Visual and Personalized Quality of Life Assessment App for People With Severe Mental Health Problems: Qualitative Evaluation

Buitenweg, David; Mheen, Dike van de; Grund, Jean‐Paul C.; Oers, Hans van; Nieuwenhuizen, Chijs van

doi:10.2196/19593

Cited by 6 publications

(7 citation statements)

References 48 publications

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“…According to the youngsters in the panel, feedback is most useful when it involves insight into changes over time, is provided by multiple informants, includes additional information on questionnaires, scales or items and is comprehensive and well-organized. The importance of this value is in line with previous studies [ 12 , 26 , 27 , 28 , 29 ]. Feedback becomes more valuable for youngsters when it provides them with sufficient information to accurately interpret their PROM results.…”

Section: Discussionsupporting

confidence: 90%

I Need to Know: Using the CeHRes Roadmap to Develop a Treatment Feedback Tool for Youngsters with Mental Health Problems

Bongers

Buitenweg²,

Kuijk

et al. 2022

IJERPH

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Patient-Reported Outcome Measures (PROMs) are often used to monitor treatment outcomes in youth mental health care. Unfortunately, youngsters are rarely informed about the results of their PROMs or, when they are, it is in an insufficient manner. Therefore, a web application was developed—together with youngsters—aimed at giving them feedback about their PROMs. The aim of this study is to describe the development process of the application. An expert panel consisting of youngsters, web designers and researchers, as well as a representative from a client organisation, developed the e-health application INK (short for ‘I Need to Know’) in an iterative process based on the Centre for eHealth Research roadmap (CeHRes roadmap). Youngsters prefer, among other aspects, a simple, easy-to-use e-health application with a colourful appearance and want to be able to compare their results across different time points and informants. The INK tool provides youngsters with insight into their PROM results. Based on the youngsters’ preferences, INK users can choose which feedback information is visible. INK facilitates youngsters’ active participation in their treatment as well as shared decision-making with their professional caregivers.

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Section: Discussionsupporting

confidence: 90%

I Need to Know: Using the CeHRes Roadmap to Develop a Treatment Feedback Tool for Youngsters with Mental Health Problems

Bongers

Buitenweg²,

Kuijk

et al. 2022

IJERPH

Self Cite

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“…We designed the PictoQOL with the intention to facilitate an entirely non-verbal assessment of HRQOL. As such, the questionnaire is different from other approaches to pictorial questionnaires developed in the past [31,33,35,36], which often rely on a combination of pictorial items and text. Questionnaires using graphics or photographs with limited text elements are frequently used as self-report pain intensity measures, such as the Faces Pain Scale-Revised (FPS-R), the Oucher photographic and the Wong-Baker FACES Pain Rating Scale (FACES) for children and adolescents [66].…”

Section: Discussionmentioning

confidence: 99%

“…Whereas some modules of the QoL-ME, which has been developed for the assessment of QOL in patients with severe mental health conditions [31], are also non-verbal, the authors argue that verbal cues in addition to pictorial items may enhance the clarity of the contents. In our study, after different adjustments were made during the development process, participants in cognitive interviews did not report problems with understanding most of the items, which was further corroborated in the pretest.…”

Section: Discussionmentioning

confidence: 99%

“…Relying on an assessment via a mobile application, the QoL-ME has recently been presented for the assessment of the broader concept of quality of life (QOL) in patients with severe mental health conditions. Similar to the aforementioned approaches, the QoL-ME uses a hybrid (text-/picture-based) navigation and assessment [31]; however, it also explores possibilities to assess some dimensions of QOL without verbal cues.…”

Section: Introductionmentioning

confidence: 99%

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Pictorial Assessment of Health-Related Quality of Life. Development and Pre-Test of the PictoQOL Questionnaire

Brzoska

Erdsiek

Aksakal

et al. 2022

IJERPH

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The aim of the present study was to develop a pictorial questionnaire for the assessment of health-related quality of life (PictoQOL) and to examine its content validity and usability across three exemplary population groups of different origin residing in Germany (non-migrants, Turkish migrants and Arabic-speaking migrants). A mixed-methods design combining qualitative and quantitative methods was used, comprising 6 focus group discussions with a total of 17 participants, 37 cognitive interviews and a quantitative pretest with 15 individuals. The PictoQOL consists of a pictorial representation of a total of 15 different situations. Using a visual Likert scale, respondents indicate how much each situation applies to them. Some representations proved to be culturally sensitive and were adapted. Respondents found the use of an additional graphic layer in the form of symbols in addition to pictures helpful for interpretation. The PictoQOL is considered to allow a more accessible assessment and better comparability of HRQOL across different population groups regardless of their literacy level. It is therefore considered to be superior to existing instruments for routine use in health research and practice. Future studies need to examine its convergent and factorial validity.

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“…Both Klasnja and Pratt [ 95 ] and Nunes et al [ 94 ] described the ability to track health data first, and we retained the definition by Nunes et al [ 94 ] of “fostering reflection by making health and contextual information available.” This data-enabled reflection has been found to be significant for those with severe mental illness [ 96 ], bipolar disorder [ 97 ], and stress [ 98 ], among other psychological conditions.…”

Section: Methodsmentioning

confidence: 99%

Digital Companion Choice to Support Teachers’ Stress Self-management: Systematic Approach Through Taxonomy Creation

Manning¹,

Blandford²,

Edbrooke‐Childs³

2022

JMIR Form Res

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Background There are thousands of digital companions designed for emotional well-being and stress, including websites, wearables, and smartphone apps. Although public evaluation frameworks and ratings exist, they do not facilitate digital companion choice based on contextual or individual information, such as occupation or personal management strategies. Objective The aim of this study is to establish a process for creating a taxonomy to support systematic choice of digital companions for teachers’ stress self-management. Methods We used a 4-step study design. In step 1, we identified the dimension of stress self-management and strategic classifications. In step 2, we identified the dimension of the digital techniques and conceptual descriptions. In step 3, we created 6 criteria for the inclusion of digital companions. In step 4, we used the taxonomy framework created by steps 1 and 2 and populated it with digital companions for stress self-management, as identified in step 3. Results First, in the dimension of stress self-management, we identified four classes of strategies: educational, physiological, cognitive, and social. Second, in the digital techniques dimension, we derived four conceptual descriptions for the digital companions’ mechanisms of action: fostering reflection, suggesting treatment, peer-to-peer support, and entertainment. Third, we created six criteria for digital companion inclusion in the taxonomy: suitability, availability, evaluation, security, validity, and cost. Using the taxonomy framework and criteria, we populated it with digital companions for stress management ahead of presentation to teachers in a stress study workshop. Conclusions The elements of our approach can be generalized as principles for the creation of taxonomies for other occupations or conditions. Taxonomies such as this could be a valuable resource for individuals to understand which digital companion could be of help in their personal context.

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Visual and Personalized Quality of Life Assessment App for People With Severe Mental Health Problems: Qualitative Evaluation

Cited by 6 publications

References 48 publications

I Need to Know: Using the CeHRes Roadmap to Develop a Treatment Feedback Tool for Youngsters with Mental Health Problems

I Need to Know: Using the CeHRes Roadmap to Develop a Treatment Feedback Tool for Youngsters with Mental Health Problems

Pictorial Assessment of Health-Related Quality of Life. Development and Pre-Test of the PictoQOL Questionnaire

Digital Companion Choice to Support Teachers’ Stress Self-management: Systematic Approach Through Taxonomy Creation

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