What Are the Support Needs of Men with Multiple Sclerosis, and Are They Being Met?

Upton, Dominic; Taylor, Charlotte

doi:10.7224/1537-2073.2013-044

Cited by 11 publications

(11 citation statements)

References 32 publications

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“…In Iranian collectivist culture, independence and self‐reliance are less valuable compared with individualistic cultures. Thus, in this culture, individuals can easily take support and assistance from the others than in individualistic cultures (Pentecostes, ; Upton & Taylor, ).…”

Section: Discussionmentioning

confidence: 99%

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‘I want to be with you, but I have MS’: Challenges of interpersonal relationships from the MS patients’ point of view

Sharifi

Doost

Shayegannejad

2020

Health Soc Care Community

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Interpersonal relationships play an important role in adjustment to disease, coping and improving life quality after onset of Multiple sclerosis (MS). However, considering its specific nature, MS has a considerable effect on interpersonal relationships. Thus, this study was conducted to identify and describe effects of disease on interpersonal relationships through investigating lived experiences of patients. In this research, a total of 24 MS patients were selected through purposive sampling from individuals referred to the MS Clinic of Kashani Hospital in Isfahan, Iran, during 2016–2017, and then in‐depth interviews were done with participants. After analysing interviews by Giorgi Descriptive Phenomenological Psychological Method, five main themes were obtained including ‘Who is guilty?’, ‘The need for informed care’, ‘living with a secret’, ‘Change in relationships’ and ‘The Reality slap’. Content of experience for some of these themes was more influenced by nature of the disease, whereas some other themes were influenced more by patient's cultural context.

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Section: Discussionmentioning

confidence: 99%

“…In addition, in this culture, men are more support provider rather than support recipient, explaining why it is more difficult for men to seek help than women (Levant, Wimer, Williams, Smalley, & Noronha, 2009;Upton & Taylor, 2015). Men receive far less support and pity from caregivers than women.…”

Section: Gender Differencesmentioning

confidence: 99%

‘I want to be with you, but I have MS’: Challenges of interpersonal relationships from the MS patients’ point of view

Sharifi

Doost

Shayegannejad

2020

Health Soc Care Community

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“…The number of individuals diagnosed with MS is on the rise, exceeding 2.5 million across the globe and 50,000 in Iran alone (3,4). MS can lead to significant disability and a variety of psychological and social problems (5). People with MS can suffer from psychological disorders and behavioral changes such as anxiety, depression, euphoria, bipolar affective disorder, confabulations, paranoid ideas, and irritability (6)(7)(8).…”

Section: Introductionmentioning

confidence: 99%

Relationship Between Spiritual Well-Being and Self-Management Among Iranian People With Multiple Sclerosis

Zarei

Vagharseyyedin

Gorganie

2015

Jundishapur J Chronic Dis Care

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Background: Self-management is the cornerstone for controlling multiple sclerosis. As one's sense of meaning in life and his/her relationship with a higher power, spiritual well-being is an important coping resource in some chronic diseases. However, little is known about the role of spiritual well-being in self-management of people diagnosed with multiple sclerosis. Objectives: This study was aimed to assess the relationship between spiritual well-being and self-management among Iranian people with multiple sclerosis. Patients and Methods: Two hundred ninety-one people diagnosed with multiple sclerosis belonging to the Multiple Sclerosis Society of Mashhad, Iran, participated in this cross-sectional analytical study conducted in 2014. Demographic information was collected by using a demographic form. The multiple sclerosis self-management scale-revised (2011), developed by Bishop and Frain, was used to evaluate self-management of multiple sclerosis symptoms. Spiritual well-being of participants was assessed by using the spiritual well-being questionnaire developed by Paloutzian and Ellison in 1983. Descriptive statistic and inferential statistical methods including Pearson and Spearman's coefficient, stepwise multiple regression, independent t-test, Mann-Whitney U test, one-way ANOVA, and Kruskal-Wallis test were employed by using SPSS, version 16.0. The significance level was set at P ≤ 0.05. Results: Overall, the participants reported moderate levels of self-management and spiritual well-being as recorded on the multiple sclerosis self-management scale-revised and the spiritual well-being questionnaire. There was a significant correlation between the participants' spiritual well-being and self-management scores (r = 0.59, P < 0.001). Furthermore, participants' self-management was significantly correlated with existential health (r = 0.52, P < 0.001) and religious health (r = 0.57, P < 0.001). Finally, 40% of the variance of self-management was explained by three factors: spiritual well-being, marital status, and job type (R 2 = 0.4, F (3, 286) = 65.82, P < 0.001). Conclusions: Designing strategies to improve the spiritual well-being of people with multiple sclerosis can result in improved selfmanagement of the disease. In designing such programs, special attention should be paid to the patients' demographic characteristics such as employment type and marital status.

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“…Masculine socialization influences individuals' experiences of adjusting to diagnosis, changing roles, seeking support, and utilizing health services (Frost et al., 2017; Hughes, 2016). For example, gender stereotypes may influence men with chronic illness to underreport symptoms and deemphasize emotional support in favour of informational and instrumental support (Okoro and Barksdale, 2017; Upton and Taylor, 2015).…”

Section: Literature Reviewmentioning

confidence: 99%

Everyday technology use for men with multiple sclerosis: An occupational perspective

Stern

Goverover

2018

British Journal of Occupational Therapy

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Introduction: Everyday technology has the potential to increase quality of life for individuals with disabilities. In a society that relies on technology for participation, exploring everyday technology use is a fundamental part of understanding lived experiences of occupation. The meaning and roles individuals with disabilities ascribe to technology may be influenced by sociocultural considerations, such as gender. This interpretive phenomenological study aimed to present an occupational perspective of everyday technology use for men with multiple sclerosis. Method: Three middle-aged men (50-57 years old) with multiple sclerosis participated in an individual semi-structured interview. Data were analysed using a hermeneutic approach of close reading. After the initial analysis, superordinate themes were examined relative to an occupational framework. Findings: The identified themes were 'searching online as means and end' (doing); 'connecting to others and society' (belonging); and 'seeing present and future self' (being and becoming). Conclusion: The meaning of occupational experiences of everyday technology for men with multiple sclerosis are influenced by master narratives of masculinity. Since everyday technology is intertwined with multiple dimensions of occupation, facilitating its use may promote health and quality of life.

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What Are the Support Needs of Men with Multiple Sclerosis, and Are They Being Met?

Cited by 11 publications

References 32 publications

‘I want to be with you, but I have MS’: Challenges of interpersonal relationships from the MS patients’ point of view

‘I want to be with you, but I have MS’: Challenges of interpersonal relationships from the MS patients’ point of view

Relationship Between Spiritual Well-Being and Self-Management Among Iranian People With Multiple Sclerosis

Everyday technology use for men with multiple sclerosis: An occupational perspective

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