“We don’t talk about his heart”: Narrative sense-making and long-term readjustment among older out-of-hospital cardiac arrest survivors and their spouses

Jensen, Andrea Nedergaard; Bonnén, Katrine Bruun; Kristiansen, Maria

doi:10.1016/j.resplu.2020.100024

Cited by 10 publications

(8 citation statements)

References 33 publications

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“…While there is a growing body of qualitative research emerging in the field of post-arrest outcomes (12)(13)(14)(15) there remains a relative paucity of qualitative or mixed-methods studies to explore the long-term recovery experiences of survivors and family.…”

Section: Introductionmentioning

confidence: 99%

The second year of a second chance: Long-term psychosocial outcomes of cardiac arrest survivors and their family

et al. 2021

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Section: Introductionmentioning

confidence: 99%

The second year of a second chance: Long-term psychosocial outcomes of cardiac arrest survivors and their family

et al. 2021

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“…One potential way to prevent patients and families from feeling exposed and vulnerable could be increased adherence to guidelines stating that SCA survivors and their close family members should be offered follow-up within 3 months after discharge from hospital (Mentzelopoulos et al, 2021). Jensen et al (2020) found that everyday life after an SCA is a complex and dynamic dyadic process between the survivor and the family member, which can present challenges in the relationship and lead to unsatisfied needs. An SCA shapes both the daily life of the survivor and the family member and the relationship between them (Jensen et al, 2020).…”

Section: Discussionmentioning

confidence: 99%

“…The existing literature on patient experiences after surviving an SCA shows that life can be affected in a tangible way (Presciutti et al, 2022), yet family members may experience stress and anxiety to a greater degree than the survivor (Douma et al, 2021). Previous studies have also described altered family roles and relationships following an OHCA (Jensen et al, 2020;Whitehead et al, 2020), which further underscores the need for family-centred care and structured follow-up to identify patients and families in need of extra support and rehabilitation (Mentzelopoulos et al, 2021). Still, when it comes to IHCA and its impact on life for patients and their family members, knowledge is scarce and research is lacking.…”

Section: What Does This Paper Contribute To the Wider Global Clinical...mentioning

confidence: 99%

Experiences of family‐witnessed cardiopulmonary resuscitation in hospital and its impact on life: An interview study with cardiac arrest survivors and their family members

Waldemar

Strömberg

Thylén

et al. 2023

Journal of Clinical Nursing

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AimTo explore experiences of cardiac arrest in‐hospital and the impact on life for the patient who suffered the arrest and the family member who witnessed the resuscitation.BackgroundGuidelines advocate that the family should be offered the option to be present during resuscitation, but little is known about family‐witnessed cardiopulmonary resuscitation in hospital and the impact on the patient and their family.DesignA qualitative design consisting of joint in‐depth interviews with patients and family members.MethodsFamily interviews were conducted with seven patients and their eight corresponding family members (aged 19–85 years) 4–10 months after a family‐witnessed in‐hospital cardiac arrest. Data were analysed using interpretative phenomenological analysis. The study followed the guidelines outlined in the consolidated criteria for reporting qualitative research (COREQ) checklist.ResultsThe participants felt insignificant and abandoned following the in‐hospital cardiac arrest. Surviving patients and their close family members felt excluded, alone and abandoned throughout the care process; relationships, emotions and daily life were affected and gave rise to existential distress. Three themes and eight subordinate themes were identified: (1) the intrusion of death—powerless in the face of the fragility of life, highlights what it is like to suffer a cardiac arrest and to cope with an immediate threat to life; (2) being totally exposed—feeling vulnerable in the care relationship, describes how a lack of care from healthcare staff damaged trust; (3) learning to live again—making sense of an existential threat, pertaining to the family's reactions to a difficult event that impacts relationships but also leads to a greater appreciation of life and a positive view of the future.ConclusionSurviving and witnessing a cardiac arrest in‐hospital is a critical event for everyone involved. Patients and family members are vulnerable in this situation and need to be seen and heard, both in the hospital and after hospital discharge. Consequently, healthcare staff need to show compassion and attend to the needs of the family, which involves continually assessing how family members are coping during the process, and providing support and information during and after resuscitation.Relevance to clinical practiceIt is important to provide support to family members who witness the resuscitation of a loved one in‐hospital. Structured follow‐up care is crucial for cardiac arrest survivors and their families. To promote person‐centred care, nurses need interprofessional training on how to support family members during resuscitation, and follow‐up care focusing on providing resources for multiple challenges faced by survivors (emotional, cognitive, physical) and families (emotional) is needed.Patient or public contributionIn‐hospital cardiac arrest patients and family members were involved when designing the study.

