What matters to families about the healthcare of preterm or low birth weight infants: A qualitative evidence synthesis

Hurt, Lisa; Odd, David; Mann, Mala; Beetham, Hannah; Dorgeat, Emma; Isaac, Thomas CW; Ashman, Annie; Wood, Fiona

doi:10.1016/j.pec.2023.107893

Cited by 4 publications

(4 citation statements)

References 75 publications

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“…Intervention strategies are needed that focus on increasing knowledge, social support, and effective communication to increase mothers' confidence in planning for low-birth-weight babies to be discharged from the hospital. Infant care skills training and group support may also be part of this strategy (Hurt et al, 2023).…”

Section: Discussionmentioning

confidence: 99%

Overview of mom's confidence when planning to return low birth weight baby from the hospital

Setyawati,

Wijayanti,

Ratnasari

et al. 2024

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Introduction: Babies with low birth weight are one of the health problems often faced by mothers and families in various countries, including Indonesia. The return of babies with low birth weights from the hospital became a critical stage in their care after a period of intensive hospitalization. Objective: Describe the mother's confidence level when planning to return a baby with a low birth weight to the hospital. Method: quantitative research with a descriptive design involving 29 respondents. This study used non-probability and consecutive sampling techniques to determine subjects who met the inclusion criteria. The measuring instrument uses the Maternal Confidence Questionnaire Instrument, and the analysis results are descriptive data equipped with tables. Results: Most of the self-confidence of mothers planning to return home with high-birth-weight babies from the hospital was high among 16 respondents (55.2%). Factors that influence a mother's confidence include previous experience caring for a child, social support from family and friends, information and education provided by medical personnel, and an adequate financial condition and environment for the care of the baby. Conclusion: The mother's self-confidence plays a crucial role in planning the return of a low-birthweight baby from the hospital. Social support, knowledge of baby care, interaction with health workers, and understanding of the baby's health condition contribute to the mother's confidence. A holistic approach involving adequate social support, information and education, and financial and environmental readiness to increase maternal confidence in caring for a low-birth-weight baby after discharge from the hospital

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Section: Discussionmentioning

confidence: 99%

Overview of mom's confidence when planning to return low birth weight baby from the hospital

Setyawati,

Wijayanti,

Ratnasari

et al. 2024

fulltext PDF

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“…Seventeen new systematic reviews were commissioned to assess topics not addressed in existing reviews and 21 additional existing systematic reviews and meta analyses were assessed by the GDG ( Supplementary Table S2 ). 7 , 14 , 15 , 16 , 17 , 18 , 19 , 20 , 21 , 22 , 23 , 24 , 25 , 26 , 27 , 28 , 29 , 30 , 31 , 32 , 33 , 34 , 35 , 36 , 37 , 38 , 39 The quality of the scientific evidence for each intervention was graded using the Grading of Recommendations Assessment, Development and Evaluation (GRADE), 40 and evidence was categorised as high, moderate, low and very low certainty. The Confidence in the Evidence from Reviews of Qualitative research (CERQual) 41 approach was used for qualitative evidence.…”

Section: Methodsmentioning

confidence: 99%

“…A review was also conducted of the values of families in low-, middle- and high-income country studies in caring for their preterm infants—“what matters” to them. 38 Families indicated that they want a positive outcome for their baby, to be involved in delivering care, and to take an active role in deciding what interventions are given to their baby ( Table 1 ). Consideration of these values was integrated when applying the DECIDE framework.…”

Section: Methodsmentioning

confidence: 99%

New World Health Organization recommendations for care of preterm or low birth weight infants: health policy

Darmstadt,

Al Jaifi,

Arif

et al. 2023

eClinicalMedicine

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“…In addition to survival, neurodevelopmental impairment (NDI) is often used as an outcome parameter in studies presenting the long-term outcomes of EPIs. This composite outcome measure includes cognitive scores, neurological functioning, vision, and hearing, but these specific outcome measures in themselves may hold little significance for parents; what matters to them is the translation of these measures into practical implications for their children and families [49,50].…”

Section: Individualizing Prenatal Counselling and Decision Makingmentioning

confidence: 99%

Opportunities and Challenges of Prognostic Models for Extremely Preterm Infants

de Boer,

van Beek,

Andriessen

et al. 2023

Children

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Predicting the short- and long-term outcomes of extremely preterm infants remains a challenge. Multivariable prognostic models might be valuable tools for clinicians, parents, and policymakers for providing accurate outcome estimates. In this perspective, we discuss the opportunities and challenges of using prognostic models in extremely preterm infants at population and individual levels. At a population level, these models could support the development of guidelines for decisions about treatment limits and may support policy processes such as benchmarking and resource allocation. At an individual level, these models may enhance prenatal counselling conversations by considering multiple variables and improving transparency about expected outcomes. Furthermore, they may improve consistency in projections shared with parents. For the development of prognostic models, we discuss important considerations such as predictor and outcome measure selection, clinical impact assessment, and generalizability. Lastly, future recommendations for developing and using prognostic models are suggested. Importantly, the purpose of a prognostic model should be clearly defined, and integrating these models into prenatal counselling requires thoughtful consideration.

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What matters to families about the healthcare of preterm or low birth weight infants: A qualitative evidence synthesis

Cited by 4 publications

References 75 publications

Overview of mom's confidence when planning to return low birth weight baby from the hospital

Overview of mom's confidence when planning to return low birth weight baby from the hospital

New World Health Organization recommendations for care of preterm or low birth weight infants: health policy

Opportunities and Challenges of Prognostic Models for Extremely Preterm Infants

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