What is in a cause? Exploring the relationship between genetic cause and felt stigma

Sankar, Pamela; Cho, Mildred K.; Wolpe, Paul Root; Schairer, Cynthia E.

doi:10.1097/01.gim.0000195894.67756.8b

Cited by 62 publications

(54 citation statements)

References 37 publications

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“…Approval for the exempt status of the study was obtained from the Vanderbilt University Institutional Review Board. The NSS-C data provides an opportunity to examine variance in and factors associated with attributions and stigma when the public is confronted with a child's mental illness (depression and attention deficit hyperactivity disorder, ADHD) versus a child's physical illness (asthma) similar to some adult mental health studies (e.g., Sankar et al 2006). In the original NSS-C study, a nationally representative sample of US adults (N = 1,372) were each presented with vignettes that included a hypothetical description of a child with a health condition.…”

Section: Methodsmentioning

confidence: 99%

Factors Associated with Attributions About Child Health Conditions and Social Distance Preference

Mukolo

Heflinger

2010

Community Ment Health J

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In order to better understand factors that account for the emergence and persistence of negative attitudes towards mental health problems, attributions about and stigma towards children's mental and physical illnesses were examined using National Stigma Study-Children data. Parent blame attributions were most strongly associated with attention deficit disorder, environmental causes with depression, and biology with asthma. Parent blame was more frequent for mental than physical health conditions. Child blame was associated with higher preferred social distance from the child, but no clear links were observed between social distance and attributions about genetic/biology, environment, or parent blame. Rurality was not significantly associated with attributions or social distance preference. Higher educational achievement was associated with increased endorsement of environmental stress factors and reduced odds of child blaming. The general public holds complex explanatory models of and nuanced responses to children's mental disorders that need further investigation, including effects on parents' and children's help-seeking.

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Section: Methodsmentioning

confidence: 99%

Factors Associated with Attributions About Child Health Conditions and Social Distance Preference

Mukolo

Heflinger

2010

Community Ment Health J

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“…Ten qualitative studies were identified and explored family discord [13], experience, physical, and psycho-social well being of women with breast cancer under the age of 40 who are BRCA1/2 mutation carriers [14], stigma associated with genetic disease [15], moral and social effects of having genetic testing [16], long term coping strategies and unmet needs of women at increased risk for breast cancer [17], experiences of women having prophylactic mastectomy [18,19], responses to BRCA1/2 testing [20][21][22] and how women live with increased risk [23] (See Table 1). Twenty seven quantitative studies were identified (See Table 2).…”

Section: Designmentioning

confidence: 99%

Survivorship considerations in adults with hereditary breast and ovarian cancer syndrome: state of the science

Crotser¹,

Boehmke

2009

J Cancer Surviv

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Survivorship concerns were multidimensional and included issues related to risk reduction procedures, psychological and emotional impacts, and impact on family and social relationships. Many adults experience temporary distress after receipt of positive BRCA1/2 testing. Usually the distress is not clinically significant, however support is desired from health professionals, others who have a BRCA1/2 mutation, and family as decisions are made regarding screening and risk-reducing options. Social relationships are impacted as information is communicated to family members. Limitations of the current state of the science, opportunities to build evidence for the future and implications for nursing practice and education are identified.

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“…Mastery and self-esteem have not been studied in terms of whether they are related to positive adjustment with genetic test result receipt, nor have feelings of stigmatization (except for qualitative analyses) [19]. Due to inconsistent findings on long-term adjustment of carriers [2][3][4], we wanted to explore whether mood disturbances vary as a function of time following test result receipt in a large cohort of BRCA1/2 carriers with considerable variability in time since carrier notification.…”

Section: Introductionmentioning

confidence: 99%

Can self-esteem, mastery and perceived stigma predict long-term adjustment in women carrying a BRCA1/2-mutation? Evidence from a multi-center study

2010

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Little is known about protective and vulnerability factors of long-term adjustment with BRCA1/2 carrier status. Specifically, the role of personal resources and perceptions of stigmatization have not been studied in the context of adjustment with hereditary breast cancer. The present study, therefore, explored associations of personal resources and stigma with cancer-specific anxiety in female BRCA1/2-carriers within a cross-sectional multi-center study. Participants (n = 237) had received carrier notification between 4 months and 8 years before data collection and experienced a low level of cancer-related anxiety on average. Younger age was associated with both higher perceptions of stigma (P = .002) and cancer-specific anxiety (P = .034). Time since receiving test results, affected status, having undergone prophylactic mastectomy or prophylactic oophorectomy was not associated with demographic or psychological variables. Global self-esteem (P = .002) and mastery (P < .001) were associated with fewer intrusive and avoidant thoughts, whereas stigma was associated with more (P < .001). Time since test result receipt did not moderate relations of self-esteem, mastery or stigma and cancer-specific anxiety. Cancer-specific anxiety did not vary as a function of time since carrier notification. Hence cancer-specific distress may be explained by past and ongoing experiences of cancer in the family rather than by the time point of carrier notification. Psychological interventions may benefit from specifically addressing feelings of stigmatization, and promoting self-worth and personal control in order to affect cancer-specific anxiety.

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What is in a cause? Exploring the relationship between genetic cause and felt stigma

Cited by 62 publications

References 37 publications

Factors Associated with Attributions About Child Health Conditions and Social Distance Preference

Factors Associated with Attributions About Child Health Conditions and Social Distance Preference

Survivorship considerations in adults with hereditary breast and ovarian cancer syndrome: state of the science

Can self-esteem, mastery and perceived stigma predict long-term adjustment in women carrying a BRCA1/2-mutation? Evidence from a multi-center study

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