrobat format, is available for downloading free of charge for personal use from the HTA website (www.hta.ac.uk). A fully searchable DVD is also available (see below).Printed copies of HTA journal series issues cost £20 each (post and packing free in the UK) to both public and private sector purchasers from our despatch agents.Non-UK purchasers will have to pay a small fee for post and packing. For European countries the cost is £2 per issue and for the rest of the world £3 per issue. How to order:-fax (with credit card details) -post (with credit card details or cheque) -phone during office hours (credit card only).Additionally the HTA website allows you to either print out your order or download a blank order form. Contact details are as follows:Synergie UK (HTA Department) Digital House, The Loddon Centre Wade Road Basingstoke Hants RG24 8QW Email: orders@hta.ac.uk Tel: 0845 812 4000 -ask for 'HTA Payment Services' (out-of-hours answer-phone service) Fax: 0845 812 4001 -put 'HTA Order' on the fax header Payment methods Paying by chequeIf you pay by cheque, the cheque must be in pounds sterling, made payable to University of Southampton and drawn on a bank with a UK address.Paying by credit card You can order using your credit card by phone, fax or post. SubscriptionsNHS libraries can subscribe free of charge. Public libraries can subscribe at a reduced cost of £100 for each volume (normally comprising 40-50 titles). The commercial subscription rate is £400 per volume (addresses within the UK) and £600 per volume (addresses outside the UK). Please see our website for details. Subscriptions can be purchased only for the current or forthcoming volume.How do I get a copy of HTA on DVD?Please use the form on the HTA website (www.hta.ac.uk/htacd/index.shtml). HTA on DVD is currently free of charge worldwide.The website also provides information about the HTA programme and lists the membership of the various committees. NIHR Health Technology Assessment programmeThe Health Technology Assessment (HTA) programme, part of the National Institute for Health Research (NIHR), was set up in 1993. It produces high-quality research information on the effectiveness, costs and broader impact of health technologies for those who use, manage and provide care in the NHS. 'Health technologies' are broadly defined as all interventions used to promote health, prevent and treat disease, and improve rehabilitation and long-term care. The research findings from the HTA programme directly influence decision-making bodies such as the National Institute for Health and Clinical Excellence (NICE) and the National Screening Committee (NSC). HTA findings also help to improve the quality of clinical practice in the NHS indirectly in that they form a key component of the 'National Knowledge Service' . The HTA programme is needs led in that it fills gaps in the evidence needed by the NHS. There are three routes to the start of projects. First is the commissioned route. Suggestions for research are ...

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Section: Conditionsmentioning

confidence: 99%

Developing and testing methods for deriving preference-based measures of health from condition-specific measures (and other patient-based measures of outcome).

Brazier

Rowen²,

Mavranezouli³

et al. 2012

Health Technol Assess

155

219

View full text Add to dashboard Cite

show abstract

“…34 The latter instruments should therefore not 42 Two types of instruments can be distinguished based on the scoring systems within our selected tools. Seven questionnaires have to be rated on a simple ordinal scale, while two instruments are preference based measures (ie, ViSQoL 43,44 and GUI 38 ) where all patients are asked to choose between different health situations (eg, perfect health vs worst possible health/death). However, none of them demonstrated statistically justified response scales.…”

Section: Pro's Addressing Qolmentioning

confidence: 99%

“…Yet, further adaptation and testing could improve instruments with potential, such as the GQL-15, IMQ and the GSI [24][25][26][27][28] Within the QoL-measures, both the Glau-QoL and VisQoL had an extensive and theory based development process, but were generated and validated according to classical techniques. [43][44][45] Applying additional Rasch-analysis could strengthen their content and validity. The NEI-VFQ, which is a widely used QoL-instrument, has initially never been tested on its dimensionality, [35][36][37] which is a major flaw in its development.…”

