When caregivers are in need of care: African-American caregivers' preferences for their own later life care

Anderson, Jared R.; Turner, William L.

doi:10.1016/j.jaging.2008.06.002

Cited by 16 publications

(13 citation statements)

References 32 publications

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“…The patients were not older than those in other groups, but their cognitive status was lower on average. This may reflect a greater tolerance of dementia and disruptive behaviors within the Black Caribbean population similar to other African American caregivers (Anderson and Turner 2010; Cooper et al 2010). In summary, in this study, demographic, family, and health differences seemed related mainly to immigration history and socio-economic differences apparent in the population at large.…”

Section: Discussionmentioning

confidence: 93%

Patterns of Caregiving of Cuban, Other Hispanic, Caribbean Black, and White Elders in South Florida

Friedemann

Buckwalter

Newman

et al. 2013

J Cross Cult Gerontol

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Caregivers in Miami, Florida (185 Cubans, 108 other Hispanics, 229 non-Hispanic Whites, and 73 Caribbean Blacks) were described and compared along demographic and health variables, cultural attitudes, and caregiving behaviors. Participants were recruited at random through Home Health Services (61 %) and convenience sampling in the community (39 %), and interviewed at their home. Standardized instruments and measures constructed for this study were pretested. Multivariate analyses showed that the ethnic groups differed in age, education, income, and number of persons giving care, while caregiver health and patient functioning were similar. Controlling for demographics, differences in cultural variables were small. The sense of obligation, emotional attachment, openness about who should give care, spirituality, use of family help or community services were comparable in all groups. Commitment to caregiving was high, driven mainly by patient needs. Cubans had the greatest family stability, and worked the hardest, with the lowest sense of burden. Caribbean Black caregivers lived in bigger families, were youngest, and their patients had the lowest cognitive status. Burden was felt most by White caregivers who were older than the others. Professionals need to understand complex belief systems and behavior patterns to assist caregivers in mobilizing appropriate resources.

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Section: Discussionmentioning

confidence: 93%

Patterns of Caregiving of Cuban, Other Hispanic, Caribbean Black, and White Elders in South Florida

Friedemann

Buckwalter

Newman

et al. 2013

J Cross Cult Gerontol

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“…[19][20][21][22][23] Barriers to hospice care for this population that hospice care provided in institutions may overcome include limited or no access to an informal caregiver, desire to avoid burdening a likely caregiver, lack of knowledge about hospice, discomfort with hospice caregivers, and preference for aggressive care. [24][25][26][27] For example, an individual desiring curative care who is admitted to the hospital may be informed of hospice when death appears imminent and allowed to remain in the hospital while receiving hospice care.…”

Section: Discussionmentioning

confidence: 99%

Place of Death of Individuals with Terminal Cancer: New Insights from Medicare Hospice Place‐of‐Service Codes

Jarosek

Shippee

Virnig

2016

J American Geriatrics Society

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“…Most AA care recipients do not attend adult day care centers and are cared for in home settings by relatives. 30 Differences in these samples may exist. However, small sample size and homogenous sites were needed because the pilot study was constructed to test the feasibility of implementing the ACT-Plan project.…”

Section: Discussionmentioning

confidence: 99%

Advance care treatment plan (ACT-Plan) for African American family caregivers: A pilot study

et al. 2012

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Research is limited on end-of-life (EOL) treatment decisions made by African American (AA) family caregivers. In a pilot study we examined feasibility of implementing an advance care treatment plan (ACT-Plan), a group-based education intervention, with AA dementia caregivers. Cardiopulmonary resuscitation (CPR), mechanical ventilation (MV) and tube feeding (TF) were EOL treatments discussed in the ACT-Plan. In a 4-week pre/posttest two-group design at urban adult daycare centers, 68 caregivers were assigned to the ACT-Plan or attention-control health promotion conditions. Theoretically based, the ACT-Plan included strategies to enhance knowledge, self-efficacy, and behavioral skills to make EOL treatment plans in advance. Findings strongly suggest that the ACT-Plan intervention is feasible and appropriate for AA caregivers. Self-efficacy and knowledge about dementia, CPR, MV and TF increased with ACT-Plan but not attention control condition. More ACT-Plan participants than control participants developed an advance care plan for relatives with dementia. Findings warrant a randomized efficacy trial.

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When caregivers are in need of care: African-American caregivers' preferences for their own later life care

Cited by 16 publications

References 32 publications

Patterns of Caregiving of Cuban, Other Hispanic, Caribbean Black, and White Elders in South Florida

Patterns of Caregiving of Cuban, Other Hispanic, Caribbean Black, and White Elders in South Florida

Place of Death of Individuals with Terminal Cancer: New Insights from Medicare Hospice Place‐of‐Service Codes

Advance care treatment plan (ACT-Plan) for African American family caregivers: A pilot study

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