“What is early intervention? I had no idea”: Chinese parents’ experiences of early supports for their autistic children in Australia

Smith, Jodie; Aulich, Alex; Bent, Catherine A.; Constantine, Christos; Franks, Kathleen; Goonetilleke, Nilushi; Green, Cherie C.; Lee, Patricia; Ma, Emily; Said, Helen; Wang, Rena; Wood, Sarah; Hudry, Kristelle

doi:10.1016/j.rasd.2023.102227

Research in Autism Spectrum Disorders

2023

DOI: 10.1016/j.rasd.2023.102227

|View full text |Cite

“What is early intervention? I had no idea”: Chinese parents’ experiences of early supports for their autistic children in Australia

Jodie Smith,

Alex Aulich,

Catherine A. Bent

et al.

Help me understand this report

Search citation statements

Order By: Relevance

Paper Sections

Select...

Citation Types

Supporting

Mentioning

Contrasting

Year Published

2024

Publication Types

Select...

Article5

Relationship

Self Cite0

Independent5

Authors

Journals

Cited by 5 publications

References 41 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

An Evaluation of Child and Parent Outcomes Following Community-Based Early Intervention with Randomised Parent-Mediated Intervention for Autistic Pre-Schoolers

Green,

Bent,

Smith

et al. 2024

Child Youth Care Forum

View full text Add to dashboard Cite

Background As autistic children are being diagnosed at a younger age, the need to identify appropriate early supports has increased. Therapist-delivered and parent-mediated autism intervention may benefit children and parents. Objective This pilot study examined developmental outcomes for autistic pre-schoolers and mental health and wellbeing outcomes for their parents (n = 53) following a 10-month intervention period. Methods All families were accessing therapist-delivered interventions—the Early Start Denver Model (ESDM) or usual community services—and some families also received additional parent-coaching ESDM (P-ESDM). Families were assessed at 3 timepoints. Results Overall children made significant gains in cognitive skills and adaptive behaviour, with no differences between groups. Parents overall reported increased parenting stress over time. P-ESDM conferred no added benefit for child outcomes, and similarly, no clear benefit for parent outcomes. Conclusions Our findings suggest that children receiving early intervention make developmental gains, regardless of type of intervention, and challenges assumptions that, as an adjunct to other intervention programs, P-ESDM improves child or parent outcomes. Further research is needed to explore the effects of parent-mediated programs.

show abstract

An Evaluation of Child and Parent Outcomes Following Community-Based Early Intervention with Randomised Parent-Mediated Intervention for Autistic Pre-Schoolers

Green,

Bent,

Smith

et al. 2024

Child Youth Care Forum

View full text Add to dashboard Cite

show abstract

Predictors of Change in Wellbeing and Mental Health of Parents of Autistic Pre-Schoolers

Green,

Smith,

Bent

et al. 2024

J Autism Dev Disord

View full text Add to dashboard Cite

Parenting is a rewarding experience but is not without its challenges. Parents of Autistic children face additional challenges, and as a result can experience lower levels of wellbeing and more mental health problems (i.e., depression, anxiety, stress). Previous studies have identified concurrent correlates of wellbeing and mental health. However, few have investigated predictors of subsequent wellbeing and mental health, or of change over time, among parents of pre-school aged autistic children. We examined child-, parent-, and family/sociodemographic factors associated with change in parents’ mental health and wellbeing across three timepoints (spanning approximately one year) among 53 parents of Autistic pre-schoolers (M = 35.48, SD = 6.36 months. At each timepoint, parents reported lower wellbeing and greater mental health difficulties compared to normative data. There was no significant group-level change over time in parent outcomes. However, individual variability in short-term (~ 5 months) wellbeing and mental health change was predicted by a combination of child- and parent-related factors, while variability in medium-term (~ 10 months) change was predicted by parent factors alone. Parents’ description of their child and their relationship predicted change in both wellbeing and mental health. Furthermore, participating in a parent-mediated intervention (available to a subgroup) was a significant predictor of change in wellbeing. Our findings highlight potentially modifiable factors (e.g., learning healthier coping strategies) that may positively impact both short- and medium-term change in parental outcomes.

show abstract

“We go through trauma”: South Asian parents’ experiences of autism diagnosis and early supports for their autistic children in Australia

Smith,

Aulich,

Bent

et al. 2024

Research in Autism Spectrum Disorders

View full text Add to dashboard Cite

scite is a Brooklyn-based organization that helps researchers better discover and understand research articles through Smart Citations–citations that display the context of the citation and describe whether the article provides supporting or contrasting evidence. scite is used by students and researchers from around the world and is funded in part by the National Science Foundation and the National Institute on Drug Abuse of the National Institutes of Health.

Contact Info

customersupport@researchsolutions.com

10624 S. Eastern Ave., Ste. A-614

Henderson, NV 89052, USA

This site is protected by reCAPTCHA and the Google Privacy Policy and Terms of Service apply.

Blog Terms and Conditions API Terms Privacy Policy Contact Cookie Preferences Do Not Sell or Share My Personal Information

Made with 💙 for researchers

Part of the Research Solutions Family.

“What is early intervention? I had no idea”: Chinese parents’ experiences of early supports for their autistic children in Australia

Cited by 5 publications

References 41 publications

An Evaluation of Child and Parent Outcomes Following Community-Based Early Intervention with Randomised Parent-Mediated Intervention for Autistic Pre-Schoolers

An Evaluation of Child and Parent Outcomes Following Community-Based Early Intervention with Randomised Parent-Mediated Intervention for Autistic Pre-Schoolers

Predictors of Change in Wellbeing and Mental Health of Parents of Autistic Pre-Schoolers

“We go through trauma”: South Asian parents’ experiences of autism diagnosis and early supports for their autistic children in Australia

Contact Info

Product

Resources

About