Well-being and Perceived Stigma in Individuals With Rheumatoid Arthritis and Fibromyalgia

Abstract

The presence or absence of clearly defined symptoms and underlying pathophysiology may be a crucial variable related to variability in wellbeing and stigmatization in individuals with chronic pain (ICPs). In the context of pain, absence of clearly defined symptoms and pathophysiology deviates from the widely endorsed biomedical model and as such, may lead to stigmatization, which in turn could be related to ICPs' wellbeing. ObjectivesThe present study compared physical, psychological, and social wellbeing and perceived stigmatization in individuals with clearly defined symptoms and underlying pathophysiology (rheumatoid arthritis, RA) and individuals with less well understood symptoms and pathophysiology (fibromyalgia, FM) using daily diaries. Furthermore, the association between daily perceived stigmatization and daily wellbeing was examined. MethodsSeventy-nine participants with FM, 86 participants with RA, and 33 participants with both diagnoses completed a diary for 14 consecutive days. ResultsCompared to individuals with RA, individuals with FM and individuals with both diagnoses reported worse daily wellbeing. After controlling for age, pain duration, and daily pain, differences between FM and RA remained significant for social wellbeing and completion of plans. Differences between RA and the dual diagnosis group remained significant for completion of plans, negative affect, and isolation. Furthermore, results suggested more stigmatization in individuals with FM than in individuals with RA.Individuals with both diagnoses reported equal stigmatization as individuals with FM, but

Encoding edge type information in graphlets

“…The real-world dataset is collected from chronic pain patients of the League for Rheumatoid Arthritis, the League for Fibromyalgia and the Flemish Pain League [19]. Each patient creates their own egocentric social networks containing up to 10 alters using the graphical tool GENSI [31].…”

“…We then employ the proposed TyE-GDV and the classic graphlets degree vector [15] to evaluate and analyse a collection of egocentric social networks of chronic pain patients. The real-life data is gathered from two chronic pain leagues in Belgium [19]. Each patient creates an egocentric social network with edges denoted by the type of social relationships.…”

Objawy depresji i lęku w RZS — wpływ wybranych czynników klinicznych i psychospołecznych

“…W RZS ponadto często dochodzi do zmiany w postrzeganiu siebie i obniżenia samooceny, na co wpływ ma zmiana obrazu ciała [7]body image (BI, poczucie nieadekwatności i niedostosowania społecznego, a także obawa przed byciem ciężarem dla rodziny. Bywa niestety, że czynniki te wiążą się z utratą dotychczasowego statusu społecznego, a nawet ze stygmatyzacją [8]absence of clearly defined symptoms and pathophysiology deviates from the widely endorsed biomedical model and as such, may lead to stigmatization, which in turn could be related to ICPs' well-being.\ nOBJECTIVES: The present study compared physical, psychological, social well-being, and perceived stigmatization in individuals with clearly defined symptoms and underlying pathophysiology (rheumatoid arthritis, RA, co sprzyja rozwojowi zaburzeń psychicznych. Do zaburzeń psychicznych, na które pacjenci z RZS są najbardziej narażeni, należą zaburzenia lękowe i nastroju [9,10].…”

The Social Course of Fibromyalgia: Resisting Processes of Marginalisation

“…As fibromyalgia research has grown drastically over the past two decades, the lived experience of fibromyalgia is well-documented with researchers focussing on the experience of receiving and coming to terms with the fibromyalgia diagnosis [ 11 , 12 , 13 ], the overall illness experience of fibromyalgia [ 14 , 15 , 16 , 17 , 18 ] or more specifically, the experience of stigmatisation [ 19 , 20 ], the relationship of fibromyalgia patients and their significant others or health care professionals [ 21 , 22 ], the role of support networks and systems in the experience of fibromyalgia [ 23 , 24 , 25 ], as well as identity and loss of self [ 21 , 26 ]. Clearly, there is now a recognition that in line with a sociosomatic understanding of illness, experiences of physical pain in fibromyalgia are a manifestation of emotional pain, stresses and traumas [ 27 ].…”