For some low rectal cancer patients, ostomy (with elimination into a
pouch) may be the only realistic surgical option. However, some patients have a
choice between ostomy and sphincter-sparing surgery. Sphincter-sparing surgery
has been preferred over ostomy because it offers preservation of normal bowel
function. However, this surgery can cause incontinence and bowel dysfunction.
Increasingly, it has become evident that certain patients eligible for
sphincter-sparing surgery may not be well served by the surgery and construction
of an ostomy may be better. No validated assessment tool or decision aid has
been published to help newly diagnosed patients decide between the two
surgeries, or to help physicians elicit long-term surgical outcomes.
Furthermore, comparison of long-term outcomes and late effects following the two
surgeries has not been synthesized. We therefore conducted a systematic review
to examine this ? This systematic review summarizes controlled studies that
compared long-term survivorship outcomes between these two surgical groups. Our
goals are: 1) improve understanding and shared decision-making among surgeons,
oncologists, primary care providers, patients, and caregivers; 2) increase the
patient’s participation in the decision; (3) alert the primary care
provider to patient challenges that could be addressed by provider attention and
intervention; and 4) ultimately, improve patients’ long-term quality of
life. This report includes discussion points for health care providers to use
with their patients during initial discussions of ostomy and sphincter-sparing
surgery, as well as questions to ask during follow-up examinations to ascertain
any long-term challenges facing the patient.