We are all in the same boat: doing ‘people‐led research’

Townson, Lou; Macauley, Sue; Harkness, Elizabeth; Chapman, Rohhss; Docherty, Andy; Dias, John; Eardley, Malcolm; McNulty, Niall

doi:10.1111/j.1468-3156.2004.00282.x

Cited by 52 publications

(51 citation statements)

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“…Several studies have illustrated the involvement of people with intellectual disability in many facets of research, including collecting data (Knox, Mok, & Parmenter, 2000), conducting member checks, or making sure that the researchers ''got it right'' (Mactavish, Lutfiyya, & Mahon, 2000). Individuals with intellectual and developmental disabilities have also co-authored research articles (Townson et al, 2004) and self-advocacy resources (Ward & Townsley, 2005). Consideration of such literature clarified our rationale for the creation of a coresearcher position.…”

Section: Recruitment Proceduresmentioning

confidence: 95%

Choosing Employment: Factors That Impact Employment Decisions for Individuals With Intellectual Disability

Timmons¹,

Hall²,

Bose³

et al. 2011

Intellectual and Developmental Disabilities

117

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Little is known about the factors that shape the employment-related decisions of individuals with intellectual and/or developmental disabilities. Findings from qualitative interviews with individuals, their family members, and employment-support professionals from four community rehabilitation providers throughout Massachusetts were reported. Recognizing the value of participatory action research, we also included a co-researcher with intellectual disability who participated in all facets of the research process. Findings revealed a collection of people and factors considered influential in employment-related decision-making. The family in the formative years, school-based staff and early employment experiences, the culture of the community rehabilitation providers, the job developer, and personal preferences all influenced participants' decisions. Through understanding these persuasive elements, we offer recommendations to those in the intellectual and developmental disabilities field to optimize employment choices and outcomes.

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Section: Recruitment Proceduresmentioning

confidence: 95%

Choosing Employment: Factors That Impact Employment Decisions for Individuals With Intellectual Disability

Timmons¹,

Hall²,

Bose³

et al. 2011

Intellectual and Developmental Disabilities

117

View full text Add to dashboard Cite

show abstract

“…) and people led (Townson et al . ). A downside of the broad umbrella, however, may be the use of similar terms to refer to quite different approaches.…”

Section: Introductionmentioning

confidence: 97%

Conceptualizing Inclusive Research with People with Intellectual Disability

Bigby

Frawley

Ramcharan

2013

Research Intellect Disabil

244

233

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“…Those who have worked as research partners with people with intellectual disability have questioned the applicability of this approach (Chapman, 2005;Dowse, 2001;Minkes, Townsley, Weston, & Williams, 1995;Ramcharan, Grant, & Flynn, 2004;Stalker, 1998;Townson et al, 2004;Walmsley, 2001Walmsley, , 2004Walmsley & Johnson, 2003). Chapman (2005), for example, suggested that although emancipatory research had been a powerful tool for the disability movement, it ''.…”

Section: Introductionmentioning

confidence: 97%

Reflections on doing inclusive research in the “Making Life Good in the Community” study

Bigby

Frawley

2010

Journal of Intellectual & Developmental Disability

105

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Accepting the co-researcher's strengths and designing support on the job rather than teaching them to "pass" before venturing out in the field are important in ceding control. Support required for a co-researcher is more than practical and involves developing a relationship that can actively challenge views and foster reflection. Ownership of questions and disseminating of outcomes are hampered by contextual factors such as tender processes, short-term positions, and a failure to acknowledge the support required to present findings.

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We are all in the same boat: doing ‘people‐led research’

Cited by 52 publications

References 0 publications

Choosing Employment: Factors That Impact Employment Decisions for Individuals With Intellectual Disability

Choosing Employment: Factors That Impact Employment Decisions for Individuals With Intellectual Disability

Conceptualizing Inclusive Research with People with Intellectual Disability

Reflections on doing inclusive research in the “Making Life Good in the Community” study

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