Visualizing harm reduction: Methodological and ethical considerations

Switzer, Sarah; Guţă, Adrian; Prinse, Karen de; Carusone, Soo Chan; Strike, Carol

doi:10.1016/j.socscimed.2015.03.040

Cited by 37 publications

(30 citation statements)

References 39 publications

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“…Publications incorporating photovoice methods have typically been descriptive, with most lacking an assessment on the comparative advantages and limitations of the process, and ways of dealing with these ( Castleden et al, 2008 , Drew and Guillemin, 2014 , Evans-Agnew and Rosemberg, 2016 , Harley, 2012 , Pilcher et al, 2015 , Prins, 2010 , Switzer et al, 2015 ). Among the few studies that have considered these issues, Harley, 2012 , Packard, 2008 and Prins (2010) critically discussed some ethical dilemmas experienced using the photovoice methods including: (i) balancing the power dynamics between researchers and participants; (ii) barriers to participants’ involvement, particularly with vulnerable people (e.g.…”

Section: Introductionmentioning

confidence: 99%

Using photovoice methods to explore older people's perceptions of respect and social inclusion in cities: Opportunities, challenges and solutions

Ronzi

Pope

Orton

et al. 2016

SSM - Population Health

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Urbanisation and population ageing have contributed to recognise cities as important settings for healthy ageing. This paper considers opportunities, challenges and solutions of using photovoice methods for exploring how individuals perceive their cities and the contribution this makes to their health. It focuses on one aspect of older people's experiences – respect and social inclusion, in the context of a community-based participatory research. Drawing on selected findings (participants' photographs, associated quotes and researchers' field notes), we provide an assessment of the suitability of photovoice methodology for the intended purpose. Four groups of older people (n=26; aged 60 years or more) from four contrasting geographical areas in Liverpool, UK, were recruited purposively. Participants photographed perceived positive and negative aspects of respect and social inclusion in the city, reflecting on the meanings of the photographs in individual (n=23) and group interviews (n=9). Thematic and content analysis was conducted using NVivo 10 software.The work reported here provides insights into how participants engage with the photovoice process; factors preventing taking photos of interest; and how photographs complement interviews and focus groups. The findings demonstrate that photovoice both facilitated the dissemination of personalised relevant knowledge, and encouraged critical dialogue between participants, and city stakeholders. Reported difficulties included photography of negative and social concepts, and anxiety when taking photographs due to (i) expectations of what is a ‘proper’ photograph, and (ii) the need to obtain consent from subjects. With preparation, training, and discussion of participants’ ideas not expressed through photographs, photovoice was well-suited to this topic, providing insights complementing other research methods. Through analysing the application of photovoice for exploring perceptions of respect and social inclusion in cities, our paper has identified potential issues and provides important recommendations for researchers on how photovoice methodology can be strengthened in exploring conditions for better health in the urban environment.

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Section: Introductionmentioning

confidence: 99%

Using photovoice methods to explore older people's perceptions of respect and social inclusion in cities: Opportunities, challenges and solutions

Ronzi

Pope

Orton

et al. 2016

SSM - Population Health

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“…Metaphor may have also allowed participants to attend to ethical issues. While participants were permitted to photograph others (with consent), stigma and issues of disclosure pose unique ethical issues for HIV-related visual research, as documented extensively elsewhere (Schrader, Deering, Zahl, & Wallace, 2011;Switzer et al, 2015;Teti, Murray, Johnson, & Binson, 2012). Workshop 5 concluded with participants looking across their photos to identify common similarities and differences within their sites.…”

