What happens to social relationships in early psychosis? A phenomenological study of young people's experiences

MacDonald, Elspeth; Sauer, Kirsten; Howie, Luke; Albiston, Dianne

doi:10.1080/09638230500060052

Cited by 84 publications

(128 citation statements)

References 29 publications

Supporting

Mentioning

119

Contrasting

Unclassified

Order By: Relevance

“…Self-esteem can be lost due to the content of voices and delusions (Rhodes et al, 2005), loss of employment (Bassett et al, 2001;Mackrell & Lavender, 2004) and labeling/stigma (Laliberte-Rudman et al, 2000;Lloyd et al, 2005;MacDonald et al , 2005;Rice, 2008). This is often internalized resulting in participants judging "themselves as useless, incapable or insane" (Wagner & King, 2004, p. 143).…”

Section: Sub-theme Ii: the Loss Of Selfmentioning

confidence: 99%

What is psychosis? A meta-synthesis of inductive qualitative studies exploring the experience of psychosis

et al. 2013

View full text Add to dashboard Cite

Section: Sub-theme Ii: the Loss Of Selfmentioning

confidence: 99%

What is psychosis? A meta-synthesis of inductive qualitative studies exploring the experience of psychosis

et al. 2013

View full text Add to dashboard Cite

“…82,83 Studies which examined composition of social networks of individuals with psychosis had found them to contain fewer friends 46 and more service practitioners 84 than the general population, and the onset of psychosis can involve changes in social networks and the loss of friends. 85 It is the multifaceted and dynamic nature of social networks that this study explores, looking beneath a map of connections to understand the negotiated meaning, sets of choices, capacity for growth and qualities such as reciprocity.…”

Section: The Recovery Approachmentioning

confidence: 99%

Improving community health networks for people with severe mental illness: a case study investigation

Pinfold

Sweet

Porter³

et al. 2015

Health Services and Delivery Research

View full text Add to dashboard Cite

IntroductionPolicy drivers in mental health to address personal recovery, stigma and poor physical health indicate that new service solutions are required. This study aimed to understand how connections to people, places and activities were utilised by individuals with severe mental illness (SMI) to benefit health and wellbeing.MethodsA five-module mixed-methods design was undertaken in two study sites. Data were collected from 150 network-mapping interviews and 41 in-depth follow-up interviews with people with SMI; in-depth interviews with 30 organisation stakeholders and 12 organisation leaders; and 44 telephone interviews with practitioners. We undertook a three-stage synthesis process including independent lived experience feedback, and a patient and public involvement team participated in tool design, data collection, analysis and write-up.ResultsThree personal network types were found in our study using the community health network approach: diverse and active; family and stable; formal and sparse. Controlled for other factors we found only four variables significantly associated with which network type a participant had: living alone or not; housing status; formal education; long-term sickness or disability. Diagnosis was not a factor. These variables are challenging to address but they do point to potential for network change. The qualitative interviews with people with SMI provided further understanding of connection-building and resource utilisation. We explored individual agency across each network type, and identified recognition of the importance and value of social support and active connection management alongside the risks of isolation, even for those most affected by mental illness. We identified tensions in personal networks, be that relationships with practitioners or families, dealing with the impact of stigma, or frustrations of not being in employment, which all impact on network resources and well-being. The value of connectedness within personal networks of people, place and activity for supporting recovery was evident in shaping identity, providing meaning to life and sense of belonging, gaining access to new resources, structuring routines and helping individuals ‘move on’ in their recovery journey.Health-care practitioners recognised that social factors were important in recovery but reported system-level barriers (workload, administrative bureaucracy, limited contact time with clients) in addressing these issues fully. Even practitioners working in third-sector services whose remit involved increasing clients’ social connection faced restrictions due to being evaluated by outcome criteria that limited holistic recovery-focused practices. Service providers were keen to promote recovery-focused approaches. We found contrasts between recovery ideology within mental health policy and recovery practice on the ground. In particular, the social aspects of supporting people with SMI are often underprioritised in the health-care system. In a demanding and changing context, strategic multiagency working was seen as crucial but we found few examples of embedded multisector organisation partnerships.ConclusionWhile our exploratory study has limitations, findings suggest potential for people with SMI to be supported to become more active managers of their personal networks to support well-being regardless of current network type. The health and social care system does not currently deliver multiagency integrated solutions to support SMI and social recovery.FundingThe National Institute for Health Research Health Services and Delivery Research programme.

show abstract

“…'Wrongful' identification might expose young people to unnecessary labelling and potentially hazardous pharmacological treatments [21] and use of a 'psychosis' related label could potentially obstruct a patient's communicative interactions with others [22,23]. A better understanding of the presentation and characteristics of adolescents with a potential ARMS is thus crucial to informing the approach of mental health services to affected individuals.…”

Section: Introductionmentioning

confidence: 99%

The ‘At-Risk Mental State’ for Psychosis in Adolescents: Clinical Presentation, Transition and Remission

Welsh

Tiffin

2013

Child Psychiatry Hum Dev

View full text Add to dashboard Cite

. (2014) 'The 'At-risk mental state' for psychosis in adolescents : clinical presentation, transition and remission.', Child psychiatry and human development., 45 (1). pp. 90-98.Further information on publisher's website:http://dx.doi.org/10.1007/s10578-013-0380-z Publisher's copyright statement:The nal publication is available at Springer via http://dx.doi.org/10.1007/s10578-013-0380-z.Additional information: Use policyThe full-text may be used and/or reproduced, and given to third parties in any format or medium, without prior permission or charge, for personal research or study, educational, or not-for-pro t purposes provided that:• a full bibliographic reference is made to the original source • a link is made to the metadata record in DRO • the full-text is not changed in any way The full-text must not be sold in any format or medium without the formal permission of the copyright holders.Please consult the full DRO policy for further details. 2 Abstract:Despite increased efforts over the last decade to prospectively identify individuals at ultrahigh risk of developing a psychotic illness, limited attention has been specifically directed towards adolescent populations (<18 years). In order to evaluate how those under 18 fulfilling the operationalised criteria for an At-Risk Mental State (ARMS) present and fare over time, we conducted an observational study. Participants (N=30) generally reported a high degree of functional disability and frequent and distressing perceptual disturbance, mainly in the form of auditory hallucinations. Seventy percent (21/30) were found to fulfil the criteria for a co-morbid ICD-10 listed mental health disorder, with mood (affective; 13/30) disorders being most prevalent. Overall transition rates to psychosis were low at 24 month follow-up (2/28; 7.1%) whilst many participants demonstrated a significant reduction in psychotic-like symptoms. The generalisation of these findings may be limited due to the small sample size and require replication in a larger sample.

show abstract

What happens to social relationships in early psychosis? A phenomenological study of young people's experiences

Cited by 84 publications

References 29 publications

What is psychosis? A meta-synthesis of inductive qualitative studies exploring the experience of psychosis

What is psychosis? A meta-synthesis of inductive qualitative studies exploring the experience of psychosis

Improving community health networks for people with severe mental illness: a case study investigation

The ‘At-Risk Mental State’ for Psychosis in Adolescents: Clinical Presentation, Transition and Remission

Contact Info

Product

Resources

About