Web-based information on the treatment of the mouth in systemic sclerosis

Abdouh, Ismail; Porter, Stephen; Fedele, Stefano; Elgendy, Nadia; Ríordáin, Rícheal Ní

doi:10.1186/s41927-020-00160-5

Cited by 16 publications

(14 citation statements)

References 32 publications

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“…In this study, the 22 sites with online education materials related to vocal cord leukoplakia were written at readability levels above those recommended by the AMA/NIH. These results are consistent with many other readability studies that have been published within otolaryngology 7,8,20,28–33 and other specialties 34–43 …”

Section: Discussionsupporting

confidence: 91%

“…These results are consistent with many other readability studies that have been published within otolaryngology 7,8,20,[28][29][30][31][32][33] and other specialties. [34][35][36][37][38][39][40][41][42][43] Similarly, PEMAT-P understandability and actionability scores were low. The understandability score of 73.65% 6 7.05% in this study is comparable but a bit higher than that of similar studies on other topics, which reported scores ranging from 62.8% to 66.0%.…”

Section: Discussionmentioning

confidence: 99%

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Readability of Online Materials Related to Vocal Cord Leukoplakia

Shneyderman

Snow²,

Davis³

et al. 2021

OTO Open

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Objectives To assess readability and understandability of online materials for vocal cord leukoplakia. Study Design Review of online materials. Setting Academic medical center. Methods A Google search of “vocal cord leukoplakia” was performed, and the first 50 websites were considered for analysis. Readability was measured by the Flesch Reading Ease Score (FRES), Flesch-Kincaid Grade Level (FKGL), and Simple Measure of Gobbledygook (SMOG). Understandability and actionability were assessed by 2 independent reviewers with the PEMAT-P (Patient Education Materials Assessment Tool for Printable Materials). Unpaired t tests compared scores between sites aimed at physicians and those at patients, and a Cohen’s kappa was calculated to measure interrater reliability. Results Twenty-two websites (17 patient oriented, 5 physician oriented) met inclusion criteria. For the entire cohort, FRES, FKGL, and SMOG scores (mean ± SD) were 36.90 ± 20.65, 12.96 ± 3.28, and 15.65 ± 3.57, respectively, indicating that materials were difficult to read at a >12th-grade level. PEMAT-P understandability and actionability scores were 73.65% ± 7.05% and 13.63% ± 22.47%. Statistically, patient-oriented sites were more easily read than physician-oriented sites ( P < .02 for each of the FRES, FKGL, and SMOG comparisons); there were no differences in understandability or actionability scores between these categories of sites. Conclusion Online materials for vocal cord leukoplakia are written at a level more advanced than what is recommended for patient education materials. Awareness of the current ways that these online materials are failing our patients may lead to improved education materials in the future.

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Section: Discussionsupporting

confidence: 91%

Section: Discussionmentioning

confidence: 99%

Readability of Online Materials Related to Vocal Cord Leukoplakia

Shneyderman

Snow²,

Davis³

et al. 2021

OTO Open

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“…For the DISCERN categories, moderate scores were the most common, and high scores were mostly in universities or medical centers. These findings are consistent with other studies, but the percentage of high-quality websites was higher for websites in this study [ 26 , 29 ].…”

Section: Discussionsupporting

confidence: 94%

“…Regarding website specialization, over 90% of the websites in this study were partly related, which is also consistent with the other studies [ 14 , 15 ]. In similar studies, the content type was mostly medical facts, and this was true even for non-implant-related topics [ 26 , 27 ]. In our studies, websites containing questions and answers were more than half of the websites compared to only 10% in the study about peri-implantitis.…”

Section: Discussionmentioning

confidence: 99%

Is Online Patient-Centered Information About Implant Bone Graft Valid?