Section: Discussion and Analysismentioning

confidence: 99%

Working With Photo Installation and Metaphor: Re-Visioning Photovoice Research

Switzer

2019

International Journal of Qualitative Methods

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The proliferation of participatory visual methods (PVMs) in applied research has highlighted new ways of seeing and thinking about research. A core tenant of PVMs is the situated, collaborative, reflexive, and co-constructed nature of the work and resulting findings. However, as these methods gain popularity, there can be a disparity between how PVMs are theorized, imagined, and facilitated. Although the facilitated and reflexive nature of PVMs is generally understood by practitioners, researchers seldom report on pedagogical design of their projects, even though the facilitation of a method, and a researcher’s own lens and orientation to photography will influence the production and reading of images. To achieve greater congruence between paradigm and practice, it may be important to return to fundamental questions about the role of facilitation and the process of crafting and exhibiting images in photovoice in relation to one’s study aims. In this article, I explore the crafted role of image-making in the context of a photovoice project that asked stakeholders to visualize engagement in the local HIV sector. Participants created and exhibited 63 photographs and narratives that relied heavily on metaphor as a crafted strategy. They also created three site-specific photo installations. Through detailing our facilitated process, I illustrate how certain design elements (influenced by my pedagogical and theoretical orientations toward co-theorizing) created the necessary conditions for participants to visualize their ideas through metaphor and installation. In turn, the exhibited images and associated installations created new opportunities for synthesis, dialogue, and dissemination. I conclude with a theoretical discussion of the possibilities for taking a crafted and reflexive approach to image-making in photovoice studies.

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“…Originally used in anthropology and sociology, the PEI is increasingly used in health research [ 18 , 19 , 20 , 21 , 22 ] and among vulnerable populations [ 15 , 23 , 24 , 25 ]. However, to the best of our knowledge, no PEI study published to date focused specifically on the issue of persons in PVS.…”

Section: Methodsmentioning

confidence: 99%

“…In order to avoid the study being an additional cause of stress or misunderstanding, we chose not to ask the participants to take photographs of their loved ones in PVS. In addition, a photo-elicitation study complicates the traditional definition of confidentiality and consent [ 18 , 27 , 26 ]. If the family members were asked to take photographs, they might take pictures of people or patients not concerned by the study, which would require an additional consent process.…”

Section: Methodsmentioning

confidence: 99%

Exploring the perceptions of physicians, caregivers and families towards artificial nutrition and hydration for people in permanent vegetative state: How can a photo-elicitation method help?

Cretin¹,

Pazart

Rousseau

et al. 2017

PLoS ONE

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The question of withdrawing artificial nutrition and hydration from people in a permanent vegetative state sparks considerable ethical and legal debate. Therefore, understanding the elements that influence such a decision is crucial. However, exploring perceptions of artificial nutrition and hydration is methodologically challenging for several reasons. First, because of the emotional state of the professionals and family members, who are facing an extremely distressing situation; second, because this question mirrors representations linked to a deep-rooted fear of dying of hunger and thirst; and third, because of taboos surrounding death. We sought to determine the best method to explore such complex situations in depth. This article aims to assess the relevance of the photo-elicitation interview method to analyze the perceptions and attitudes of health professionals and families of people in a permanent vegetative state regarding artificial nutrition and hydration. The photo-elicitation interview method consists in inserting one or more photographs into a research interview. An original set of 60 photos was built using Google Images and participants were asked to choose photos (10 maximum) and talk about them. The situations of 32 patients were explored in 23 dedicated centers for people in permanent vegetative state across France. In total, 138 interviews were conducted with health professionals and family members. We found that the photo-elicitation interview method 1) was well accepted by the participants and allowed them to express their emotions constructively, 2) fostered narration, reflexivity and introspection, 3) offered a sufficient "unusual angle" to allow participants to go beyond stereotypes and habits of thinking, and 4) can be replicated in other research areas. The use of visual methods currently constitutes an expanding area of research and this study stressed that this is of special interest to enhance research among populations facing end-of-life and ethical issues.

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Visualizing harm reduction: Methodological and ethical considerations

Cited by 37 publications

References 39 publications

Using photovoice methods to explore older people's perceptions of respect and social inclusion in cities: Opportunities, challenges and solutions

Using photovoice methods to explore older people's perceptions of respect and social inclusion in cities: Opportunities, challenges and solutions

Working With Photo Installation and Metaphor: Re-Visioning Photovoice Research

Exploring the perceptions of physicians, caregivers and families towards artificial nutrition and hydration for people in permanent vegetative state: How can a photo-elicitation method help?

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