When There is more than a Cleft: Psychological Adjustment When a Cleft is Associated with an Additional Condition

Feragen, Kristin Billaud; Stock, Nicola Marie

doi:10.1597/12-328

Cited by 66 publications

(100 citation statements)

References 36 publications

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“…Our results confirmed findings in earlier studies that children with CL/P have as good and similar HRQoL as children without a cleft (Sagheri, Ravens-Sieberer et al 2009, Tannure, Soares et al 2013, Feragen and Stock 2014. Individuals with CL/P are well adjusted and able to cope with the special challenges they encounter living with a cleft (Marcusson, Paulin et al 2002, Locker, Jokovic et al 2005.…”

Section: Health-related Quality Of Lifesupporting

confidence: 90%

Children with orofacial clefts : dental caries and health-related quality of life

Sundell¹

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Section: Health-related Quality Of Lifesupporting

confidence: 90%

Children with orofacial clefts : dental caries and health-related quality of life

Sundell¹

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“…The patient population for 18 studies consisted of cleft lip, cleft palate, and cleft lip and cleft palate patients. [24][25][26][27][28][29][30][31][32][33][34][35][36][37][38][39][40][41] Cleft palate and cleft lip and cleft palate patients only were grouped together in three studies. [42][43][44] Cleft lip and cleft palate patients were included in seven studies.…”

Section: Summary Of Literature Reviewmentioning

confidence: 99%

“…[26][27][28][29][30][31]37,40,46,[48][49][50][51][52][53] A total of seven studies compared various subgroups within the sample population. 32,34,35,[41][42][43][44] (Tables 3 and 4) (see Appendix, Supplemental Digital Content 1, for content analysis, http://links.lww.com/PRS/ B188).…”

Section: Summary Of Literature Reviewmentioning

confidence: 99%

“…25,33,50,51 Some studies have demonstrated that female sex, adolescence, and visibility of the cleft lead to lower social perceptions, self-esteem, and satisfaction with appearance. 32,35,41 Others, however, have found that patients with a cleft lip and/or palate report significantly greater satisfaction with various aspects of their facial appearance compared with adolescents with no facial disfigurement. 25,30,33,45,50 variability has been demonstrated using various questionnaires, including the Strengths and Difficulties Questionnaire, KIDCOPE, Childhood Experience Questionnaire, 36-Item Short Form Health Survey ("SF-36"), and Satisfaction With Appearance assessments.…”

Section: Aesthetic Outcomesmentioning

confidence: 99%

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Comparative Effectiveness Studies Examining Patient-Reported Outcomes among Children with Cleft Lip and/or Palate

Ranganathan

Vercler

Warschausky

et al. 2015

Plastic and Reconstructive Surgery

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“…A relevância da atratividade facial e sua forte influência no estado psicossocial do paciente é referido em diversos estudos (Feragen et al, 2009;Papamanou et al, 2012;Eichenberger et al, 2013;Feragen et al, 2013). A localização proeminente da fissura resulta invariavelmente em consequências psicossociais negativas, variando de uma baixa autoestima ao elevado risco de isolamento social (Tobiasen et al, 1987;Tobiasen, et al, 1991;Rankin;Borah, 2003).…”

Section: Associação Com Hospital Lado Da Fissura E Gênerounclassified

Avaliação estética da região nasolabial em crianças com fissura labiopalatina unilateral por meio de fotografias padronizadas

Paiva¹

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AGRADECIMENTOSÀ minha orientadora Prof. Dra. Beatriz Silva Câmara Mattos, pela confiança, pelas valiosas orientações e por me permitir ingressar nesta pós-graduação.À minha mentora e grande entusiasta deste trabalho Prof. Dra. Marcia André, por todo apoio, incentivo e confiança que depositou em mim desde quando ingressei nesta Universidade. Obrigada pelas orientações, pela paciência e sobretudo por sua amizade verdadeira.Ao Prof. Dr. Reinaldo Brito e Dias e demais professores da Disciplina de Prótese Bucomaxilofacial pela enriquecedora convivência.Ao Cirurgião Plástico Dr. Diógenes Laércio Rocha por sua valiosa contribuição na elaboração deste estudo.Ao amigo, Dr. Jairo Lessa Crepaldi pelo apoio e colaboração direta na elaboração deste trabalho.Às amigas, Dra. Margareth T. Lopez e a Dra. Agda M. Moura pelo carinho e pela ajuda desde quando ingressei nesta Universidade.Aos Drs. Paulo E. Damiani, Denise Nakamura, Marcus Kobein, Simone Kawabata, Luciane Amorim, Ivan Gialain, Vera Pozzani pela disponibilidade em participar na avaliação do grupo amostral desta pesquisa.Ao Prof. Dr. Antônio Carlos L. Saboya pelas orientações no uso do Software aplicado neste estudo.Aos funcionários do Departamento de CPTMF, particularmente à Belira de Carvalho e Silva, pelo valioso apoio ao longo de todo o curso de pós-graduação.Aos pacientes e seus familiares, sem os quais esse estudo não seria possível."Conheça todas as teorias, domine todas as técnicas, mas ao tocar uma alma humana seja apenas outra alma humana". Cronbach's alpha was applied. By using the Wilcoxon Signed Rank Test, both the experienced professionals and without experience did not observe any statistically significant difference in the aesthetic attractiveness of the lip and nose; however a statistically significant difference was observed in the nasolabial region (p = 0.002) when the professional group revealed a higher degree of satisfaction as compared to the group of professionals without experience. The Mann-Whitney's Test revealed a statistically significant association between the aesthetics of the lip, nose, and nasolabial region only with regard to one variable i.e., the source hospital (p = 0.002, 0.034, and 0.026, respectively). The results of this study suggest that there was no difference in evaluation of the aesthetic results when full-face photographs or cropped images of the nasolabial region were used. Compared to the professionals without experience assessors, the experienced professionals evaluators showed higher satisfaction with the aesthetic appearance of the nasolabial region; however, no difference in results was observed in the analysis of the lip or nose alone. No correlation was observed between the aesthetic outcomes and the laterality of the cleft and sex of the patient. However, the source hospital was associated with the aesthetic outcome, thereby producing lower levels of outcome satisfaction. Carl Gustav Jung RESUMO

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When There is more than a Cleft: Psychological Adjustment When a Cleft is Associated with an Additional Condition

Abstract: The present study highlights the need for research to be conducted in children with CL/P who have additional conditions to provide better knowledge and clinical care for a potentially vulnerable subgroup of children and their parents.

Cited by 66 publications

References 36 publications

Children with orofacial clefts : dental caries and health-related quality of life

Children with orofacial clefts : dental caries and health-related quality of life

Comparative Effectiveness Studies Examining Patient-Reported Outcomes among Children with Cleft Lip and/or Palate

Avaliação estética da região nasolabial em crianças com fissura labiopalatina unilateral por meio de fotografias padronizadas

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