What else should we know about experiencing COPD? A narrative review in search of patients&amp;rsquo; psychological burden alleviation

Rzadkiewicz, Marta; Bratås, Ola

doi:10.2147/copd.s109700

Cited by 10 publications

(5 citation statements)

References 92 publications

(152 reference statements)

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“…Signs of neurological and psychological burden of people suffering from chronic respiratory diseases as COPD emerged from literature. 38 In particular, using validated questionnaires, several studies revealed COPD patients’ elevated scores on hypochondria, depression, introversion, anxiety, sensitiveness, despair, and hostility due to their living with this condition. 39 , 40 However, narrative research is shown to be more informative than data from questionnaires, being able to delve into the causes of this psychological burden.…”

Section: Discussionmentioning

confidence: 99%

Enlightening chronic obstructive pulmonary disease through patients’ and caregivers’ narratives

Gatti¹,

Banfi²,

Centanni³

et al. 2018

COPD

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PurposeThe primary aim of this research was to raise awareness for COPD through real narratives of patients, caregivers, and pulmonologists. The second objective includes providing clinicians new means of caring for and treating patients with COPD.MethodsUsing narrative medicine, testimonies from patients, their caregivers, and clinicians were collected through an online questionnaire enriched by a narrative plot. Narrations were analyzed throughout descriptive statistics and an elaboration of recurring words and expressions.ResultsThroughout the project, 350 narratives were collected from 235 patients, 55 caregivers, and 60 physicians. Though a generally neutral reaction had been observed upon diagnosis, COPD had been found to have a high impact on the patients’ and caregivers’ lives. Metaphors utilized by patients and caregivers were suggestive of fear and panic unlike those utilized by clinicians who usually had a more technical approach. Smoking was a significant concern for not only patients and caregivers but also clinicians.ConclusionPhysicians are therefore challenged to find new ways of communicating COPD to raise awareness on this pathology and encourage corrective habits. An important social objective should be the implementation of a health system that is able to optimize patients’ and caregivers’ lives.

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Section: Discussionmentioning

confidence: 99%

Enlightening chronic obstructive pulmonary disease through patients’ and caregivers’ narratives

Gatti¹,

Banfi²,

Centanni³

et al. 2018

COPD

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“…COPD is characterized by progressive and nonreversible narrowing or inflammation of the airways or alveoli in the lungs [ 3 , 4 ]. People with COPD experience symptoms such as breathlessness, frequent chest infections, reduced ability to exercise, and impaired day-to-day functioning [ 5 - 7 ]. COPD and its treatment cost the UK’s National Health Service (NHS) approximately 800 million pounds annually [ 3 , 5 ].…”

Section: Introductionmentioning

confidence: 99%

The Use of a Smartphone App and an Activity Tracker to Promote Physical Activity in the Management of Chronic Obstructive Pulmonary Disease: Randomized Controlled Feasibility Study

Bentley¹,

Powell²,

Potter³

et al. 2020

JMIR Mhealth Uhealth

105

135

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Background Chronic obstructive pulmonary disease (COPD) is highly prevalent and significantly affects the daily functioning of patients. Self-management strategies, including increasing physical activity, can help people with COPD have better health and a better quality of life. Digital mobile health (mHealth) techniques have the potential to aid the delivery of self-management interventions for COPD. We developed an mHealth intervention (Self-Management supported by Assistive, Rehabilitative, and Telehealth technologies-COPD [SMART-COPD]), delivered via a smartphone app and an activity tracker, to help people with COPD maintain (or increase) physical activity after undertaking pulmonary rehabilitation (PR). Objective This study aimed to determine the feasibility and acceptability of using the SMART-COPD intervention for the self-management of physical activity and to explore the feasibility of conducting a future randomized controlled trial (RCT) to investigate its effectiveness. Methods We conducted a randomized feasibility study. A total of 30 participants with COPD were randomly allocated to receive the SMART-COPD intervention (n=19) or control (n=11). Participants used SMART-COPD throughout PR and for 8 weeks afterward (ie, maintenance) to set physical activity goals and monitor their progress. Questionnaire-based and physical activity–based outcome measures were taken at baseline, the end of PR, and the end of maintenance. Participants, and health care professionals involved in PR delivery, were interviewed about their experiences with the technology. Results Overall, 47% (14/30) of participants withdrew from the study. Difficulty in using the technology was a common reason for withdrawal. Participants who completed the study had better baseline health and more prior experience with digital technology, compared with participants who withdrew. Participants who completed the study were generally positive about the technology and found it easy to use. Some participants felt their health had benefitted from using the technology and that it assisted them in achieving physical activity goals. Activity tracking and self-reporting were both found to be problematic as outcome measures of physical activity for this study. There was dissatisfaction among some control group members regarding their allocation. Conclusions mHealth shows promise in helping people with COPD self-manage their physical activity levels. mHealth interventions for COPD self-management may be more acceptable to people with prior experience of using digital technology and may be more beneficial if used at an earlier stage of COPD. Simplicity and usability were more important for engagement with the SMART-COPD intervention than personalization; therefore, the intervention should be simplified for future use. Future evaluation will require consideration of individual factors and their effect on mHealth efficacy and use; within-subject comparison of step count values; and an opportunity for control group participants to use the intervention if an RCT were to be carried out. Sample size calculations for a future evaluation would need to consider the high dropout rates.

