What is the Realistic Scope of Informed Consent?

Clapp, Justin T.; Fleisher, Lee A.

doi:10.1016/j.jcjq.2018.03.005

Cited by 2 publications

(1 citation statement)

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“…We believe we have identified a streamlined consent process with our outcomes monitoring system that strikes a three-way balance between (1) the rights and dignity of survivors, (2) the autonomy and judgment of clinical professionals, and (3) the added value of outcomes data collection and analysis of CRCI treatment in clinical practice [ 73 ]. Contemporary guidelines for discussing the consenting process for outcomes data collection in a “learning healthcare system” are detailed in comprehensive reviews by Clapp and Fleisher and Kass and Faden [ 74 , 75 ].…”

Section: Methodsmentioning

confidence: 99%

Using Single-Case Experimental Design and Patient-Reported Outcome Measures to Evaluate the Treatment of Cancer-Related Cognitive Impairment in Clinical Practice

Ferguson,

Terhorst,

Gibbons

et al. 2023

Cancers

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Cancer-related cognitive impairment (CRCI) affects a large proportion of cancer survivors and has significant negative effects on survivor function and quality of life (QOL). Treatments for CRCI are being developed and evaluated. Memory and attention adaptation training (MAAT) is a cognitive-behavioral therapy (CBT) demonstrated to improve CRCI symptoms and QOL in previous research. The aim of this article is to describe a single-case experimental design (SCED) approach to evaluate interventions for CRCI in clinical practice with patient-reported outcome measures (PROs). We illustrate the use of contemporary SCED methods as a means of evaluating MAAT, or any CRCI treatment, once clinically deployed. With the anticipated growth of cancer survivorship and concurrent growth in the number of survivors with CRCI, the treatment implementation and evaluation methods described here can be one way to assess and continually improve CRCI rehabilitative services.

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Section: Methodsmentioning

confidence: 99%