“We just thought that this was Christmas”: perceived benefits of participating in aphasia, stroke, and other groups

Rotherham, Annette; Howe, Tami; Tillard, Gina

doi:10.1080/02687038.2015.1016887

Cited by 40 publications

(25 citation statements)

References 36 publications

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“…Other factors that fueled the paradigm shift included recognition of the need for interventions that improved quality of life and overall well-being for people with aphasia (Brown, Worrall, Davidson, & Howe, 2012;Hilari, Needle, & Harrison, 2012;Holland & Nelson, 2013;LeDorze & Brassard, 1995;Parr, Byng, Gilpin, & Ireland, 1997;Sarno, 1991Sarno, , 1993Ross & Wertz, 2003) and reduced the negative impact of social isolation that often resulted from aphasia (Attard, Lanyon, Togher, & Rose, 2015;Davidson, Howe, Worrall, Hickson, & Togher, 2008;Elman, 2007b;Elman & Bernstein-Ellis, 1999b;Hilari & Northcott, 2006;Rotherham, Howe, & Tillard, 2015;Ryff, 1989;Ryff & Singer, 2000;Ryff, Singer, & Love, 2004;Vickers, 2010;Worrall et al, 2011). There was also increasing recognition that people with aphasia could receive benefit from opportunities for authentic conversation and development of social relationships that were typical in dyads and groups (Elman, 2007a(Elman, , 2007bEwing, 2007;Simmons-Mackie & Elman, 2011;Simmons-Mackie et al, 2014;Yalom, 2005).…”

Section: Additional Factors That Supported the Creation Of Aphasia Cementioning

confidence: 98%

Aphasia Centers and the Life Participation Approach to Aphasia

Elman¹

2016

Topics in Language Disorders

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The Aphasia Center is a service delivery model that provides an interactive community for persons with aphasia. This model has been increasing in popularity over the last 20 years. Aphasia Centers are consistent with a social model of health care and disability. They offer the potential for linguistic, communicative, and psychosocial benefits. The purpose of this article is to describe the historical context that served as the catalyst for Aphasia Centers as well as to offer a firsthand account of their development. Included is a summary of the research evidence, as well as other factors that support the science underlying aphasia group treatment, Aphasia Centers, and the Life Participation Approach to Aphasia. Finally, examples are provided that show how this service delivery model is being incorporated into clinical guidelines, clinical pathways, and clinical best practices.

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Section: Additional Factors That Supported the Creation Of Aphasia Cementioning

confidence: 98%

Aphasia Centers and the Life Participation Approach to Aphasia

Elman¹

2016

Topics in Language Disorders

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“…, Rotherham et al . ). Researchers have demonstrated that community aphasia groups fulfil critical support, communication and education needs (Attard et al .…”

Section: Introductionmentioning

confidence: 97%

“…In another study, Rotherham et al. () contended that for aphasia groups to provide any benefits to their members, an emphasis must be placed on the organizational structure and programming of the group, such as the provision of aphasia‐specific informational support and an adjusted communication environment. These findings suggest that an additional focus on the group activity and the group environment may optimize group outcomes for people with aphasia.…”

Section: Introductionmentioning

confidence: 99%

“…There is strong evidence that community-based aphasia groups hold value for people with aphasia (Elman 2007, Graham and Avent 2004, Rotherham et al 2015. Researchers have demonstrated that community aphasia groups fulfil critical support, communication and education needs , and offer opportunities for relationship formation (Rotherham et al 2015, Shadden 2005.…”

Section: Introductionmentioning

confidence: 99%

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What really matters to people with aphasia when it comes to group work? A qualitative investigation of factors impacting participation and integration

Lanyon

Worrall

Rose

2018

Intl J Lang & Comm Disor

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People with aphasia perceive community aphasia-group participation to be beneficial to their ability to live well with aphasia. However, a range of challenges to successful participation are also evident. Inputs such as peer-to-peer communication strategies, shared roles and responsibilities, and consultation with regard to group objectives and processes provide group members with the opportunity to become active contributors, demonstrate competence and have influence over the group. When inputs are poorly implemented or absent, people with aphasia are at risk of feeling disabled and marginalized by the group experience.

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“…52 As part of this ICAP, participants work together in small groups, have lunch together and meet up for dinners. Some socialize on the weekends.…”

Section: Comprehensiveness Of Aphasia Treatmentmentioning

confidence: 99%

Outcomes of an Intensive Comprehensive Aphasia Program

Babbitt¹

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Intensive comprehensive aphasia programs (ICAP) have increased over the last decade in the US and abroad. The increase in the number of clinical programs has outpaced the research that is necessary to establish the efficacy and effectiveness of these specialized treatment programs. The ICAP model incorporates principles from neuroplasticity, that is, intensive treatment provides a platform for the massed practice and repetition required to change the brain. It also incorporates comprehensive treatment that addresses not only impairment-based language deficits but also personal goals related to participation.Programs which offer intensive comprehensive treatment can provide up to 120 hours of treatment over several weeks (e.g., six hours a day, five days a week for four weeks). ICAPs are different from other types of aphasia services which generally provide two to three hours of therapy a week. This thesis examined one ICAP in depth to describe the structure, process, and outcomes using Donabedian's model of health care evaluation. This thesis also described the experiences of the ICAP from the perspectives of the primary stakeholders.Study One (Chapter Two) was a retrospective quantitative study using behavioral measures from an existing database that documented the outcomes of participants with aphasia. It found that first-time participants improved significantly in impairment-and participationbased measures, demonstrating moderate to large effect sizes. Participant characteristics were examined to determine if improvements were related to age, time post-onset, or type and severity of aphasia. None of these factors had an impact on the amount of change measured. Given that some participants did not make significant gains on a primary outcome measure, the Western Aphasia Battery -Revised Aphasia Quotient (WAB-R AQ), Study Two (Chapter Three) examined whether participant characteristics at baseline could predict who would make significant gains on the WAB-R AQ. Age and months post-onset were significantly different between the responder and the non-responder groups. Those who showed most gains on average were younger and a longer time post-onset. A logistic regression was performed and results indicated that only age (younger participants) predicted who would respond to treatment. Time post-onset, type and severity of aphasia, naming, non-verbal cognition, and communication confidence did not show significance in a predictive model. Studies Three and Four were qualitative studies involving interviews with therapists (Chapter Four) and people with aphasia and their families (Chapter Five). Both studies were 3 conducted using a phenomenological approach which allowed for the interviewees to describe their experiences in a semi-structured interview. The clinicians described the intensity of the therapy, the rewards, and challenges of the program. Therapists also considered that the ICAP model of service delivery had several positive benefits for them, but acknowledged that the intensity of therapy was challe...

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“We just thought that this was Christmas”: perceived benefits of participating in aphasia, stroke, and other groups

Cited by 40 publications

References 36 publications

Aphasia Centers and the Life Participation Approach to Aphasia

Aphasia Centers and the Life Participation Approach to Aphasia

What really matters to people with aphasia when it comes to group work? A qualitative investigation of factors impacting participation and integration

Outcomes of an Intensive Comprehensive Aphasia Program

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