When a Family Member Has a Malignant Brain Tumor

Schmer, Carol; Ward-Smith, Peggy; Latham, Susan; Salacz, Michael

doi:10.1097/01376517-200804000-00006

Cited by 64 publications

(83 citation statements)

References 9 publications

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“…An important negative finding is that other factors such as duration of caregiving, symptom burden and disease-or demographic-related factors were not predictive of caregiver psychological distress. Caregivers of patients with newly diagnosed HGG have previously reported that they did not perceive helping with activities of daily living to be a burden [34]; however, it is surprising that performance status and dependency (as measured by the RUG-ADL) were not predictors of caregiver psychological distress in the long term. It may be that more subtle cognitive impairment and personality change such as loss of humour or initiative have a greater impact on caregiver mental health, but these aspects were not captured by the instruments used.…”

Section: Predictors Of Caregiver Psychological Distressmentioning

confidence: 86%

Predicting distress among people who care for patients living longer with high-grade malignant glioma

Russell

Collins

Dowling

et al. 2015

Support Care Cancer

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Section: Predictors Of Caregiver Psychological Distressmentioning

confidence: 86%

Predicting distress among people who care for patients living longer with high-grade malignant glioma

Russell

Collins

Dowling

et al. 2015

Support Care Cancer

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“…The announcement of such a diagnosis and poor prognosis, the effects of the tumor on cognition and functionality, and the toxicity of treatments have rapid and important consequences on the everyday life of patients and their relatives [2,3]. These social, emotional, psychological and physical consequences have already been described [4][5][6], indicating an important quality of life (QoL) alteration at a level that is not normally observed in other cancers [7][8][9][10][11][12][13].…”

Section: Introductionmentioning

confidence: 94%

Coping with a newly diagnosed high-grade glioma: patient-caregiver dyad effects on quality of life

et al. 2016

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Patients with high-grade gliomas (HGG) and their caregivers have to confront a very aggressive disease that produces major lifestyle disruptions. There is an interest in studying the ability of patients and their caregivers to cope with the difficulties that affect quality of life (QoL). We examine, in a sample of patient-caregiver dyads in the specific context of newly diagnosed cases of HGG, whether the QoL of patients and caregivers is influenced by the coping processes they and their relatives use from a specific actor-partner interdependence model (APIM). This cross-sectional study involved 42 dyads with patients having recent diagnoses of HGG and assessed in the time-frame between diagnosis and treatment initiation. The self-reported data included QoL (Patient-Generated Index, EORTC QLQ-C30, and CareGiver Oncology QoL), emotional status, and coping strategies (BriefCope). The APIM was used to test the dyadic effects of coping strategies on QoL. Coping strategies, such as social support, avoidance, and problem solving, exhibited evidence of either an actor effect (degree to which the individual's coping strategies are associated with their own QoL) or partner effect (degree to which the individual's coping strategies are associated with the QoL of the other member of the dyad) for patients or caregivers. For positive-thinking coping strategies, actor and partner effect were not observed. This study emphasizes that the QoL for patients and their caregivers was directly related to the coping strategies they used. This finding suggests that targeted interventions should be offered to help patients and their relatives to implement more effective coping strategies.

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“…Previous studies have noted similar reactions (Schmer et al, 2008;Schubart et al, 2008). These reactions are expected during the denial and isolation stages of the loss, death, and mourning periods (Kubler-Ross, 1992;Oz, 2004).…”

Section: Discussionmentioning

confidence: 69%

“…The high morbidity and mortality in brain tumors and the need for physical and psychological support lead to negative emotional states (depression, anxiety, and fatigue) and stress for the patients' relatives. This makes it difficult for the patient and the family to accept the treatment (Janda et al, 2008;Schmer et al, 2008;Sherwood et al, 2006).…”

Section: Discussionmentioning

confidence: 98%

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Experiences of the Relatives of Patients Undergoing Cranial Surgery for a Brain Tumor

Taştan

Köse

İyigün

et al. 2011

Journal of Neuroscience Nursing

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The functional changes that develop because of neurological sequelae in patients with a brain tumor have a negative effect on daily activities and self-care. This situation in turn has a negative effect on the lives of the patients' relatives and increases their work load. We interviewed 10 relatives of patients who had undergone cranial surgery for a brain tumor as part of a descriptive qualitative study and asked them to describe their experiences during the perioperative period and home care. The data obtained from the patients' relatives were evaluated using Colaizzi's analysis method and divided into three categories and eight themes: (a) personal feelings (first reactions, decision for surgery, first meeting with the patient after surgery, ambiguity), (b) management of the changes (management of the side effects of the tumor, management of role and behavioral changes, management of care at home, social support), and (c) need for knowledge about managing the disease process. We found that brain tumor surgery can be more frightening for patients and their relatives than other surgical interventions. Also, because the patient requires prolonged postoperative care, the patient's family plays an important role at every stage of the patient's treatment and care.

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When a Family Member Has a Malignant Brain Tumor

Cited by 64 publications

References 9 publications

Predicting distress among people who care for patients living longer with high-grade malignant glioma

Predicting distress among people who care for patients living longer with high-grade malignant glioma

Coping with a newly diagnosed high-grade glioma: patient-caregiver dyad effects on quality of life

Experiences of the Relatives of Patients Undergoing Cranial Surgery for a Brain Tumor

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