Section: Eyementioning

confidence: 99%

Patient-reported outcomes (PRO's) in glaucoma: a systematic review

Vandenbroeck

Geest

Zeyen

et al. 2011

Eye

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The aim of this review was to summarize literature in view of patient-reported outcome (PRO) instruments for glaucoma and provide guidance on how outcomes are best assessed based on evidence about their content and validity. A systematic literature review was performed on papers describing the developmental process and/or psychometric properties of glaucoma or vision-specific PRO-instruments. Each of them was assessed on their adherence to a framework of quality criteria. Fifty-three articles were identified addressing 27 PRO-instruments. In all, 18 PRO's were developed for glaucoma and 9 for diverse ophthalmologic conditions. Seven instruments addressed functional status, 11 instruments quality of life and 9 instruments disease and treatment-related factors. Most of the instruments demonstrated only partially adherence to predefined quality standards. The tools for assessing functional status were of poor quality, while the Glaucoma Quality of Life Questionnaire and the Vision Quality of Life Index were well-developed QoL measures, yet only validated using classical techniques. The Rasch-scaled QoL-tools, IVI and VCM1 need to improve their item-content for glaucoma patients. The questionnaires to measure adherence should improve their validity and the Treatment Satisfaction Survey for Intra Ocular Pressure pops out as the highest quality tool for measuring topical treatment side effects. This review revealed that most PRO-instruments demonstrated poor developmental quality, more specifically a lack of conceptual framework and item generation strategies not involving the patients' perspective. Psychometric characteristics were mostly tested using classical validation techniques.

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“…27,30 Three validated patientreported outcome measure instruments were also included. [31][32][33][34][35] A supplementary questionnaire on low vision was developed following focus group feedback with clients registered with the Blind Welfare Association in Trinidad and Tobago. This was administered to those with a best-corrected visual acuity in the better-seeing eye worse than 6/18.…”

Section: Questionnairesmentioning

confidence: 99%

The National Eye Survey of Trinidad and Tobago (NESTT): Rationale, Objectives and Methodology

Braithwaite

Verlander

Bartholomew³

et al. 2017

Ophthalmic Epidemiology

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Purpose: This paper describes the rationale, study design and procedures of the National Eye Survey of Trinidad and Tobago (NESTT). The main objective of this survey is to obtain prevalence estimates of vision impairment and blindness for planning and policy development. Methods: A population-based, cross-sectional survey was undertaken using random multistage cluster sampling, with probability-proportionate-to-size methods. Eligible participants aged 5 years and older were sampled from the non-institutional population in each of 120 cluster segments. Presenting distance and near visual acuity were screened in their communities. People aged 40 years and older, and selected younger people, were invited for comprehensive clinic assessment. The interview included information on potential risk factors for vision loss, associated costs and quality of life. The examination included measurement of anthropometrics, blood glucose, refraction, ocular biometry, corneal hysteresis, and detailed assessment of the anterior and posterior segments, with photography and optical coherence tomography imaging. Adult participants were invited to donate saliva samples for DNA extraction and storage. Results: The fieldwork was conducted over 13 months in 2013-2014. A representative sample of 10,651 individuals in 3410 households within 120 cluster segments identified 9913 people who were eligible for recruitment. Conclusion: The study methodology was robust and adequate to provide the first populationbased estimates of the prevalence and causes of visual impairment and blindness in Trinidad and Tobago. Information was also gathered on risk factors, costs and quality of life associated with vision loss, and on normal ocular parameters for the population aged 40 years and older.ARTICLE HISTORY

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Vision and Quality of Life: The Development of a Utility Measure

Cited by 100 publications

References 24 publications

Developing and testing methods for deriving preference-based measures of health from condition-specific measures (and other patient-based measures of outcome).

Developing and testing methods for deriving preference-based measures of health from condition-specific measures (and other patient-based measures of outcome).

Patient-reported outcomes (PRO's) in glaucoma: a systematic review

The National Eye Survey of Trinidad and Tobago (NESTT): Rationale, Objectives and Methodology

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