We Don’t Talk about It: Cancer Pain and American Indian Survivors

Hodge, Felicia Schanche; Itty, Tracy Line; Samuel-Nakamura, Christine; Cadogan, Mary

doi:10.3390/cancers12071932

Cited by 5 publications

(3 citation statements)

References 18 publications

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“…It should be noted that, similar to many other cancer research areas, research on palliative cancer care use in some populations that have been historically marginalized, such as AI/AN people and people experiencing homelessness, is scarce 120 . However, the available evidence indicates that these populations have limited access to palliative care and symptom management 120,127,128,129 …”

Section: Factors That Contribute To Cancer Disparities Across the Can...mentioning

confidence: 99%

American Cancer Society's report on the status of cancer disparities in the United States, 2021

Islami

Guerra

Minihan

et al. 2021

CA A Cancer J Clinicians

183

121

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In this report, the authors provide comprehensive and up‐to‐date US data on disparities in cancer occurrence, major risk factors, and access to and utilization of preventive measures and screening by sociodemographic characteristics. They also review programs and resources that have reduced cancer disparities and provide policy recommendations to further mitigate these inequalities. The overall cancer death rate is 19% higher among Black males than among White males. Black females also have a 12% higher overall cancer death rate than their White counterparts despite having an 8% lower incidence rate. There are also substantial variations in death rates for specific cancer types and in stage at diagnosis, survival, exposure to risk factors, and receipt of preventive measures and screening by race/ethnicity, socioeconomic status, and geographic location. For example, kidney cancer death rates by sex among American Indian/Alaska Native people are ≥64% higher than the corresponding rates in each of the other racial/ethnic groups, and the 5‐year relative survival for all cancers combined is 14% lower among residents of poorer counties than among residents of more affluent counties. Broad and equitable implementation of evidence‐based interventions, such as increasing health insurance coverage through Medicaid expansion or other initiatives, could substantially reduce cancer disparities. However, progress will require not only equitable local, state, and federal policies but also broad interdisciplinary engagement to elevate and address fundamental social inequities and longstanding systemic racism.

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Section: Factors That Contribute To Cancer Disparities Across the Can...mentioning

confidence: 99%

American Cancer Society's report on the status of cancer disparities in the United States, 2021

Islami

Guerra

Minihan

et al. 2021

CA A Cancer J Clinicians

183

121

View full text Add to dashboard Cite

show abstract

“…From the perspective of someone experiencing pain, “[i]solation creates an additional layer of pain leading to depression, despondency, feelings of loss, purpose and value” [( 18 ), p. 12]. As noted by Hodge, Itty, Samuel-Nakamura, and Cadogan, a pervasive sense that “we don't talk about it” (i.e., experiences of pain) can mean that “discussing such experiences can bring additional pain, suffering, and hardship to the family or community” [( 59 ), p. 5]. This is a highly relevant consideration when it comes to addressing intersubjective contexts, which can serve to exacerbate or potentially ameliorate the lived significance of pain.…”

Section: Collectively Making Sense Of Painful Experiencesmentioning

confidence: 99%

Beyond Pain Scales: A Critical Phenomenology of the Expression of Pain

Miglio

Stanier

2022

Front. Pain Res.

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In this paper, we discuss the qualitative dimension of painful experiences by exploring the role of imagination and metaphorical association in the conceptualization and expression of pain. We employ an engaged critical-phenomenological approach to offer original analysis influenced by the perspectives of people in pain. The paper is organized into three parts. Part 1 reviews literature on the expression of pain, its communication, and its reception—attending in particular to the emphasis on verbalizing pain in healthcare contexts. We here discuss benefits and limitations of standard methods aimed at facilitating the meaningful expression of pain (such as “pain scales”) from the perspectives of patients and practitioners, respectively. We suggest that these methods might be importantly complemented by facilitating creative expression of painful lived experiences with respect to personal lifeworlds. Part 2 deals with the role of imagination and metaphorical association in making sense of pain. We explore how imagination is a cognitive and affective mode of experiencing the world which plays a crucial role in determining how pain is experienced, as well as helping to make sense of pain figuratively in relation to the lifeworld. In Part 3, we draw from principles of engaged phenomenology to foreground case studies in which projects have been able facilitate the intersubjective expression of pain. These examples demonstrate the value of attending to the contours of painful lifeworlds in their specificity, affording both agency and accessibility in their communication, while remaining mindful of the complex power relations which govern perceived legitimacy and testimony relating to the transformation of pain. The overall paper aims to contribute to literature on qualitative pain research on both theoretical and practical levels. By exploring the expression of pain through phenomenology, we aim to enrich current debate on the qualitative experience of pain. We also seek to critically highlight the socio-political dimensions which frame painful experiences, their expression, their lived significance, and their treatment.

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“…The growing population of cancer survivors has prompted an increase in attention to their unmet needs [ 1 , 2 ]. These include fear of cancer recurrence and progression, uncertainty about the future, and reduction of stress and pain [ 2 , 3 , 4 , 5 ]. Fear of cancer recurrence is one of the most frequently reported unmet needs [ 5 ].…”

Section: Introductionmentioning

confidence: 99%

Trends in Participation Rates of the National Cancer Screening Program among Cancer Survivors in Korea

Yun

Hong

Her

et al. 2020

Cancers

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The study aimed to describe the participation rates of the National Cancer Screening Program (NCSP) among cancer survivors in Korea. The NCSP protocol recommends that all Korean men and women should be screened for cancer. Cancer survivors were defined as those registered for any cancer in the Korea Central Cancer Registry by December 31 of the year prior to being included in the target population of the NCSP. In this study, the participation rates for the NCSP were calculated as the percentage of people who participated in four kinds of cancer screening programs, independently. The average annual percentage change was assessed. The participation rates of the general population and cancer survivors were higher than 40% in stomach, breast, and cervical cancer screening. These rates were higher than that of colorectal cancer screening in 2014. In addition, the participation rates in the NCSP in 2002–2014 increased for all cancer types. The NCSP participation rates of the cancer survivors indicate the high demand for cancer screening. Further research may investigate the effect of the NCSP on second cancer occurrence or mortality in cancer survivors and the significance of cancer screening guidelines for cancer survivors.

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We Don’t Talk about It: Cancer Pain and American Indian Survivors

Cited by 5 publications

References 18 publications

American Cancer Society's report on the status of cancer disparities in the United States, 2021

American Cancer Society's report on the status of cancer disparities in the United States, 2021

Beyond Pain Scales: A Critical Phenomenology of the Expression of Pain

Trends in Participation Rates of the National Cancer Screening Program among Cancer Survivors in Korea

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