Web‐based clinical assessments for Parkinson's disease: Reliable and feasible

Grana, Matthew J.; Bull, Michael; Venkataraman, Vinayak; Dorsey, E. Ray; Biglan, Kevin

doi:10.1002/mds.25121

Cited by 2 publications

(4 citation statements)

References 5 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…In addition to the study’s technological limitations, the nature of the remote visits is limited. While several studies have demonstrated that the standard Parkinson disease rating scale can be administered remotely and that remote assessments closely correlate with in-person assessments [ 83 , 110 – 112 ], the quality of the examination is not as good as in person. As such, assessments of tone (for example, for cogwheel rigidity) and balance (for example, a ‘pull’ test in which patients are pulled backward by an examiner) are not feasible.…”

Section: Discussionmentioning

confidence: 99%

Virtual house calls for Parkinson disease (Connect.Parkinson): study protocol for a randomized, controlled trial

Achey

Beck

Beran

et al. 2014

Trials

View full text Add to dashboard Cite

BackgroundInterest in improving care for the growing number of individuals with chronic conditions is rising. However, access to care is limited by distance, disability, and distribution of doctors. Small-scale studies in Parkinson disease, a prototypical chronic condition, have suggested that delivering care using video house calls is feasible, offers similar clinical outcomes to in-person care, and reduces travel burden.Methods/DesignWe are conducting a randomized comparative effectiveness study (Connect.Parkinson) comparing usual care in the community to usual care augmented by virtual house calls with a Parkinson disease specialist. Recruitment is completed centrally using online advertisements and emails and by contacting physicians, support groups, and allied health professionals. Efforts target areas with a high proportion of individuals not receiving care from neurologists. Approximately 200 individuals with Parkinson disease and their care partners will be enrolled at 20 centers throughout the United States and followed for one year. Participants receive educational materials, then are randomized in a 1:1 ratio to continue their usual care (control arm) or usual care and specialty care delivered virtually (intervention arm). Care partners are surveyed about their time and travel burden and their perceived caregiver burden. Participants are evaluated via electronic survey forms and videoconferencing with a blinded independent rater at baseline and at 12 months. All study activities are completed remotely.The primary outcomes are: (1) feasibility, as measured by the proportion of visits completed, and (2) quality of life, as measured by the 39-item Parkinson’s Disease Questionnaire. Secondary outcomes include measures of clinical benefit, quality of care, time and travel burden, and caregiver burden.DiscussionConnect.Parkinson will evaluate the feasibility and effectiveness of using technology to deliver care into the homes of individuals with Parkinson disease. The trial may serve as a model for increasing access and delivering patient-centered care at home for individuals with chronic conditions.Trial registrationThis trial was registered on clinicaltrials.gov on January 8, 2014 [NCT02038959].Electronic supplementary materialThe online version of this article (doi:10.1186/1745-6215-15-465) contains supplementary material, which is available to authorized users.

show abstract

Section: Discussionmentioning

confidence: 99%

Virtual house calls for Parkinson disease (Connect.Parkinson): study protocol for a randomized, controlled trial

Achey

Beck

Beran

et al. 2014

Trials

View full text Add to dashboard Cite

show abstract

“…35 Web-based assessments also have the potential to add value to clinical research trials by reducing the burden of frequent in-person office assessments and thus facilitating research subject recruitment and retention, as well as allowing for the inclusion of PD patients in geographically remote locations. 36 However, the specific details involved in using technology need to be considered. A study showed that use of telemedicine, where a patient is presented to a remote clinician by a trained healthcare professional on-site, was a more acceptable means to improve participation in clinical trials than telemonitoring, which occurs via electronic recording and transmission of information gathered by the patient himself for clinical assessments using a personal computer and internet-based tools from the subject's home.…”

Section: Discussionmentioning

confidence: 99%

“…17 Web-based assessments also have the potential to add value to clinical research trials by reducing the burden of frequent in-person office assessments and thus facilitating research subject recruitment and retention, as well as allowing for the inclusion of PD patients in geographically remote locations. 18 While technology-based tools are increasingly being utilized in patients and assist communication and education in healthcare, the documented research delineating the acceptance and usefulness of these tools in PD patients is scarce. Additionally, the demographic characteristics of those PD patients who do utilize technology for their medical care are poorly studied.…”

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

Acceptance of technology-based tools in a sample of Parkinson’s patients

Duroseau¹,

Abramson²,

Pergament³

et al. 2016

Chronic Illness

View full text Add to dashboard Cite

Objectives: Parkinson's disease is the second most common neurodegenerative movement disorder in the United States. Patients' opinions of technology-based tools for education and communication as related to Parkinson's disease are unclear with little documented research addressing the issue. The goal of this research was to investigate patient opinions about technology-based tools with a focus on differences between patients of different age groups. Methods: A cross-sectional survey was used to assess views on using multiple different electronic methods for receiving instructions and communicating with healthcare providers in 109 Parkinson's disease patients.Results: Approximately 28% (n ¼ 28) of the subjects reported having unmet needs related to Parkinson's disease. Those 65 and over were less likely to believe that using technology to communicate with the healthcare center would result in themselves having a better understanding of their care (odds ratio ¼ 0.36, 95% confidence interval: 0.14, 0.95). Those over 75 had a lower odds of being willing to use electronic methods (odds ratio ¼ 0.33, 95% confidence interval: 0.14, 0.79), a lower odds of believing that technology would result in better self-understanding of medical needs (odds ratio ¼ 0.27, 95% confidence interval: 0.12, 0.63) and a lower odds of believing that technology would result in their healthcare providers better understanding their needs (odds ratio ¼ 0.32, 95% confidence interval: 0.14, 0.73). Discussion: The results of this study indicate that older Parkinson's disease patients report a less favorable view regarding the role of technology in communicating with healthcare providers and for understanding their care.

show abstract

Web‐based clinical assessments for Parkinson's disease: Reliable and feasible

Cited by 2 publications

References 5 publications

Virtual house calls for Parkinson disease (Connect.Parkinson): study protocol for a randomized, controlled trial

Virtual house calls for Parkinson disease (Connect.Parkinson): study protocol for a randomized, controlled trial

Acceptance of technology-based tools in a sample of Parkinson’s patients

Contact Info

Product

Resources

About