What I Wish My Doctor Really Knew: The Voices of Patients With Obesity

Johnstone, Janyce; Herredsberg, Cherie; Lacy, Les; Bayles, Peg; Dierking, Lynn D.; Houck, A. D.; Kilpatrick, Margaret; Kramer, Luanne; Mason, Karen; Mendez, Carla; Schrotberger, Frank; Befort, Christie A.

doi:10.1370/afm.2494

Cited by 8 publications

(7 citation statements)

References 1 publication

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“…Studies adopting qualitative approaches deliver a greater depth of understanding of complex and socially mediated diseases such as obesity 14 . In spite of an increasing recognition of the integral role of patient experience in health research, 14,15 the voices of patients remain largely underrepresented in obesity research 16,17 …”

Section: Introductionmentioning

confidence: 99%

The lived experience of patients with obesity: A systematic review and qualitative synthesis

et al. 2021

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Summary Although the deleterious effects of obesity have been well documented in terms of morbidity and mortality, less is known about what it is like to live with this complex and chronic disease. This study systematically reviewed and synthesized peer‐reviewed studies relating to the lived experience of patients with obesity. A total of 12,388 records were screened, resulting in the inclusion of 32 final studies. Meta‐ethnographic synthesis of these 32 studies generated five “third‐order constructs” or themes: the development of obesity; a life limited; stigma, judgment, shame, and blame; treatment and; experiences of specific or minority groups. These constructs describe, from the patient's perspective, the factors associated with the development and maintenance of obesity; the effects of the disease on their day‐to‐day lives; the impact of the stigma and judgment many patients are subjected to; and their experience of accessing, or trying to access, treatment for their healthcare needs. This synthesis reveals the dearth of studies that focus solely on the experience of the patient and highlights the tendency for participant‐informed, rather than participatory, methods in obesity research. It concludes with a call for further participatory research into the experiences of people living with obesity.

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Section: Introductionmentioning

confidence: 99%

The lived experience of patients with obesity: A systematic review and qualitative synthesis

et al. 2021

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“…10,11 Prior research shows a gap between physician and patient perspectives on weight loss counseling, perceived health impact of weight, motivation to lose weight, and perceived barriers to weight loss. [12][13][14] In addition, physicians can feel unenthusiastic about weight management for a variety of reasons, including lack of time to devote to counseling, lack of evidence-based treatment options, and a perception that it is not their responsibility as the physician. [15][16][17] For primary care physicians that practice in rural areas, these frustrations may be particularly acute.…”

Section: Introductionmentioning

confidence: 99%

Rural Family Medicine Clinicians' Motivations to Participate in a Pragmatic Obesity Trial

et al. 2020

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Purpose: To understand the motivations of rural-practicing primary care clinicians who participate in an intensive multiyear pragmatic randomized behavioral obesity intervention trial, Rural Engagement in Primary Care for Optimizing Weight Reduction (RE-POWER). Methods: Structured interviews were conducted with 21 family medicine clinicians who were study leads at participating rural practices. Themes emerged through an analysis of transcripts and interview notes by using the constant comparative method. Results: The analysis revealed 3 main themes. First, primary care clinicians participated in RE-POWER because it provided a concrete plan to address their recurring clinical care need for effective obesity treatment and management. Second, participation offered help to frustrated physicians who felt a deep professional duty to care for all their patients' problems but were dissatisfied with current obesity management. Third, participation was also attractive to rural primary care clinicians because it provided a visible and sustainable way to demonstrate their commitment to improving the health of patients and the broader community. Conclusions: Our findings show that clinicians are motivated to try solutions for a clinical problemin this case obesity-when that clinical problem is also closely connected to a particularly frustrating area of clinical care that challenges their professional identity. Our data suggest that a motivation to close the gap between ideal and real practice can become such a high priority that clinicians are sometimes willing to try potential solutions, such as engagement in research, that they otherwise would not consider.

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“…This, in turn, empowers control over healthcare. Importantly, including lived experiences also allows for recognition of stigma and biases and patient‐directed strategies to mitigate stigma 61 . Representation of lived experiences in newspaper media could support changing the negative narratives and improve healthcare experiences.…”

Section: Discussionmentioning

confidence: 99%

“…Importantly, including lived experiences also allows for recognition of stigma and biases and patient-directed strategies to mitigate stigma. 61…”

Section: Comparison With Wider Literaturementioning

confidence: 99%

Newspaper media framing of obesity during pregnancy in the UK: A review and framework synthesis

et al. 2022

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Two thirds of women report experiencing weight stigma during pregnancy.Newspaper media is powerful in framing health issues. This review synthesized UK newspaper media portrayal of maternal obesity. NexisUni was searched to identify newspaper articles, published January 2010 to May 2021, reporting content on obesity during pregnancy. Framework synthesis integrated quantitative and qualitative analysis of the content of articles. There were 442 articles included (59% tabloids and 41% broadsheets). Three overarching themes with interacting sub-themes were as follows: (1) Women were blamed for their weight, risks, and NHS impact. (2) Women were solely responsible for solving obesity, gendered from school age. (3) Women with obesity were a burden on individuals (e.g., themselves, their children, and health professionals), to society, and the NHS. Catastrophizing language framed the "problem," "scale," and "public health concern" of maternal obesity, emphasizing risk, and danger and was alarmist, aggressive, and violent as to elicit fear or devalue women. Articles platformed 'expert' voices rather than women's lived experiences. This review identified that UK newspaper media negatively frames and oversimplifies the topic of maternal obesity. Exposure to blaming and alarmist messaging could increase women's guilt, stigma, and internalized weight bias. The newspaper media should be harnessed to de-stigmatize maternal obesity and promote maternal well-being.

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What I Wish My Doctor Really Knew: The Voices of Patients With Obesity

Cited by 8 publications

References 1 publication

The lived experience of patients with obesity: A systematic review and qualitative synthesis

The lived experience of patients with obesity: A systematic review and qualitative synthesis

Rural Family Medicine Clinicians' Motivations to Participate in a Pragmatic Obesity Trial

Newspaper media framing of obesity during pregnancy in the UK: A review and framework synthesis

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