What do we do and how do we do it? Assessing genetic counselling in the modern era

Yeates, Laura; McEwen, Alison; Ingles, Jodie

doi:10.1038/s41431-020-0628-6

Cited by 2 publications

(1 citation statement)

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“…This result again stresses the need for improvement of health-related literacy in the general population, including through genetic counselling. In the Era of Genome genetic counselling should be more readily available as it allows to support and educate people about medical, psychological and familial aspects of heritable diseases [93]. For example, there is evidence that genetic counselling can not only provide knowledge regarding a condition and potentially help to avoid a negative outcome (e.g.…”

Section: Plos Onementioning

confidence: 99%

Attitudes towards genetic testing: The role of genetic literacy, motivated cognition, and socio-demographic characteristics

Likhanov,

Zakharov,

Awofala

et al. 2023

PLoS ONE

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Understanding reasons for why people choose to have or not to have a genetic test is essential given the ever-increasing use of genetic technologies in everyday life. The present study explored the multiple drivers of people’s attitudes towards genetic testing. Using the International Genetic Literacy and Attitudes Survey (iGLAS), we collected data on: (1) willingness to undergo testing; (2) genetic literacy; (3) motivated cognition; and (4) demographic and cultural characteristics. The 37 variables were explored in the largest to-date sample of 4311 participants from diverse demographic and cultural backgrounds. The results showed that 82% of participants were willing to undergo genetic testing for improved treatment; and over 73%—for research. The 35 predictor variables together explained only a small proportion of variance: 7%—in the willingness to test for Treatment; and 6%—for Research. The strongest predictors of willingness to undergo genetic testing were genetic knowledge and deterministic beliefs. Concerns about data misuse and about finding out unwanted health-related information were weakly negatively associated with willingness to undergo genetic testing. We also found some differences in factors linked to attitudes towards genetic testing across the countries included in this study. Our study demonstrates that decision-making regarding genetic testing is influenced by a large number of potentially interacting factors. Further research into these factors may help consumers to make decisions regarding genetic testing that are right for their specific circumstances.

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Section: Plos Onementioning

confidence: 99%