What support is beneficial for caregivers of individuals with vision impairment?

Enoch, Jamie; Dickinson, Christine; Subramanian, Ahalya

doi:10.1080/08164622.2021.1878814

Cited by 3 publications

(6 citation statements)

References 52 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…14,15 The majority of interventions involving caregivers of PVI, such as through structured support groups or psychoeducational programmes, can help to improve knowledge and awareness of VI. 6 Furthermore, structured support, education or training interventions for parents of children with VI demonstrate long-term benefits in reducing parental stress. [7][8][9] To some extent, interventions to support caregivers have been informed by the scientific literature documenting concerns and difficulties experienced by caregivers of PVI.…”

Section: Introductionmentioning

confidence: 99%

“…A broader issue identified across these studies is that caregivers often express a need for better information about the condition of the PVI, even when information is apparently available. 6 Therefore, there are already a small number of studies considering how relatives or caregivers of PVI are currently receiving support. However, they largely tend to evaluate satisfaction with support, and unmet needs, quantitatively.…”

Section: Introductionmentioning

confidence: 99%

“…These caregivers may require support themselves, to cope with some of the more negative impacts of caregiving 2‐5 . While the scientific literature documents the challenges experienced by caregivers of people with visual impairment (PVI), much less is known about what works to support these caregivers 6 . A small number of studies have formally evaluated different kinds of interventions or strategies that may be most useful for caregivers of PVI.…”

Section: Introductionmentioning

confidence: 99%

“…Eighty‐two percent reported being ‘not at all’ satisfied with both the caregiver support and practical advice given. A broader issue identified across these studies is that caregivers often express a need for better information about the condition of the PVI, even when information is apparently available 6 …”

Section: Introductionmentioning

confidence: 99%

“…[2][3][4][5] While the scientific literature documents the challenges experienced by caregivers of people with visual impairment (PVI), much less is known about what works to support these caregivers. 6 A small number of studies have formally evaluated different kinds of interventions or strategies that may be most useful for caregivers of PVI. Some of these are tailored to specific groups of family members of people with sight loss, for example parents, [7][8][9][10] spouses or partners, 11 or with a broader focus on caregivers more generically.…”

Section: Introductionmentioning

confidence: 99%

See 4 more Smart Citations

An exploratory study on support for caregivers of people with vision impairment in the UK

Enoch

Dickinson

Potts³

et al. 2022

Ophthalmic Physiologic Optic

Self Cite

View full text Add to dashboard Cite

Purpose Many of the UK's 2.5 million individuals living with vision loss receive support from relatives or friends (so‐called ‘informal caregivers’). However, there is limited understanding of how caregivers of people with visual impairment (PVI) are, or feel, supported by UK healthcare/statutory services and charities. This exploratory study was conducted to explore caregivers' experiences and their suggestions for enhancing support. Methods Participants self‐identifying as UK‐based caregivers of PVI (N = 100) volunteered to undertake an online survey, distributed through charity partners. The survey was comprised of the Client Satisfaction Questionnaire‐8 (CSQ‐8, a validated, self‐report measure of satisfaction with support services), Likert‐type questions and two open‐ended, free‐text questions. Interview participants (N = 22) were then selected from survey respondents, and semi‐structured interviews were conducted to focus on caregivers' ideas for improving support. The Framework Method was used for inductive analysis of the free‐text question responses and interview data. Results The mean (SD) CSQ‐8 score was 21.60 (7.2), with no significant differences by demographic, relationship or vision‐related factors, likely limited by the small subgroup sizes. Qualitative data demonstrated the heterogeneity of participating caregivers' experiences, highlighting the importance of personalised support for caregivers. Many participants advocated enhancing informational, practical, emotional and social support for caregivers, and stressed the importance of accessible services and consistent points of contact to turn to for support and advice. Conclusions Although our sample was arguably better connected to support services than the general caregiver population, this study identified concrete suggestions to improve practical, emotional and peer support for caregivers of PVI.

show abstract

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 3 more Smart Citations

An exploratory study on support for caregivers of people with vision impairment in the UK

Enoch

Dickinson

Potts³

et al. 2022

Ophthalmic Physiologic Optic

Self Cite

View full text Add to dashboard Cite

show abstract

Quality of life of caregivers of children with visual impairment: A qualitative approach

Lupón

Armayones

Cardona

2023

Research in Developmental Disabilities

View full text Add to dashboard Cite

Experiences of burden and needs in caregivers with pediatric noninfectious uveitis: a qualitative study

Huang,

Liu

et al. 2024

BMC Nurs

View full text Add to dashboard Cite

Background Long-term, potentially lifelong therapy is needed to treat noninfectious uveitis (NIU) in children. Previous research has focused primarily on treatment approaches, but few studies have investigated the effect of children’s chronic illness on other family members. The aim of this study is to explore the experiences of burden and needs in caregivers of children with NIU, and to provide a reference for formulating targeted intervention strategies. Methods A total of 11 caregivers of children with NIU were recruited from a tertiary-level eye hospital in Wenzhou Province, China. For data collection, semi-structured interviews were conducted. Data analysis was conducted using Colaizzi’s seven-step analysis method. Themes were encoded and created with NVivo 14.0 for Mac software. Results Based on the Social Ecosystem Theory, three major themes and ten subthemes emerged from the analysis: (1) Micro system — Caregiver distress and growth coexist (subthemes: Affected physical health, difficulties in the child’s health management, emotional well-being, psychological Adjustment and Growth); (2) Mezzo system — Changes in family lifestyle (subthemes: Family financial challenges, family management dilemmas, weakened family socialization); (3) Macro system — Weak support system (subthemes: Insufficient information support, limited medical support conditions, lack of social understanding and support). Conclusions The social-ecological systems of caregivers for children with NIU present numerous difficulties impacting their caregiving experiences. It is imperative for healthcare providers to address the psychosocial issues faced by caregivers and to develop family-centered intervention strategies and support systems, enabling them to cope effectively and overcome challenges. Supplementary Information The online version contains supplementary material available at 10.1186/s12912-024-02602-8.

show abstract

What support is beneficial for caregivers of individuals with vision impairment?

Cited by 3 publications

References 52 publications

An exploratory study on support for caregivers of people with vision impairment in the UK

An exploratory study on support for caregivers of people with vision impairment in the UK

Quality of life of caregivers of children with visual impairment: A qualitative approach

Experiences of burden and needs in caregivers with pediatric noninfectious uveitis: a qualitative study

Contact Info

Product

Resources

About