Web Based Supportive Intervention for Families Living with Schizophrenia—An Open Trial

Stjernswärd, Sigrid; Hansson, Lars

doi:10.4236/ojmp.2013.24028

Cited by 4 publications

(2 citation statements)

References 53 publications

(58 reference statements)

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“…Most participants in the current sample were middle-aged, well-educated women and were a parent or partner—or an adult child in the WLC—to the patient. It goes in line with previous studies on web-based support (Stjernswärd 2009 ; Stjernswärd and Hansson 2013 ; Stjernsward and Hansson 2014 ) and MBI for caregivers (Stjernswärd and Hansson 2016a ; Whitebird et al 2011 ) and other populations (Fish et al 2016 ). As mothers (Finley 1989 ), spouses, and adult children often have a major role in caregiving (Brody 1985 ), this is not surprising.…”

Section: Discussionsupporting

confidence: 90%

Effectiveness and Usability of a Web-Based Mindfulness Intervention for Families Living with Mental Illness

Stjernswärd

Hansson

2016

Mindfulness

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Families living with mental illness express needs of support and experiences of burden that may affect their own health detrimentally and hence also their ability to support the patient. Mindfulness-based interventions have shown beneficial health effects in both clinical and healthy populations. The aim of the current study was to explore the effectiveness and usability of a web-based mindfulness program for families living with mental illness, which was first tested in a feasibility study. The study was designed as a randomized controlled trial with an experiment group and a wait-list control group with assessments on primary and secondary outcomes at baseline, post-intervention, and at a 3-month follow-up. Significant positive improvements in mindfulness and self-compassion, and significant decreases in perceived stress and in certain dimensions of caregiver burden were found, with good program usability. Easily accessible mindfulness-based interventions may be useful in addressing caregivers’ needs of support and in preventing further ill health in caregivers. Further studies are needed, among others, to further customize interventions and to investigate the cost-effectiveness of such programs.

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Section: Discussionsupporting

confidence: 90%

Effectiveness and Usability of a Web-Based Mindfulness Intervention for Families Living with Mental Illness

Stjernswärd

Hansson

2016

Mindfulness

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“…Besides the diary and forum, the updated tool entailed a psychoeducation module. The tool was also targeted at an additional user group consisting of families living close to a person with schizophrenia, but these results are presented elsewhere [ 24 ]. We focused on the forum and the following research questions: What phenomena relating to the relatives’ situations stand out in the forum?…”

Section: Introductionmentioning

confidence: 99%

A Web-Based Supportive Intervention for Families Living With Depression: Content Analysis and Formative Evaluation

Stjernswärd¹,

Hansson²

2014

JMIR Res Protoc

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BackgroundRelatives of people with a mental illness who live together can experience additional burdens that may require support. A Web-based tool including a psychoeducation module, a diary, and a password-protected forum was developed to support relatives of a person with depression.ObjectiveThe objective of our study was to explore participants’ use of the Web-based tool, with focus on the forum, and to assess its potential health and psychosocial benefits.MethodsTwenty-five people participated in this explorative open trial. Self-rating instruments assessing caregiver burden, stigma, and the tool’s usability were analyzed with Carer QoL7-D, DISC-12, and a system usability scale. A summary measure of subjective burden was assessed with CarerQoL-VAS. The forum posts were studied using content analysis.ResultsThe majority reported fulfillment from their caregiving tasks (84%, 21/25), and had relational problems (76%, 19/25), their own mental health problems (72%, 18/25), support (72%, 18/25), and difficulties coordinating daily activities with caregiving (56%, 14/25). Most (72%, 18/25) reported having been able to use their inner strength to cope with stigma and discrimination, 64% (16/25) had concealed or hidden the person’s condition, and 40% (10/25) reported having been avoided or shunned by people who knew about the illness. Forty-eight percent (12/25) reported unfair treatment from family; 40% (10/25) in marriage or divorce and 36% (9/25) from mental health staff. Almost one-third (28%, 7/25) reported having stopped themselves from having a close personal relationship. Participants’ subjective assessment of the tool’s usability resulted in a mean of 61.5 (range, 22.5-90; possible total value 0-100; >70=good). Ten people participated in the forum; content analysis resulted in five categories describing relatives’ situations: balancing the caregiver’s role and relationship to the patient; their own lives and need for support; resources and patient advocacy; a looming shadow on leisure, social, and professional life; and interaction and social support.ConclusionsFurther studies are needed to explore optimal ways of using Web-based tools to address support for relatives of a person with mental illness. Professional feedback may enhance the use and value of online communities.

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Outcome of a web-based mindfulness intervention for families living with mental illness – A feasibility study

Stjernswärd

Hansson

2016

Informatics for Health and Social Care

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Web Based Supportive Intervention for Families Living with Schizophrenia—An Open Trial

Cited by 4 publications

References 53 publications

Effectiveness and Usability of a Web-Based Mindfulness Intervention for Families Living with Mental Illness

Effectiveness and Usability of a Web-Based Mindfulness Intervention for Families Living with Mental Illness

A Web-Based Supportive Intervention for Families Living With Depression: Content Analysis and Formative Evaluation

Outcome of a web-based mindfulness intervention for families living with mental illness – A feasibility study

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