What parents want: A qualitative analysis of a parent-implemented intervention for autistic children

Im‐Bolter, Nancie; Roche, Laura

doi:10.1177/23969415231189606

Cited by 3 publications

(1 citation statement)

References 52 publications

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“…The presence of difficulties regarding social communication is not surprising for most children diagnosed with ASD. Even though parents are the first and main source of communication, mothers, and fathers still report communication with their children as a considerable stressor for them (Im-Bolter & de la, 2023). Notwithstanding the experienced struggles, caregivers with children on the spectrum still disclose favorable parenting gains such as enhancement, positive transformation, and great pleasure (Marriott et al, 2022).…”

Section: Mental Healthmentioning

confidence: 99%

Exploration of Experiences of Parents Raising Children on The Autism Spectrum

White,

Talpade

2024

IJAHSS

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The purpose of this qualitative study was to explore the experiences of parents raising children on the autism spectrum. Past researh on the experiences of parents raising a child diagnosed with ASD indicate that the welfare of caregivers is adversely affected by the problems that they may experience daily (Brien-Bérard & des Rivières-Pigeon, 2023). This study is unique because it doesnt only focus on the mental health conditions but explores the lived experiences in all aspects completely. The research question of the present study is “What is the lived experience of a parent raising an autistic child?” The total number of participants used in the study were 2 key informants. The data collection method included semi-structured interviews over the phone. The open-coding displayed 3 themes: 1) Knowledge of autism, 2) Associated Emotions, and 3) Resources. Results indicated that parents raising autistic children do not experience any noticeable differences with their children in public or at home. It also indicates that parents raising autistic children need and desire an increase of sufficient resources to assist in their child's needs. This study can be improved by expanding the participant population and including the experienced thoughts and emotions of fathers raising children with autism spectrum disorder in comparison to mothers' experienced thoughts and emotions.

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Section: Mental Healthmentioning

confidence: 99%

Exploration of Experiences of Parents Raising Children on The Autism Spectrum

White,

Talpade

2024

IJAHSS

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Identifying Active Ingredients that Cause Change in Digital Parent Training Programs for Child Behavior Problems: A Qualitative Exploration

Saar,

Brandes,

Baumel

2024

Child Psychiatry Hum Dev

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Digital parent training programs (DPTs) aimed at treating child behavior problems have shown efficacy in a number of trials, but less is known about the active ingredients parents find helpful while using DPTs. We analyzed data from users of self-guided DPTs within a randomized controlled trial setting: a standard program (DPT-STD) and an enhanced program (DPT-TP). Thematic analysis of interviews (n = 16) reveals that users of both programs endorsed the “content”, “content presentation”, “accessibility”, and “therapeutic context” as beneficial. However, only DPT-TP users identified the “therapeutic persuasiveness” as helpful, attributing this to features embedded exclusively in the enhanced program, including call-to-action reminders and assessment-based feedback. Findings were reinforced by the analysis of responses to open-ended questions from a larger sample of users (n = 31 DPT-STD users and n = 34 DPT-TP users). These findings underscore the importance of utilizing features that help parents make positive changes in their home.

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A qualitative analysis of parent’s perceptions of available social support systems

de la Roche,

Im-Bolter

2024

Discov Psychol

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Difficulties in social communication and interaction skills characteristic of autism are reported to play a critical role in high parenting stress. A widely acknowledged lack of effective supports make it more likely that parents of autistic children continue to experience increasingly greater levels of parenting stress over time. The current study aimed to further understand parent perceptions of social supports following their completion of a parent-implemented social skills intervention for their autistic child. Specifically, we explored additional supports beyond those targeting their child that parents of autistic children may perceive as necessary. We interviewed seven parents with autistic children to better understand their perception of the support systems available to, and utilized by, them. Inductive thematic analysis generated two primary themes: (1) parent's emotions as leading of support needs and (2) support networks utilized or sought after by parents of autistic children. Our findings highlight the experiences and feelings of parents of autistic children regarding the support systems they perceive to be available and those they use and/or need. An understanding of parent experiences and perceived needs can be used to promote change, in particular, specific parent support following diagnosis and throughout the intervention process to encourage parent psychological well-being may be beneficial.

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What parents want: A qualitative analysis of a parent-implemented intervention for autistic children

Cited by 3 publications

References 52 publications

Exploration of Experiences of Parents Raising Children on The Autism Spectrum

Exploration of Experiences of Parents Raising Children on The Autism Spectrum

Identifying Active Ingredients that Cause Change in Digital Parent Training Programs for Child Behavior Problems: A Qualitative Exploration

A qualitative analysis of parent’s perceptions of available social support systems

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