What Evidence is Available on End-of-life (EOL) Care and Latino Elders? A Literature Review

Cruz‐Oliver, Dulce M.; Talamantes, Melissa A.; Sanchez-Reilly, Sandra

doi:10.1177/1049909113480841

Cited by 43 publications

(48 citation statements)

References 45 publications

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“…Thus, educating Latino communities on PC, and developing evidence-based ways to do so, should be a primary goal of research. Community outreach programs [ 59 ] and media utilization, such as videos [ 60 ], specifically designed for pediatric PC are potential interventions to be studied. Likewise, culturally-competent patient navigators that address education and patient activation through home visits could serve to increase baseline knowledge of pediatric PC and facilitate care delivery [ 61 ].…”

Section: Discussionmentioning

confidence: 99%

Enhancing Pediatric Palliative Care for Latino Children and Their Families: A Review of the Literature and Recommendations for Research and Practice in the United States

et al. 2017

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As the demand for pediatric palliative care (PC) increases, data suggest that Latino children are less likely to receive services than non-Latino children. Evidence on how to best provide PC to Latino children is sparse. We conducted a narrative review of literature related to PC for Latino children and their families in the United States. In the United States, Latinos face multiple barriers that affect their receipt of PC, including poverty, lack of access to health insurance, language barriers, discrimination, and cultural differences. Pediatric PC research and clinical initiatives that target the needs of Latino families are sparse, underfunded, but essential. Education of providers on Latino cultural values is necessary. Additionally, advocacy efforts with a focus on equitable care and policy reform are essential to improving the health of this vulnerable population.

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Section: Discussionmentioning

confidence: 99%

Enhancing Pediatric Palliative Care for Latino Children and Their Families: A Review of the Literature and Recommendations for Research and Practice in the United States

et al. 2017

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“…Hispanics prefer biological‐based therapies, and Asians and Pacific Islanders are generally more likely to use herbs than Caucasians. Studies report differences between minorities about decision‐making and health perceptions that may be elicited simply by asking older adults what their preferences are (e.g., individual or family decision‐making) and whether they agree with the provider's recommendations and what other modalities (e.g., healers, herbs) they use …”

Section: Provider Awareness and Communications Skillsmentioning

confidence: 99%

Achieving High‐Quality Multicultural Geriatric Care

2016

J American Geriatrics Society

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As the ethnic diversity of the U.S. population increases, there is a growing awareness of healthcare disparities and the need to address them. This position statement that the American Geriatrics Society (AGS) Ethnogeriatrics Committee developed outlines healthcare disparities in the United States and the minimum quality indicators that healthcare organizations and healthcare providers should adopt to ensure that all older adults receive care that is culturally appropriate and takes into account level of health literacy.

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“…In one case of placement, the 24-hour complete care became physically impossible and in the other, the caregiver suffered an incapacitating stroke. Essentially, these MA caregivers provided assistance across the continuum of care including palliative and end-of-life care, a phenomenon about which little is known in this population (Carrion & Nedjat-Haiem, 2012; Cruz-Oliver, Talamantes, & Sanchez-Reilly, 2013; NIH, NINR, 2013). Given the sparse literature addressing MA caregiving families and, in particular, their involvement in palliative and end-of-life care, a significant knowledge gap stymies interventionists in conceptualizing effective strategies for family support during this time.…”

Section: What Does Worry Look Like?mentioning

confidence: 99%

Worry Among Mexican American Caregivers of Community-Dwelling Elders

Evans

Coon

Belyea

2014

Hispanic Journal of Behavioral Sciences

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This mixed methods, multi-site, National Institute of Nursing Research (NINR)-funded, interdisciplinary, descriptive study aimed to identify expressions of worry in qualitative data obtained from caregiving Mexican American (MA) families assisting older adults. The purpose of this portion of the inquiry was to determine how worry is expressed, what happens to caregivers when they worry, and what adaptive strategies they used. We examined semi-structured interviews completed during six in-home visits with 116 caregivers. We identified 366 worry quotations from 639 primary documents in ATLAS.ti, entered them into matrices, and organized findings under thematic statements. Caregivers expressed cultural and contextual worries, worried about transitions and turning points in care, and identified adaptive strategies. Despite these strategies, worry persisted. Constant worry may be an allied, important aspect of caregiver burden. We need additional longitudinal research to better understand the experience of MA caregivers for older adults and to provide empirically supported interventions, programs, and services that reduce worry.

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What Evidence is Available on End-of-life (EOL) Care and Latino Elders? A Literature Review

Abstract: Latino elders have traditional acculturation practices, face EOL decisions with family support, and, if educated, are receptive toward hospice and caregiver support.

Cited by 43 publications

References 45 publications

Enhancing Pediatric Palliative Care for Latino Children and Their Families: A Review of the Literature and Recommendations for Research and Practice in the United States

Enhancing Pediatric Palliative Care for Latino Children and Their Families: A Review of the Literature and Recommendations for Research and Practice in the United States

Achieving High‐Quality Multicultural Geriatric Care

Worry Among Mexican American Caregivers of Community-Dwelling Elders

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