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“…It is usually progressive and associated with a chronic inflammatory response in the airways due to noxious particles or gases (1). COPD is increasingly recognized as systemic and heterogeneous, and may involve skeletal muscle dysfunction (2,3), heart diseases (4), nutritional dysfunctions (5), biochemical changes (6), osteoporosis (7), psychological disorders (8), as well as the impairment of pulmonary mechanics (9).…”

Section: Introductionmentioning

confidence: 99%

Postural alignment of patients with Chronic Obstructive Pulmonary Disease

et al. 2017

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Introduction: In chronic obstructive pulmonary disease (COPD), airflow resistance impairs respiratory mechanics that may compromise postural alignment. There is a lack of studies that have investigated compromised postures and their possible associations with pulmonary function. Objectives: To compare the postural alignment of COPD patients with apparently healthy individuals; To correlate pulmonary function with postural alignment in the COPD group. Methods: 20 COPD patients and 20 apparently healthy individuals performed: anthropometry, spirometry and postural evaluation. The following postural changes were assessed: lateral head tilt (LHT), shoulder asymmetry (SA1), anterior pelvic asymmetry (APA), lateral trunk tilt (LTT), scapular asymmetry (SA2), posterior pelvic asymmetry (PPA), head protrusion (HP), shoulder protrusion (SP), anterior pelvic tilt (APT) and thoracic kyphosis (TK). Results: There was a statistically significant difference between COPD patients and apparently healthy individuals in the following variables: PPT (p= 0.021), APT (p=0.014) and TK (p=0.011). There was a correlation between pulmonary variables and postural alignment in the COPD group: Forced Volume in one second (FEV1% pred) and HP (°) (r=0.488, p=0.029), FEV1 (% pred) and APT (°) (r= -0.472, p= 0.036); Forced Vital Capacity (FVC % pred) and HP (°) (r=0.568, p=0.009); FVC (% pred) and APT (°) (r=-0.461, p=0.041). Conclusion: Postural alignment of the anterior tilt of the right

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What else should we know about experiencing COPD? A narrative review in search of patients’ psychological burden alleviation

Cited by 10 publications

References 92 publications

Enlightening chronic obstructive pulmonary disease through patients’ and caregivers’ narratives

Enlightening chronic obstructive pulmonary disease through patients’ and caregivers’ narratives

The Use of a Smartphone App and an Activity Tracker to Promote Physical Activity in the Management of Chronic Obstructive Pulmonary Disease: Randomized Controlled Feasibility Study

Postural alignment of patients with Chronic Obstructive Pulmonary Disease

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What else should we know about experiencing COPD? A narrative review in search of patients&rsquo; psychological burden alleviation

Cited by 10 publications

References 92 publications

Enlightening chronic obstructive pulmonary disease through patients&rsquo; and caregivers&rsquo; narratives

Enlightening chronic obstructive pulmonary disease through patients&rsquo; and caregivers&rsquo; narratives

The Use of a Smartphone App and an Activity Tracker to Promote Physical Activity in the Management of Chronic Obstructive Pulmonary Disease: Randomized Controlled Feasibility Study

Postural alignment of patients with Chronic Obstructive Pulmonary Disease

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Product

Resources

About

What else should we know about experiencing COPD? A narrative review in search of patients’ psychological burden alleviation

Enlightening chronic obstructive pulmonary disease through patients’ and caregivers’ narratives

Enlightening chronic obstructive pulmonary disease through patients’ and caregivers’ narratives