What Factors Predict Family Caregivers’ Attendance at Dementia Cafés?

Jones, Susan May; Mioshi, Eneida

doi:10.3233/jad-180377

Cited by 21 publications

(19 citation statements)

References 26 publications

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“…Mindfulness supports the carer to be able to accept and devise strategies to manage the current situation and live in the moment (Guichen, Hua, & Wei, ). Acceptance has been shown to be important to carer well‐being, with acceptance and commitment therapy (ACT) being particularly suitable for dementia carers (Losada et al, ) and having particular benefits in reducing carer anxiety (Kishita, Hammond, Dietrich, & Mioshi, ).…”

Section: Discussionmentioning

confidence: 99%

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Coping but not allowing the coping to be everything: Resilience in informal dementia care

Jones

Mioshi

2019

Health Soc Care Community

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Health and social sciences literature recognises the significance of psychological resilience in relation to stressful life events. Providing ongoing care for a friend or relative with dementia can be inherently stressful. The aims of this qualitative study were to: (a) explore discrepancies and congruency between definitions of resilience in the academic literature and carers own conceptualisations; (b) assess differences and similarities in conceptualisations of resilience between carers with high, medium and low resilience scores; (c) compare carers' perceived level of resilience with the level of resilience when measured on a standardised tool. Participants were recruited from an earlier study examining levels of resilience and well-being in UK carers of people with dementia. A subset of carers were identified using theoretical sampling, to ensure a diversity of participant characteristics and caring experience. Thirteen carers took part in semi-structured interviews between September and October 2017.Interpretative description was used to elicit findings relevant to clinical practice. We found carers' definitions were concordant with clinical and academic definitions described in the literature. However, they extended the concept and placed greater value on the role of self-compassion. Carers recognised that the appearance of resilience may have negative consequences in terms of securing support from others.Scores on the Brief Resilient Coping Scale did not always match carers' own perceptions of their level of resilience. Additionally, service providers' offers of support did not always reflect carers' priorities. Aligning these two areas would better enable carers and providers to work together to identify resources to support resilience.

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Section: Discussionmentioning

confidence: 99%

“…This cross‐sectional qualitative study follows on from a previous quantitative study examining resilience and attendance at a Dementia Café (Jones et al, ). Theoretical sampling was used to identify a subset of participants, from those who had consented to be contacted about further studies.…”

Section: Methodsmentioning

confidence: 99%

Coping but not allowing the coping to be everything: Resilience in informal dementia care

Jones

Mioshi

2019

Health Soc Care Community

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“…Recent studies have applied the MOS-SSS in specific contexts, such as in patients with cancer, 25 women with fibromyalgia, 21 caregivers, 26 patients with diabetes, 27 and residents of rural settlements, 28 among others.…”

Section: Discussionmentioning

confidence: 99%

Construct validity of the Brazilian version of the Medical Outcomes Study Social Support Survey (MOS-SSS) in a sample of elderly users of the primary healthcare system

Zucoloto

Santos

Terada

et al. 2019

Trends Psychiatry Psychother.

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Objective To assess the psychometric properties of the Medical Outcomes Study Social Support Survey (MOS-SSS) considering a sample of elderly users of the primary healthcare facilities of Ribeirão Preto, state of São Paulo, southeast Brazil. Methods The MOS-SSS is a widely used measurement of social support in different contexts, consisting of 19 items with answer categories that range on a 7-point rating scale. Data collection regarding the psychometric properties of the MOS-SSS was performed in a stratified sample of elderly users of primary healthcare facilities of Ribeirão Preto. Data were collected at five district basic health units located in the city through face-to-face interviews. Polychoric correlation matrix and exploratory (EFA) and confirmatory (CFA) factor analyses were performed. Results A total of 357 elderly subjects aged 60 years or older participated in the study (62.7% females). According to the polychoric correlation matrix, higher coefficients of correlation (> 0.90) were detected among 12 pairs of items and grouped into four factors, as suggested for EFA. The results of the CFA confirmed the construct validity of the four-factor structure of the MOS-SSS when applied to our sample, as well as the stability of this model in distinct subsamples. Conclusion The four-factor structure of the MOS-SSS was found to be suitable and presented adequate construct validity for the assessment of social support in elderly users of primary healthcare facilities.

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“…Dementia café staff have not been provided with vocational training and often learn what is required for their work on their own. Since the facility standards and staff abilities have not been clearly defined, research on the management styles and effectiveness of dementia cafés remains limited [6,[8][9][10][11]. However, these need to be established to advance the development of dementia cafés as a useful community resource.…”

Section: Introductionmentioning

confidence: 99%

Dementia Cafés as Hubs to Promote Community-Integrated Care for Dementia through Enhancement of the Competence of Citizen Volunteer Staff Using a New Assessment Tool

Takechi

Yamamoto²,

Matsunagaa

et al. 2019

Dement Geriatr Cogn Disord

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Introduction: Dementia cafés have recently been attracting attention. The increased involvement of citizen volunteers and the competence of dementia café staff could enhance the potential of dementia cafés. The aim of the present study was to examine enhancement of the competence of citizen volunteers using a new assessment tool. Methods: This cross-sectional analysis included 433 dementia café staff members, including medical and care professionals and citizen volunteers. A 20-item dementia café staff self-assessment (DCSA) instrument was newly developed. After confirmation of the reliability and validity of the instrument, DCSA scores among citizen volunteers were evaluated. Results: DCSA showed very good psychometric properties. The mean (±SD) DCSA score was significantly higher for café staff with a medical and care professional background (n = 267) than for citizen volunteers (n = 166) (2.2±0.5 vs. 1.7±0.7, respectively; p < 0.001). The DCSA scores of citizen volunteers became significantly higher with increasing attendance (minimum: n = 24; 1.3±0.7; intermediate: n = 65; 1.6±0.6; and frequent: n = 77; 1.8±0.7; p < 0.01). Conclusion: Assessment of the competence of dementia café staff using the DCSA revealed the potential of citizen volunteers. This tool could also enhance the potential of dementia cafés.

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What Factors Predict Family Caregivers’ Attendance at Dementia Cafés?

Cited by 21 publications

References 26 publications

Coping but not allowing the coping to be everything: Resilience in informal dementia care

Coping but not allowing the coping to be everything: Resilience in informal dementia care

Construct validity of the Brazilian version of the Medical Outcomes Study Social Support Survey (MOS-SSS) in a sample of elderly users of the primary healthcare system

Dementia Cafés as Hubs to Promote Community-Integrated Care for Dementia through Enhancement of the Competence of Citizen Volunteer Staff Using a New Assessment Tool

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