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“… 28 A very clear message was also the prioritization of research in areas that fall under the new sixth link of recovery and support. 29 In addition, our final priorities include several of those focused on understanding the post-discharge support needed for survivors and families as outlined in several recent studies 30 , 31 , 32 , 33 including the American Heart Association Survivorship Scientific Statement 34 and gaps in our knowledge on bystander CPR, resuscitation medications and neuroprognostication identified by the 2015 ILCOR consensus statement on scientific knowledge gaps and clinical research priorities. 35 …”

Section: Discussionmentioning

confidence: 99%

Partnering with survivors & families to determine research priorities for adult out-of-hospital cardiac arrest: A James Lind Alliance Priority Setting Partnership

Dainty

Seaton

Cowan³

et al. 2021

Resuscitation Plus

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Background Research priority setting in health care has historically been done by expert health care providers and researchers and has not involved patients, family or the public. Survivors & family members have been particularly absent from this process in the field of resuscitation research and specifically adult out of hospital cardiac arrest (OHCA). As such, we sought to conduct a priority setting exercise in partnership with survivors, lay responders and their families in order to ensure that their priorities were visible. We partnered with the James Lind Alliance (UK) and used their commonly used consensus methodology for Public Priority Setting Partnerships (PSPs) to identify research priorities that reflected the perspectives of all stakeholders. Methods We used two rounds of public and health care professional surveys to create the initial priority lists. The initial survey collected open-ended questions while the second round consolidated the list of initial questions into a refined list for prioritization. This was done by reviewing existing evidence and thematic categorization by the multi-disciplinary steering committee. An in-person consensus workshop was conducted to come to consensus on the top ten priorities from all perspectives. The McMaster PPEET tool was used to measure engagement. Results The initial survey yielded more than 425 responses and 1450 “questions” from survivors and family members (18%), lay responders, health care providers and others. The second survey asked participants to rank a short list of 125 questions. The final top 25 questions were brought to the in-person meeting, and a top ten were selected through the JLA consensus process. The final list of top ten questions included how to improve the rate of lay responder CPR, what interventions used at the scene of an arrest can improve resuscitation and survival, how survival can be improved in rural areas of Canada, what resuscitation medications are most effective, what care patient’s family members need, what post-discharge support is needed for survivors, how communication should work for everyone involved with a cardiac arrest, what factors best predict neurologically intact survival, whether biomarkers/genetic tests are effective in predicting OHCA and more research on the short and long-term psycho-social impacts of OHCA on survivors. The PPEET showed overwhelmingly positive results for the patient and family engagement experience during the final workshop. Conclusions This inclusive research priority setting provides essential information for those doing resuscitation research internationally. The results provide a guide for priority areas of research and should drive our community to focus on questions that matter to survivors and their families in our work. In particular the Canadian Resuscitation Outcomes Consortium will be incorporating the top ten list into its strategic plan for the future.

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“We don’t talk about his heart”: Narrative sense-making and long-term readjustment among older out-of-hospital cardiac arrest survivors and their spouses

Cited by 10 publications

References 33 publications

The second year of a second chance: Long-term psychosocial outcomes of cardiac arrest survivors and their family

The second year of a second chance: Long-term psychosocial outcomes of cardiac arrest survivors and their family

Experiences of family‐witnessed cardiopulmonary resuscitation in hospital and its impact on life: An interview study with cardiac arrest survivors and their family members

Partnering with survivors & families to determine research priorities for adult out-of-hospital cardiac arrest: A James Lind Alliance Priority Setting Partnership

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