Where Adults with Congenital Heart Disease Die: Insights from the CDC-WONDER Database

Talha, Khawaja M.; Kumar, Pankaj; Ejaz, Arooba; Shah, Sharaf Ali; Fatima, Kaneez; Pinsker, Bret L.; Serfas, John D.; Baqal, Omar J.; Krasuski, Matthew R.; Khan, Muhammad Shahzeb; Krasuski, Richard A.

doi:10.1016/j.cpcardiol.2022.101344

Cited by 6 publications

(5 citation statements)

References 16 publications

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“…In contrast, males (87%) had the highest number of deaths in each category when it came to deaths due to head and neck cancers between 1999 and 2015. This was also similarly seen in the study of mortality trends for adult congenital heart diseases between 2005 and 2018, where a slight majority of deaths (54%) comprised males [10].…”

Section: Discussionsupporting

confidence: 69%

“…Similarly, Caucasians (92.7%) had the highest number of deaths of the races in the study of mortality trends for head and neck cancers [ 4 ]. Caucasians (84%) also made up the highest number of deaths in the mortality trend of adult congenital heart diseases compared to African American and Hispanic populations [ 10 ]. According to a retrospective study conducted by Moreno et al, it is also interesting to note that patients with public insurance were half as likely to seek treatment for eating disorders if they were Latin or Asian compared to white patients [ 15 ].…”

Section: Discussionmentioning

confidence: 99%

“…However, Talha et al in their study on American mortality trends using CDC WONDER on adult congenital heart diseases reported that 64% of patients were more likely to die at the hospital in the intensive care unit [10]. Younger patients in the age group of 20-34 were more likely to die in hospitals, whereas older patients in the age group of greater than 65 were more likely to die in hospice care [10]. A study on testicular cancer incidence by Gold et al found that younger (<45), Hispanic, or black men were more likely to die in medical facilities [11].…”

Section: Discussionmentioning

confidence: 99%

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Anorexia Nervosa: Evaluating Disparities in Places of Death in the United States Over 22 Years Using the CDC WONDER Database

Patel,

Tyagi,

Biswas

et al. 2023

Cureus

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Introduction: Anorexia nervosa is a severe and occasionally fatal eating disorder characterized by extreme weight loss and a distorted body image in which the affected individuals typically exhibit a strong fear of gaining weight, leading to rigid dietary restrictions and excessive activity. This condition can cause severe health problems, such as hunger, cardiovascular issues, and organ destruction. Anorexia nervosa is a key subject for research in the context of end-of-life care disparities due to its psychological and physical challenges. Aims: This study examines differences in the places of death for people with anorexia nervosa during a 22-year period in the USA, taking into account four important factors: age group, gender, race, and U.S. census region. Methodology: Data were collected from the CDC WONDER website on August 31, 2023, and spans years 1999 to 2020, using the particular ICD-11 code F50.0 for anorexia nervosa. The study aims to uncover the important determinants impacting the location of death within this specific population using sophisticated statistical methods, including univariate logistic regression. Results: The analysis of aggregate data yielded notable findings. The patient's principal site of death was at home or in hospice care. Other sites were less prevalent, with medical facilities or nursing homes ranking second. The place of death was highly influenced by age groups with diverse patterns. Gender had no significant impact; however, geographical inequalities were noticeable. Individuals in the Northeast, Midwest, and South were less likely than those in the West to die at home or in hospice care. The location of death was unaffected by race. Conclusions: In conclusion, this study found that death in home and hospice was more common than in medical or hospital nursing facilities in all four analyzed groups. These findings highlight the critical need for significant advancements in end-of-life care, particularly in home and hospice settings.

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Section: Discussionsupporting

confidence: 69%

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

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Anorexia Nervosa: Evaluating Disparities in Places of Death in the United States Over 22 Years Using the CDC WONDER Database

Patel,

Tyagi,

Biswas

et al. 2023

Cureus

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“…dementia, heart failure) being significant contributors. 7 , 14 , 16 – 25 , 26 , 27 These conditions can lead to suffering and pose challenges for informal caregivers who may lack training in managing these complex problems. Despite these challenges, some patients and caregivers still prefer home death and seek external support for care at home to align with the patient’s preferences.…”

Section: Discussionmentioning

confidence: 99%

The determinants of actual place of death among noncancer patients with end-stage chronic health conditions: a scoping review

Ginggeaw,

LeBlanc

2024

Palliat�Care

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A home is a preferred place of death by most people. Nurses play a key role in supporting end-of-life home care, yet less is known about the factors that determine home as a place of death. This scoping review describes the percentage of actual places of death and determines social factors related to home as the place of death among noncancer patients with end-stage chronic health conditions. Inclusion criteria included (1) noncancer chronic illness conditions, (2) outcomes of place of death, and (3) factors that determine home as a place of death. Sources of evidence included PubMed, CINAHL, and Web of Science databases, which were searched in May 2022, and additional searches from May 2022 to November 2023.The JBI scoping review guide (2020) and the Preferred Reporting Items for Systematic Reviews and Meta-Analyses Scoping Review extension were used. Twenty-eight studies were included in this analysis. The range of percentages is varied within the same place of death among the sample. Two major constructs that determine a home as a place of death were identified: preceding factors and social capital. The results suggest that the place of death among noncancer patients with end-stage chronic health conditions should be continued to be understood. Two constructs determined home as a place of death and are considered as a fundamental to increasing equal accessibility in the initiation of palliative care services to promote home death and meet end-of-life care goals.

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“…As a result, ACHD patients may be exposed to futile medical trauma with profound implications on quality of life. Recent data indicate that ACHD patients succumb at unacceptably high rates in an acute care setting, 15 which for a chronic disease process suggests that palliative care may not be a part of care paradigms, that quality of life-driven care is being withheld or offered too late for any number of reasons. While not the focus of the analysis, the data presented in the article from Egbe et al 3 suggest that at the Mayo Clinic, palliative care has been integrated into the care paradigm for AHF, for which the authors and the institution should be applauded.…”

Section: See Article By Egbe Et Almentioning

confidence: 99%

Calling for Cooperation and Collaboration in Adult Congenital Heart Disease–Related Heart Failure

Cedars

Menachem

2022

Circ: Heart Failure

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Where Adults with Congenital Heart Disease Die: Insights from the CDC-WONDER Database

Cited by 6 publications

References 16 publications

Anorexia Nervosa: Evaluating Disparities in Places of Death in the United States Over 22 Years Using the CDC WONDER Database

Anorexia Nervosa: Evaluating Disparities in Places of Death in the United States Over 22 Years Using the CDC WONDER Database

The determinants of actual place of death among noncancer patients with end-stage chronic health conditions: a scoping review

Calling for Cooperation and Collaboration in Adult Congenital Heart Disease–Related Heart Failure

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