What causes grief in dementia caregivers?

Warchoł-Biedermann, Katarzyna; Mojs, Ewa; Gregersen, Rikke; Maibom, Kirsten; Millán-Calentí, José Carlos; Maseda, Ana

doi:10.1016/j.archger.2014.05.013

Cited by 29 publications

(37 citation statements)

References 29 publications

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“…In one Spanish study, 77% of caregivers were women, 61% cared for a parent, and men became caregivers only for their spouse, in old age . In one Polish study, 63% of caregivers were women, and 43% were caring for a parent . In Sweden, 21% of caregivers lived with the care recipient, compared to 80% in Poland .…”

Section: Literature Reviewmentioning

confidence: 99%

“…In addition to depressive symptoms and anxiety, caregivers experience grief . Traditionally, grief is defined as an emotional response to a loss, such as death.…”

Section: Literature Reviewmentioning

confidence: 99%

“…Feelings of grief appear related to the caregiver's perceived personal sacrifice, sadness and longing, isolation and lack of social support. Grief could be differentiated from depression and was associated with worse mental health and quality of life. Furthermore, the caretakers’ predeath experience may predict their adaptation to the care recipient's death .…”

Section: Literature Reviewmentioning

confidence: 99%

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The caregiving phenomenon and caregiver participation in dementia

García-Ptacek

Dahlrup

Edlund

et al. 2018

Scandinavian Caring Sciences

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Background Dementia presents barriers to the collaboration between individuals and the healthcare system. Caregivers perform multiple functions helping patients with basic and instrumental activities but also communicating and mediating the dyads’ needs within the broader social group. Interventions focusing on caregivers show that caregiver burden can be reduced, improving patient outcomes in a cost‐effective way, but the generalisation of these findings is limited by several factors such as low participation rates of caregivers in studies. There is a global push to increase patient participation in health care, but this can be difficult for patients with dementia. Caregiver participation has arisen as a substitute, but there is a lack of standardised definitions, goals and outcome measurement tools for this participation. Methods In 2015, the Swedish Association of Local Authorities and Regions commissioned a study on possibilities of increasing caregiver participation within the Swedish Dementia Registry (SveDem). This discussion paper updates and adapts that report, aiming to broadly summarise the caregiving phenomenon in order to provide a backdrop for clinicians seeking to understand the legal, ethical and practical considerations of caregiver participation in dementia. Relevant literature on caregiver participation is presented, and its definition, extent and practical implementation are discussed. Discussion The Swedish legal framework compels care providers to facilitate patient and caregiver participation in dementia and provides support to caregivers through the local level of government, but further work is needed to clarify and define the extension and form that this participation must take in clinical practice. Advanced directives are one step in extending patient participation to the period of advanced dementia. Conclusion Little research exists on caregiver participation. There is a need to develop a framework for caregiver and patient participation to determine the extent, type and form that such participation should take in health care, research and quality initiatives pertaining to persons with dementia.

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Section: Literature Reviewmentioning

confidence: 99%

“…In addition to depressive symptoms and anxiety, caregivers experience grief . Traditionally, grief is defined as an emotional response to a loss, such as death.…”

Section: Literature Reviewmentioning

confidence: 99%

Section: Literature Reviewmentioning

confidence: 99%

See 1 more Smart Citation

The caregiving phenomenon and caregiver participation in dementia

García-Ptacek

Dahlrup

Edlund

et al. 2018

Scandinavian Caring Sciences

View full text Add to dashboard Cite

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“…The mental impact a caregiver endures is individualized, however, the threat remains that it can potentially precipitate the development of various psychiatric disorders such as depression, anxiety and addictions [8,13]. Hence, informal caregivers are increasingly susceptible to mental and emotional challenges [14][15][16].…”

Section: Redefining Survivorshipmentioning

confidence: 99%

“…As the person you once knew changes with declining health, you literally experience the stages of grieving for the individual even though they are physically alive. Hence, working one's way through Kubler-Ross' stages of grieving, inclusive of denial, anger, bargaining, depression and acceptance, is not uncommon [13].…”

Section: Redefining Survivorshipmentioning

confidence: 99%

Treating Depression in the Caregivers of Cancer Patients

Louis¹

2017

JPCPY

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Partners often assume the role of caregiver when cancer is brought into the home. The support caregivers provide to cancer patients has immeasurable value. However, care giving can take a significant toll on loved ones from both a psychological and physiological perspective; sometimes to the point of producing caregiver burden. One of the diseases most prevalent in caregivers is depression. Signs and symptoms of depression amongst caregivers vary from mild to severe and people respond quite differently to the life stressors they face. While, the exact cause of depression is not known, proven research correlates it with an internal chemical and/or neurotransmitter imbalance that can be triggered by stress, chronic stress in particular. As a mood disorder, depression affects how you feel, think, and function in the performance of your daily activities. It is critically important to identify caregivers exhibiting depressive symptoms and first, to provide them with both emotional and psychological support, and second, so as to ensure the individual battling cancer receives optimal support from their loved ones. This review article serves to promote health awareness and the unmet needs of cancer patient caregivers, the presence of caregiver burden, and the impact that stress can have on one's neurophysiological processes to precipitate the development of mental illness such as depression.

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Quantifying the unmet needs of caregivers of people with dementia: a critical review of the quality of measures

Mansfield

Boyes

Bryant

et al. 2016

Int J Geriat Psychiatry

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Objective The array of demanding tasks carried out by caregivers of people with dementia have significant negative impacts on their physical, mental and social well‐being. Needs assessment allows individuals to indicate the extent to which their needs across different areas have or have not been met, allowing for estimations of the prevalence of needs and the extent to which help is required. This approach is extremely valuable in a clinical context, as it enables identification of the areas with which caregivers report a particular desire for help and allows targeting of support and resources to those who identify high levels of unmet needs. This systematic review aimed to critically examine the psychometric properties of measures that assess unmet needs of caregivers of people with dementia. Methods Medline, Embase, PsycINFO and Cochrane electronic databases were searched between January 1990 and August 2015 for English‐language publications describing the development or validation of measures assessing the unmet needs of adult caregivers of people with dementia. The psychometric properties of included measures were assessed against standard criteria for psychometric quality. Results Four measures met the inclusion criteria. Only half of the indices of psychometric quality were tested across measures. Three measures had adequate internal consistency reliability, of which one also showed adequate test–retest reliability. Two measures reported adequate construct validity, while criterion validity was not assessed for any measure. Conclusions There is a clear need to develop a psychometrically rigorous instrument to identify the unmet needs of caregivers of people with dementia. Copyright © 2016 John Wiley & Sons, Ltd.

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What causes grief in dementia caregivers?

Cited by 29 publications

References 29 publications

The caregiving phenomenon and caregiver participation in dementia

The caregiving phenomenon and caregiver participation in dementia

Treating Depression in the Caregivers of Cancer Patients

Quantifying the unmet needs of caregivers of people with dementia: a critical review of the quality of measures

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