What Does “Patient-Centered” Mean? Qualitative Perspectives from Older Adults and Family Caregivers

Raj, Minakshi; Platt, Jodyn; Anthony, Denise L.; Fitzgerald, James T.; Lee, Shoou Yih D.

doi:10.1177/23337214211017608

Cited by 5 publications

(7 citation statements)

References 48 publications

(51 reference statements)

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Empathy, communication in multicultural languages, people's involvement in making decisions and designing and implementing solutions effectively empower individualized care for their health [57,59,61]. Empathic support, communication with their doctors, understanding of problems, providers' skills, and management plans were required for improved satisfaction and the effect of interpersonal care [61,62,70]. Communication between service users and providers enhanced high perceived empathy in consultation, trust in relationships, and positive experiences and satisfaction [50,62].…”

Section: Empowerment and Empathymentioning

confidence: 99%

People-centred primary health care: a scoping review

Khatri,

Wolka,

Nigatu

et al. 2023

BMC Prim. Care

View full text Add to dashboard Cite

Background Integrated people-centred health services (IPCHS) are vital for ensuring comprehensive care towards achieving universal health coverage (UHC). The World Health Organisation (WHO) envisions IPCHS in delivery and access to health services. This scoping review aimed to synthesize available evidence on people-centred primary health care (PHC) and primary care. Methods We conducted a scoping review of published literature on people-centred PHC. We searched eight databases (PubMed, Scopus, Embase, CINAHL, Cochrane, PsycINFO, Web of Science, and Google Scholar) using search terms related to people-centred and integrated PHC/primary care services. We followed the Preferred Reporting Items for Systematic Reviews and Meta-Analyses Extension for Scoping Reviews (PRISMA-ScR) checklist to select studies. We analyzed data and generated themes using Gale's framework thematic analysis method. Themes were explained under five components of the WHO IPCHS framework. Results A total of fifty-two studies were included in the review; most were from high-income countries (HICs), primarily focusing on patient-centred primary care. Themes under each component of the framework included: engaging and empowering people and communities (engagement of community, empowerment and empathy); strengthening governance and accountability (organizational leadership, and mutual accountability); reorienting the model of care (residential care, care for multimorbidity, participatory care); coordinating services within and across sectors (partnership with stakeholders and sectors, and coordination of care); creating an enabling environment and funding support (flexible management for change; and enabling environment). Conclusions Several people-centred PHC and primary care approaches are implemented in HICs but have little priority in low-income countries. Potential strategies for people-centred PHC could be engaging end users in delivering integrated care, ensuring accountability, and implementing a residential model of care in coordination with communities. Flexible management options could create an enabling environment for strengthening health systems to deliver people-centred PHC services.

show abstract

Section: Empowerment and Empathymentioning

confidence: 99%

People-centred primary health care: a scoping review

Khatri,

Wolka,

Nigatu

et al. 2023

BMC Prim. Care

View full text Add to dashboard Cite

show abstract

“…Further, an HCP may or may not have the legal right to provide medical information to the caregiver, depending on the older patient’s agency. In the work presented below, we treat the relationship as that of a supporter—present to assist the older patient where or when needed and integrated into the healthcare process [ 34 ] but not necessarily to make medical decisions.…”

Section: Rapid Review and Narrative Synthesismentioning

confidence: 99%

Patient Interaction Involving Older Adults: Provider vs. Caregiver Expectations

2022

View full text Add to dashboard Cite

This paper presents a study of the interaction between healthcare providers (HCPs) and older patients and their caregivers. The paper first presents results from a rapid review and narrative synthesis using PubMed and Google Scholar of HCP/patient/caregiver interactions involving older patients; these results then informed the design of a survey administered to HCPs and caregivers using a range of scenarios and their ratings of appropriateness of different responses, to explore where expectations align or differ between HCPs and caregivers. In analyzing ratings, the research found HCPs and caregivers generally approach the older adult encounter with similar expectations, but differences for specific situations are informative. HCPs appear to better recognize when there is a need to show empathy, as when a patient is frustrated or anxious. HCPs, overall, offer more calming responses, especially in embarrassing, upsetting, or worrying situations. For older patients of advanced age, HCPs value engagement with patients more than caregivers, but HCPs are more aligned with caregivers in their ratings of how to engage caregivers. Compared to caregivers, HCPs focus more on simplifying the description of treatment rather than using thorough explanations when a patient expresses hesitancy or avoidance. The results from this work suggest that having a fuller understanding of the different participants’ expectations may improve communication and identify potential pitfalls. A better understanding may also lead to changes in how students in the healthcare fields are trained; having better insight into this relationship will prepare them for interacting with older patients while addressing the needs of caregivers.

show abstract

“…Transitional care can be effective in helping patients transition to home or other care settings, and its proper implementation accounts for factors such as the situation of the patient and his or her family, the members of the healthcare team and the relevant environmental and social conditions 13 . Understanding the patient experience and actual needs is the basis of transitional care and the premise of implementing patient‐centred care 14 . Understanding the views of healthcare providers can help further the implementation of transitional care.…”

Section: Introductionmentioning

confidence: 99%

“… 13 Understanding the patient experience and actual needs is the basis of transitional care and the premise of implementing patient‐centred care. 14 Understanding the views of healthcare providers can help further the implementation of transitional care. However, the majority of the current studies on transitional care for PTBD patients are intervention studies exploring the effects of different transitional care modalities.…”

Section: Introductionmentioning

confidence: 99%

Perceptions of transitional care services among patients with percutaneous transhepatic biliary drainage and multicentre health professionals: A qualitative study

Yu,

Wang,

Wang

et al. 2023

Health Expectations

View full text Add to dashboard Cite

BackgroundPatients with percutaneous transhepatic biliary drainage (PTBD) need regular drainage tube care after discharge, and transitional care can help solve this problem. However, few studies have focused on the quality of transitional care, the perceptions of patients with drainage tubes after discharge and those of healthcare professionals.AimThis study is aimed at exploring the real experience and perceptions of transitional care services among healthcare professionals and PTBD patients who have been discharged with tubes and at providing references for future transitional care service development.DesignThe study uses a qualitative descriptive design. The reporting method followed Consolidated Criteria for Reporting Qualitative Research guidelines.MethodsSemistructured interviews were conducted with PTBD patients who had been discharged with tubes and multicentre healthcare professionals using the purpose sampling method. The thematic analysis method was used for analysis.ResultsThirteen PTBD patients from one hospital and 12 healthcare professionals from three hospitals were interviewed. The analysis of the patient interview data revealed three themes, namely, recognition of the value of transitional care services, patients have some unmet needs and perception of transitional care service pathways. Six subthemes were also identified. The analysis of the interview data of healthcare professionals revealed two themes, namely, harvest and challenges in transitional care services work and expectations for future development of transitional care services. Four subthemes were also identified.ConclusionsThe transitional care of discharged patients with PTBD tubes deserves the attention of clinical workers, and a series of measures should be taken to improve transitional care services.Patient/Public ContributionPatients were involved in the formulation of interview questions for this study, and during the interviews, patients presented their suggestions for transitional care services. Healthcare professionals participated in this study as interviewees, and no members of the public were involved in this study.

show abstract

What Does “Patient-Centered” Mean? Qualitative Perspectives from Older Adults and Family Caregivers

Cited by 5 publications

References 48 publications

People-centred primary health care: a scoping review

People-centred primary health care: a scoping review

Patient Interaction Involving Older Adults: Provider vs. Caregiver Expectations

Perceptions of transitional care services among patients with percutaneous transhepatic biliary drainage and multicentre health professionals: A qualitative study

Contact Info

Product

Resources

About