What Do Outpatients With Schizophrenia and Mood Disorders Want to Learn About Their Illness?

Hallett, Claudia; Gupta, Sonali; Priebe, Stefan

doi:10.1176/appi.ps.201200382

Cited by 11 publications

(28 citation statements)

References 20 publications

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“…Despite the high levels of endorsement for the importance of skilled communication to patient care, participants in this study reported low rates of confidence in these communication skills, particularly with respect to prognosis. This is consistent with findings regarding the practice of clinicians [6], their perceptions of their ability [2], and the unmet information needs of patients and family members [7]. It is encouraging to observe the improvements in self-reported confidence, but more importantly to observe increased self-reported confidence in the ability of trainees to critically evaluate their own communication practice.…”

Section: Discussionsupporting

confidence: 88%

“…Patients and families, on the other hand, report significant unmet needs for information [3] and wish to be better informed about their diagnosis [4][5][6]. The majority (>90 %) prefers to receive diagnostic information from their treating psychiatrist [7], although only 50 % on average are told a diagnosis [6,8], with rates varying across different diagnostic groups: highest for anxiety and depression, lowest for first episode schizophrenia, dementia, and personality disorder. Few studies have addressed the communication of prognostic…”

mentioning

confidence: 99%

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Improving Clinician Competency in Communication About Schizophrenia: a Pilot Educational Program for Psychiatry Trainees

Loughland¹,

Kelly²,

Ditton-Phare

et al. 2014

Acad Psychiatry

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This preliminary study provides support for the translation of a well-established educational model to psychiatric training addressing core clinical communication tasks and provides the foundation for the development of a more comprehensive evaluation and an extended curriculum regarding other aspects of care for patients with schizophrenia: ongoing management and recovery, dealing with conflict, and conducting a family interview.

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Section: Discussionsupporting

confidence: 88%

mentioning

confidence: 99%

Improving Clinician Competency in Communication About Schizophrenia: a Pilot Educational Program for Psychiatry Trainees

Loughland¹,

Kelly²,

Ditton-Phare

et al. 2014

Acad Psychiatry

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“…Information seeking is an important aspect of coping with chronic illness (Lambert and Loiselle 2007; Brashers et al 2002) and many patients with bipolar disorder want to learn more (Hallett et al 2013; Giacco et al 2014). The majority of patients with bipolar disorder would prefer to learn about their illness through a face-to-face conversation with their physician, as do patients with other mental and physical illness (Hallett et al 2013; Gaglio et al 2012; Hesse et al 2005; Horgan and Sweeney 2010).…”

Section: Introductionmentioning

confidence: 99%

“…The majority of patients with bipolar disorder would prefer to learn about their illness through a face-to-face conversation with their physician, as do patients with other mental and physical illness (Hallett et al 2013; Gaglio et al 2012; Hesse et al 2005; Horgan and Sweeney 2010). This is often not feasible due to the large number of questions that will arise over the long term and the limited access to the treating psychiatrist.…”

Section: Introductionmentioning

confidence: 99%

Online information seeking by patients with bipolar disorder: results from an international multisite survey

Conell

Bauer

Glenn³

et al. 2016

Int J Bipolar Disord

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BackgroundInformation seeking is an important coping mechanism for dealing with chronic illness. Despite a growing number of mental health websites, there is little understanding of how patients with bipolar disorder use the Internet to seek information.MethodsA 39 question, paper-based, anonymous survey, translated into 12 languages, was completed by 1222 patients in 17 countries as a convenience sample between March 2014 and January 2016. All patients had a diagnosis of bipolar disorder from a psychiatrist. Data were analyzed using descriptive statistics and generalized estimating equations to account for correlated data.Results976 (81 % of 1212 valid responses) of the patients used the Internet, and of these 750 (77 %) looked for information on bipolar disorder. When looking online for information, 89 % used a computer rather than a smartphone, and 79 % started with a general search engine. The primary reasons for searching were drug side effects (51 %), to learn anonymously (43 %), and for help coping (39 %). About 1/3 rated their search skills as expert, and 2/3 as basic or intermediate. 59 % preferred a website on mental illness and 33 % preferred Wikipedia. Only 20 % read or participated in online support groups. Most patients (62 %) searched a couple times a year. Online information seeking helped about 2/3 to cope (41 % of the entire sample). About 2/3 did not discuss Internet findings with their doctor.ConclusionOnline information seeking helps many patients to cope although alternative information sources remain important. Most patients do not discuss Internet findings with their doctor, and concern remains about the quality of online information especially related to prescription drugs. Patients may not rate search skills accurately, and may not understand limitations of online privacy. More patient education about online information searching is needed and physicians should recommend a few high quality websites.Electronic supplementary materialThe online version of this article (doi:10.1186/s40345-016-0058-0) contains supplementary material, which is available to authorized users.

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“…Patients with serious mental illness want to learn more about their disease (Giacco et al, 2014;Griffiths and Crisp, 2013;Hallett et al, 2013). For example, patients with bipolar disorder are not satisfied with the information provided about possible medication side effects (Bowskill et al, 2007).…”

Section: Introductionmentioning

confidence: 99%

Internet use by patients with bipolar disorder: Results from an international multisite survey

Bauer

Conell

Glenn³

et al. 2016

Psychiatry Research

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What Do Outpatients With Schizophrenia and Mood Disorders Want to Learn About Their Illness?

Cited by 11 publications

References 20 publications

Improving Clinician Competency in Communication About Schizophrenia: a Pilot Educational Program for Psychiatry Trainees

Improving Clinician Competency in Communication About Schizophrenia: a Pilot Educational Program for Psychiatry Trainees

Online information seeking by patients with bipolar disorder: results from an international multisite survey

Internet use by patients with bipolar disorder: Results from an international multisite survey

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