When mental health care is stigmatizing: experience of users and families and associated factors

Abstract

Introduction Mental health care is considered to be one of the main sources of mental illness stigmatization. Detailed information about these stigmatization experiences is needed to reduce stigma in mental health practices. Objectives The study aimed i) to identify the most relevant stigmatizing situations in mental health care encountered by users and families, ii) to characterize the relative importance of these situations in terms of frequency, experienced stigmatization and suffering, and iii) to identify individual and contextual factors associated with these experiences. Methods In a focus group, users were asked to select the 15 most relevant stigmatization situations among those they elicited and those that were taken from the literature. An online survey was then conducted among users and family members to characterize these situations and identify predictors. Results A total of 235 participants were included: 59 participants with schizophrenia diagnosis, 96 with other psychiatric diagnoses and 80 family members. The results revealed 15 situations with different levels of frequency, stigmatization and suffering. Participants with a diagnosis of schizophrenia experienced more situations of stigmatization and with a higher frequency. Moreover, factors such as recovery-oriented practices and measures without consent were the best predictors of experienced stigmatization. Conclusions These original stigmatization situations could be targeted to reduce stigmatization and associated suffering in mental health practices. Results strongly suggest that recovery-oriented practice should be fostered to fight stigma in mental health care. Disclosure No significant relationships.

Development and validation of a new standardized measure for assessing experiences of discrimination within mental health services. A participatory research project

“…These studies have provided valuable insights into the impact of provider-based stigma on the quality of care and outcomes for individuals with mental illness (Valery et al. , 2022 ). There is, however, less quantitative research on stigma experienced by people receiving care within mental health services.…”