What does the general public understand about prevention and treatment of dementia? A systematic review of population-based surveys

Cations, Monica; Radisic, Gorjana; Crotty, Maria; Laver, Kate

doi:10.1371/journal.pone.0196085

Cited by 158 publications

(198 citation statements)

References 57 publications

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“…Many participants reported that dementia was a natural part of the aging process, and did not perceive dementia to be a medical problem. This replicates findings from studies in Europe, the US, East Asia, Israel, and Australia, which show that nearly half of the general public believes that dementia is a normal consequence of aging [19]. Other participants reported that dementia may be caused by untreated medical conditions such as nutritional deficiencies and syphilis, or by side effects from allopathic medications or herbal treatments.…”

Section: Discussionsupporting

confidence: 79%

“…People with dementia (PWD) gradually lose cognitive function, resulting in an inability to perform activities of daily living (ADLs) [3]. A study of hospitalized patients in Uganda over the age of 60 found that 5.5% were diagnosed with dementia, but 14% had evidence of cognitive impairment on the MMSE (score < 19), suggesting that the true prevalence of dementia may already be higher than reported [4]. Therefore the provision of effective services to the increasing numbers of individuals with dementia is a public health care priority [3].…”

Section: Introductionmentioning

confidence: 99%

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Community perceptions about dementia in southwestern Uganda

et al. 2020

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Background: With the increasing number of people surviving into older age in Africa, dementia is becoming a public health concern. Understanding the social dynamics of dementia in resource-limited settings is critical for developing effective interventions. We explored community perceptions about people with dementia in southwestern Uganda. Methods: Fifty-nine individuals (aged 19-85 years, 56% female) participated in seven focus group discussions. In addition, 22 individual in-depth interviews were conducted among individuals (aged 22-84 years, 36% female). Both interviews and focus group discussions were audio recorded, transcribed verbatim, and evaluated using a quantitative content analysis approach.Results: Five themes were generated during content analysis: i) Labeling of the illness, ii) Presentation of the person with dementia, iii) Causation, iv) Impact of the disease on people with dementia and their caregivers and v) Views on how to address unmet needs in dementia care. Dementia was commonly referred to as "okuhuga" or "okwebwayebwa" (also, oruhuzyo/ empugye / akahuriko) which translates as "mental disorientation". The participants reported that most people with dementia presented with forgetfulness, defecating and urinating on themselves, wandering away from home, going out naked, and picking up garbage. Some participants perceived memory problems as a normal part of the aging process, while others attributed the cause of dementia to syphilis, cancer, allergy, old age, satanic powers, witchcraft, poor nutrition, or life stress. Participants reported multiple sources of stress for caregivers of people with dementia, including financial, social, and emotional burdens. Finally, participants suggested that community and governmental organizations should be involved in meeting the needs of people with dementia and their caregivers.Conclusions: Community members in southwestern Uganda largely identified dementia as a problem that comes with older age, and can identify key features of dementia presentation. Participants identified significant stressors affecting people with dementia and their caregivers, and reported that families and caregivers would benefit from education on the management of symptoms of dementia, and assistance in overcoming associated financial, social, and emotional burdens related to caretaking.

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Section: Discussionsupporting

confidence: 79%

Section: Introductionmentioning

confidence: 99%

Community perceptions about dementia in southwestern Uganda

et al. 2020

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“…13,14 A recent review of population surveys from Europe, the USA, Eastern Asia (China, South Korea, Singapore), Israel and Australia found that knowledge and attitudes about prevention and treatment of dementia remain poor but may be improving over time, whilst knowledge amongst those living in low-income and middle-income countries are largely unknown. 15 Our study suggested that some Asian New Zealanders have folk explanations for the causes of dementia. Folk explanations were also reported in other international studies.…”

Section: Discussionmentioning

confidence: 62%

“…When dementia symptoms are considered by ethnic minorities as a normal part of ageing, medical help is less likely to be sought . A recent review of population surveys from Europe, the USA, Eastern Asia (China, South Korea, Singapore), Israel and Australia found that knowledge and attitudes about prevention and treatment of dementia remain poor but may be improving over time, whilst knowledge amongst those living in low‐income and middle‐income countries are largely unknown …”

Section: Discussionmentioning

confidence: 99%

Perspectives of dementia from Asian communities living in New Zealand: A focus group of Asian health care professionals

Cheung

Appleton

Boyd

et al. 2019

Int J Geriat Psychiatry

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Objective The number of Asian New Zealanders with dementia is growing. The objective of this study was to explore with a group of Asian health care professionals about public attitudes towards dementia in Asian communities in New Zealand, the stigma of dementia, and how best to develop culturally appropriate services for Asian people and families living with dementia. Methods A focus group was conducted with a group of bilingual Asian health care professionals. A topic guide was developed based on the discussion at a prior meeting with the Cross Cultural Interest Group. The data were independently analysed by three researchers using the thematic qualitative methodology. Results Eleven overseas‐born Asian health care professionals (Chinese: n = 9, 82%) participated in the focus group. Four main themes emerged from the data: (a) cultural interpretations of dementia; (b) stigma; (c) filial piety; and (d) inequity in the availability of resources. Conclusion Our findings suggest that much work is needed to destigmatise dementia in New Zealand Asian communities, through psychoeducation, public awareness, and the availability of readily accessible services that can meet their cultural and language needs.

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“…Based on these findings, five countries were classified as belonging to the first class, only one country in the second class, 20 countries in the third class, and finally 29 countries in the fourth class. higher prevalence of AD and other dementias, medical care improvement, healthier lifestyles, industrial development, increased life expectancy, and early detection of the disease can be considered the most important causes for this different trend in this country [27].…”

Section: Resultsmentioning

confidence: 99%

Years Lived with Disability due to Alzheimer’s Disease and Other Dementias in Asian and North African Countries: A Trend Analysis

Amini

Zayeri

Moghaddam

2019

JEGH

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In Asia, which has a rapidly aging population, dementia is the most prominent disease. This article presents an application of Latent Growth Mixture Model (LGMM) to identify classes of individual Alzheimer’s Disease (AD) and other dementias Years Lived with Disability (YLD) rates for Asian and North African countries based on the unobserved heterogeneity. The AD and other dementias YLD data for both sexes and age-standardized groups reported by the Global Burden of Disease (GBD) Study database during 1990–2015 for 55 Asian and North African countries were analyzed via LGMM. Findings of LGMMs identified four classes of YLD trajectories. Among the specified classes, a class was related to a single country (Turkey) with the highest starting point in 1990 (intercept of 218.52 per 100,000) and upward trend. Another class with increasing trend (a slope of 2.66 per 100,000) consisted of India, China, Singapore, Japan, and Egypt. Other countries in Asia and North Africa (Classes 3 and 4) had a downward trend of YLD rates. The upward trend for some parts of Asia and North Africa might be attributed to appropriate therapeutic strategies, higher levels of awareness, related medical cares, and increase in life expectancy in these countries.

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What does the general public understand about prevention and treatment of dementia? A systematic review of population-based surveys

Cited by 158 publications

References 57 publications

Community perceptions about dementia in southwestern Uganda

Community perceptions about dementia in southwestern Uganda

Perspectives of dementia from Asian communities living in New Zealand: A focus group of Asian health care professionals

Years Lived with Disability due to Alzheimer’s Disease and Other Dementias in Asian and North African Countries: A Trend Analysis

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