What Makes Participation Meaningful? Using Photo-Elicitation to Interview Children with Disabilities

Vänskä, Nea; Sipari, Salla; Haataja, Leena

doi:10.1080/01942638.2020.1736234

Cited by 14 publications

(19 citation statements)

References 37 publications

(44 reference statements)

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“…From the child's perspective, factors such as suitable assistive devices and adaptations to activity demands, have been identified as relevant factors for meaningful participation in a previous study by Vänskä et al, (2020) [10]. Additionally, positive peer-relationships are important for the children [10,12].…”

Section: Discussionmentioning

confidence: 99%

“…Additionally, in a study by Maciver et al, (2019), the importance of the adults' attitudes towards creating opportunities for the child's participation were underlined, as well as the need for an individualized approach and flexibility in the routines and structures within the school environment [13]. From the child's perspective, factors such as suitable assistive devices and adaptations to activity demands, have been identified as relevant factors for meaningful participation in a previous study by Vänskä et al, (2020) [10]. Additionally, positive peer-relationships are important for the children [10,12].…”

Section: Discussionmentioning

confidence: 99%

“…Thus, participation is not only a matter of taking part and being present in activities, but also influencing opportunities and decisions of one's own life course [8]. The child's opportunities in participation are linked to the promoting and restricting factors in the environment and the context within which the participation takes place [9,10]. Consequently, enhancing participation is closely linked to physical, social and attitudinal changes in the child's participation environment such as accessibility of the activity and supportive social relationships [11][12][13].…”

Section: Introductionmentioning

confidence: 99%

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The Importance of Collaboration in Pediatric Rehabilitation for the Construction of Participation: The Views of Parents and Professionals

et al. 2021

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Purpose: Collaboration between parents and professionals is essential to enable participation of children with disabilities. Participation is a widely researched topic in pediatric rehabilitation, and evidence for it providing opportunities for involvement and a sense of belonging in community and in larger society exists. There are, however, less research results on how collaboration builds participation pertaining to involvement in life situations. In collaboration with parents, therapists and teachers, the aim of the study was to describe factors that (a) promote and (b) prevent participation in life situations for school-aged children with disabilities, working towards participation in adulthood. Methods: The study applied a qualitative research design. The data was collected during the 2015–2016 academic year with five focus-group interviews by sampling procedure. The study involved five parents of children with disabilities, three therapists and two teachers. The research data was analyzed by inductive content analysis. Results: The results identified thirteen factors that promote child participation, with an emphasis on taking the child’s individuality into account. There were three barriers, which focused on attitudes or technical issues. Conclusions: The results suggest that collaboration on child-related factors has been well identified and implemented, but collaboration on enabling environmental factors needs to be developed. The results can be utilized to design what adults’ collaboration should focus on in promoting child participation.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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The Importance of Collaboration in Pediatric Rehabilitation for the Construction of Participation: The Views of Parents and Professionals

et al. 2021

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“…Children who attached higher value to their everyday activities and perceived a higher sense of autonomy needed less assistance, enjoyed their everyday activities more, and their parents reported a higher level of satisfaction with their children’s participation. Previous literature revealed that children with NDD attach value to activities that provide them with an experience of success, fun, belonging, and freedom (Vänskä et al, 2020; Willis et al, 2017). Regrettably, they often experience a low level of autonomy (Lamash & Josman, 2020; Wennberg et al, 2019) as their daily life is highly structured by their parents.…”

Section: Discussionmentioning

confidence: 99%

Differences in Meaning of Occupations Between Children With and Without Neurodevelopmental Disorders

Rosenberg

Erez

2022

OTJR: Occupational Therapy Journal of Research

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Engaging children in meaningful occupations is a means of improving their participation. The objective of this study is to assess differences in dimensions of meaning of occupations—challenge, value, felt time, and autonomy—between children with and without neurodevelopmental disorders and their associations with the participation of each group. Thirty children with neurodevelopmental disorders (autism spectrum disorder [ASD]/attention deficit hyperactive disorder [ADHD]) and 30 typically developing children ( M age = 9.37 ± 1.41 years) reported regarding dimensions of meaning of occupations. Their parents reported regarding children’s participation. Children with neurodevelopmental disorders attach different meanings to their everyday activities than their typically developing peers, with a large effect size ([Formula: see text] = .07–.12). For children with neurodevelopmental disorders, the value and autonomy dimensions of meaning were correlated with participation. The findings expand knowledge of occupational meaning and participation among children. To optimize the participation of children, occupational therapists should facilitate autonomy and engage children in activities that they value.

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“…The use of CMAP Book support family and professionals to create a joint understanding in multidisciplinary rehabilitation planning and goal setting resulting in a coherent and common rehabilitation plan with meaningful goals. Use of the photos [33], videos, writing and recordings helps the child's own expression and concretises their views enabling her/his participation in rehabilitation planning, identification of goals and discussion with adults.…”

Section: Discussionmentioning

confidence: 99%

Co-development of the CMAP Book: a tool to enhance children’s participation in pediatric rehabilitation

Vänskä

Sipari

Jeglinsky

et al. 2021

Disability and Rehabilitation

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Purpose:The purpose of the co-development project was to create a tool that enhances children's active participation and agency in rehabilitation and in everyday life. Materials and methods: Action research was the methodological approach. Participants in the different phases of the process (2015-2017) were children with disabilities, parents and rehabilitation professionals. The co-development process included: 1) designing the tool's first version, 2) piloting the tool, 3) evaluating the tool by collecting feedback and reflection, 4) generating the tool's final version. Results: Through the co-development process, an accommodating and digital tool called the CMAP Book -a description of the child's meaningful activities and participation -was developed. The CMAP Book is used with an electronic app enabling the identification and description of what is meaningful in daily life from the child's perspective with videos, photos, pictures, recording and writing. The tool enables the child, family and professionals to prepare and build collaboration in rehabilitation with flexibility according to child and family needs. Conclusions: Use of the CMAP Book promotes the active involvement of the child and parents in designing the rehabilitation process in daily life in partnership with professionals. The stakeholder involvement in the codevelopment facilitated meaningful results and a concrete tool for rehabilitation.

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What Makes Participation Meaningful? Using Photo-Elicitation to Interview Children with Disabilities

Cited by 14 publications

References 37 publications

The Importance of Collaboration in Pediatric Rehabilitation for the Construction of Participation: The Views of Parents and Professionals

The Importance of Collaboration in Pediatric Rehabilitation for the Construction of Participation: The Views of Parents and Professionals

Differences in Meaning of Occupations Between Children With and Without Neurodevelopmental Disorders

Co-development of the CMAP Book: a tool to enhance children’s participation in pediatric rehabilitation

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