Alassaf,

Hammudah,

Almuzaini

et al. 2023

Cureus

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Background A dental implant is one of the most commonly used treatments to replace missing teeth. A reasonable number of implant cases necessitate using a bone graft before or at the time of implant placement. This study aims to evaluate the quality and readability of online patient-centered information about implant bone grafts. Methodology This cross-sectional study used Google, Yahoo, and Bing search engines. The keywords were entered to screen 900 websites. The DISCERN, Journal of the American Medical Association (JAMA), and Health on the Net (HON) code tools evaluated the included websites for quality. The Flesch reading-ease score (FRES), Flesch-Kincaid grade level, and simple measure of gobbledygook tests measured readability. Statistical analysis was done using SPSS version 25 (IBM Corp., Armonk, NY, USA). Results A total of 161 websites were included; 65 (40.4%) of the included websites belonged to a university or medical center. Only five (3.1%) websites were exclusively related to dental implant treatments. DISCERN showed moderate quality for 82 (50.9%) websites. There was a statistical difference between commercial and non-profit organization websites. In the JAMA evaluation, currency was the most commonly achieved in 67 (41.6%) websites. For the HON code, four (2.5%) websites were certified. Based on FRES, the most common readability category was “fair difficult,” accounting for 64 (39.8%), followed by “standard” in 56 (34.8%) websites. Conclusions The study findings suggest that English-language patient-centered information about implant bone grafts is challenging to comprehend and of low quality. Hence, there is a need to establish websites that provide trustworthy, high-quality information on implant bone grafts.

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“…In regard to SSc/SLE eHealth support, web-based resources are often of low quality, have inadequate readability and limited functionality. [9][10][11] Several studies demonstrate that patients with rare connective tissue diseases and their providers are interested in web-based education and support. [12][13][14] However, few online programmes focus on critical concepts of health equity, patient engagement and empowerment.…”

Section: Key Messagesmentioning

confidence: 99%

Patient and healthcare professional eHealth literacy and needs for systemic sclerosis support: a mixed methods study

et al. 2021

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ObjectivesWe engaged patients with systemic sclerosis (SSc) and healthcare professionals to assess electronic health (eHealth) literacy and needs relating to web-based support using internet-based information and communication technologies (ICT).MethodsWe employed an explanatory sequential mixed methods design. First, we conducted a cross-sectional survey in patients (n=101) and professionals (n=47). Next, we conducted three focus groups with patients, family members and professionals (n=17).ResultsOf patients, 89.1% used ICT at least weekly for private communication. Patients reported relatively high comprehension of eHealth information (x¯ =6.7, 95% CI: 6.2 to 7.3, range 1–10), yet were less confident evaluating information reliability (x¯ =5.8, 95% CI: 5.1 to 6.4) and finding eHealth apps (x¯ =4.8, 95% CI: 4.2 to 5.4). Patients and professionals reported little experience with web-based self-management support. Focus groups revealed ‘considering non-ICT-accessible groups’ and ‘fitting patients’ and professionals’ technology’ as crucial for acceptability. In relation to understanding/appraising eHealth, participants highlighted that general SSc information is not tailored to individual’s disease course. Recommendations included ‘providing timely, understandable and safe information’ and ‘empowering end-users in ICT and health decision-making skills’. Professionals expressed concerns about lacking resources. Patients were concerned about data security and person-centredness. Key eHealth drivers included ‘addressing end-user perceptions’ and ‘putting people at the centre of technology’.ConclusionsPatients and professionals need education/training to support uptake of eHealth resources. Key elements include guiding patients to timely/reliable information and using eHealth to optimise patient–provider communication. Design that is responsive to end-users’ needs and considers individuals with limited eHealth literacy and/or ICT access appears to be critical for acceptability.

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Web-based information on the treatment of the mouth in systemic sclerosis

Cited by 16 publications

References 32 publications

Readability of Online Materials Related to Vocal Cord Leukoplakia

Readability of Online Materials Related to Vocal Cord Leukoplakia

Is Online Patient-Centered Information About Implant Bone Graft Valid?

Patient and healthcare professional eHealth literacy and needs for systemic sclerosis support: a mixed methods study

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