What we do and do not know about women and kidney diseases; questions unanswered and answers unquestioned: Reflection on World Kidney Day and International Woman’s Day

Piccoli, Giorgina Barbara; Alrukhaimi, Mona; Liu, Zh.-H.; Zakharova, Elena; Levin, Adeera

doi:10.18786/2072-0505-2018-46-1-2-15

Cited by 2 publications

(3 citation statements)

References 103 publications

(144 reference statements)

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“…Few cases of pregnancy in AS patients have been described in literature so far, making difficult to manage AS pregnant women, which, in the majority of cases, show renal disease at different stages of kidney failure 15 . However, the severity of the renal impairment in AS pregnant patients seems to result from a wide complex interaction of genetic, hormonal and environmental factors 16 . In this scenario, the pregnancy impact on AS patients’ renal outcomes needs to be further investigated.…”

Section: Discussionmentioning

confidence: 99%

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Renal impairment in Alport syndrome pregnant woman: Case report and review of the literature

Pepe¹,

Guardo

Zambrotta

et al. 2020

Clinical Case Reports

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Section: Discussionmentioning

confidence: 99%

“…The management of AS during pregnancy may be challenging, and gynecologist may support AS women during their entire life 7,8,16 . However, gynecologist‐obstetricians should encourage AS patients to get pregnant only after an accurate counseling about their risks.…”

Section: Discussionmentioning

confidence: 99%

Renal impairment in Alport syndrome pregnant woman: Case report and review of the literature

Pepe¹,

Guardo

Zambrotta

et al. 2020

Clinical Case Reports

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“…An estimated 195 million women are affected by kidney disease worldwide. (‘2018 WKD Theme ‐ World Kidney Day’, n.d.) Recent research increasingly highlights that many aspects of kidney disease have specific gender disparities (Bikbov et al, 2018; Goldberg & IIan, n.d.; Iseki, 2008; Nature Publishing Group, 2018; Piccoli et al, 2018). Differences in global healthcare systems, culture, socio economics, attitudes and values have led to a global call to action for new research which puts these contradictions into their respective contexts (Bikbov et al, 2018).…”

Section: Introductionmentioning

confidence: 99%

Engaging and supporting women with chronic kidney disease with pre‐conception decision‐making (including their experiences during COVID 19): A mixed‐methods study protocol

Phillips

McLaughlin

Williams

et al. 2021

Journal of Advanced Nursing

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Aim To report a protocol for a qualitative study to better understand the key factors that influence decision making about pregnancy from women's perspectives and to use these data to develop a theoretical model for shared decision‐making tools for the multiple stakeholders. Design Mixed‐method design using online surveys (with validated components) and purposively sampled follow‐up semi structured interviews. Methods Funded from September 2020 for 12 months. Online surveys of adult women (aged 18–50) identified via all Wales kidney database (n ≥ 500), additional recruitment through multidisciplinary healthcare professionals, relevant third sector organizations and social media. Follow‐up in‐depth qualitative interviews with n = 30 women. Linear regression models to identify associations between shared decision‐making preferences and clinical and psychosocial variables. Qualitative interviews will use a visual timeline task to empower women in taking control over their narratives. Qualitative data will be fully transcribed and analysed thematically, based around a chronological and theoretical (theoretical domains framework) structure that maps out key challenges and opportunities for improved decision support in the care pathway. Visual timelines will be used during stakeholder consultation activities, to enable us to co‐create a map of current support, gaps in provision, and opportunities for interventions. Quantitative data will be analysed descriptively to characterize our cohort. We will assemble a multidisciplinary shared decision‐making intervention development group and provide ongoing stakeholder consultation activities with patient and public representatives. Discussion Outcomes will support new learning into; the ways women's knowledge of kidney disease may affect family planning and pregnancy, their needs in terms of psychological and social support, and how they weigh up the pros and cons of starting a family. Impact Evidence will inform the design of new shared decision‐making tools to better support women with the complex and often emotional decisions about having children while living with kidney disease.

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What we do and do not know about women and kidney diseases; questions unanswered and answers unquestioned: Reflection on World Kidney Day and International Woman’s Day

Cited by 2 publications

References 103 publications

Renal impairment in Alport syndrome pregnant woman: Case report and review of the literature

Renal impairment in Alport syndrome pregnant woman: Case report and review of the literature

Engaging and supporting women with chronic kidney disease with pre‐conception decision‐making (including their experiences during COVID 19): A mixed‐methods study protocol

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