“Where are <i>our</i> costumes?”: the All Ireland Traveller Health Study – our Geels 2007–2011

Kelleher, Cecily; Quirke, B

doi:10.1017/cbo9781139381635.013

Cited by 4 publications

(4 citation statements)

References 15 publications

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“…Enabling participation of the groups under study in the research process ultimately gives a better understanding of the groups’ needs and will not only result in higher response rates but also in a process of mutual learning. This implies for researchers a more comprehensive understanding of the living situation and conditions of the group under study, as well as a better understanding for research and its benefits for the population under study [ 17 , 18 , 72 , 89 ]. Participatory health research is especially valuable to initiate research in groups that are considered hard-to-survey or in marginalized populations and includes the participation of groups under study in all steps of the research process [ 72 , 79 , 80 , 90 , 91 , 92 , 93 ] with the goal to depict and eventually reduce health inequalities together [ 94 ].…”

Section: Discussion and Recommendationsmentioning

confidence: 99%

“…As other countries [ 10 , 11 , 12 , 13 , 14 ], Germany faces difficulties in adequately including hard-to-survey populations, amongst others people with migration history, people with lower educational levels, and people living in deprived areas, into nationwide public health monitoring. Several studies identifying ways on how to reach hard-to-survey populations either focus on specific sub-populations [ 15 , 16 , 17 , 18 ] and areas [ 16 , 19 , 20 ] or on inclusion into specific study types, for example, clinical trials [ 21 ] or intervention studies [ 15 , 22 ]. Recommendations on how to include hard-to-survey populations into a comprehensive public health monitoring are scarce [ 23 , 24 , 25 ].…”

Section: Introductionmentioning

confidence: 99%

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Results and Strategies for a Diversity-Oriented Public Health Monitoring in Germany

Koschollek

Kajikhina

Bartig

et al. 2022

IJERPH

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Germany is a country of immigration; 27% of the population are people with a migration background (PMB). As other countries, Germany faces difficulties in adequately including hard-to-survey populations like PMB into national public health monitoring. The IMIRA project was initiated to develop strategies to adequately include PMB into public health monitoring and to represent diversity in public health reporting. Here, we aim to synthesize the lessons learned for diversity-oriented public health monitoring and reporting in Germany. We also aim to derive recommendations for further research on migration and health. We conducted two feasibility studies (interview and examination surveys) to improve the inclusion of PMB. Study materials were developed in focus groups with PMB. A systematic review investigated the usability of the concept of acculturation. A scoping review was conducted on discrimination as a health determinant. Furthermore, core indicators were defined for public health reporting on PMB. The translated questionnaires were well accepted among the different migrant groups. Home visits increased the participation of hard-to-survey populations. In examination surveys, multilingual explanation videos and video-interpretation services were effective. Instead of using the concept of acculturation, we derived several dimensions to capture the effects of migration status on health, which were more differentiated. We also developed an instrument to measure subjectively perceived discrimination. For future public health reporting, a set of 25 core indicators was defined to report on the health of PMB. A diversity-oriented public health monitoring should include the following: (1) multilingual, diversity-sensitive materials, and tools; (2) different modes of administration; (3) diversity-sensitive concepts; (4) increase the participation of PMB; and (5) continuous public health reporting, including constant reflection and development of concepts and methods.

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Section: Discussion and Recommendationsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Results and Strategies for a Diversity-Oriented Public Health Monitoring in Germany

Koschollek

Kajikhina

Bartig

et al. 2022

IJERPH

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“…Travellers also, in social capital terms, have strong bonds of kinship and family ties, religiosity and community mutual support but have difficulty in gaining employment, completing second and higher level education and experience friction with the majority population at many levels of engagement, including access to health and social services (Kelleher & Quirke 2014).…”

Section: Introductionmentioning

confidence: 99%

Experience of discrimination and engagement with mental health and other services by Travellers in Ireland: findings from the All Ireland Traveller Health Study (AITHS)

Quirke

Heinen

Fitzpatrick

et al. 2020

Ir. j. psychol. Med.

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Objectives: Irish Travellers are an indigenous ethnic minority population in Ireland, with poor life expectancy. This study aims to identify factors associated with reported discrimination and how this affects their experiences of accessing and quality of health services, including mental health. Methods: The All Ireland Traveller Health Study was a cross-sectional census study in 2010. All Traveller families completed a survey questionnaire (n = 6540), and at random an adult selected from the family completed either a health status (health status study = 1547) or health services utilisation survey (HSU = 1576). Experience of discrimination (EOD) from the census was analysed in relation to HSU data on services used in the previous 12 months and reported experiences of access and quality of that health service. Census variables were analysed in relation to EOD and perceived discrimination (PD). Results: In the final models, EOD and PD were significantly associated with socio-demographic, socio-cultural and living conditions. The multivariate odds of reporting EOD ranged from OR 1.84 to 2.13 and were significant for those reporting worse opportunities in accessing health services, mental health (p = 0.001), hospitals (p < 0.001) and public health nurses (p < 0.001). The multivariate odds of reporting EOD ranged from OR 1.95 to 2.71 and remained significant for those who reported they had poorer experiences than others when using health services, quality of experience (OR 2.18, p =< 0.001), trust in providers (OR 1.95, p =< 0.001) and appropriate information (OR 2.71, p =< 0.001). Conclusions: Travellers experience high levels of discrimination which negatively affects their engagement with health services. Culturally competent services need to be developed.

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“…Traditionally, their nomadic lifestyle and limited education and literacy made them "hard-to-reach". Nowadays they are frequently under-served and excluded from health research, confounding intervention 22 .…”

Section: Introductionmentioning

confidence: 99%

Lived Lives: A Pavee Perspective. An arts-science community intervention around suicide in an indigenous ethnic minority

et al. 2017

Self Cite

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Background: Suicide is a significant public health concern, which impacts on health outcomes. Few suicide research studies have been interdisciplinary. We combined a psychobiographical autopsy with a visual arts autopsy, in which families donated stories, images and objects associated with the lived life of a loved one lost to suicide. From this interdisciplinary research platform, a mediated exhibition was created (Lived Lives) with artist, scientist and families, co-curated by communities, facilitating dialogue, response and public action around suicide prevention. Indigenous ethnic minorities (IEMs) bear a significant increased risk for suicide. Irish Travellers are an IEM with social and cultural parallels with IEMs internationally, experiencing racism, discrimination, and poor health outcomes including elevated suicide rates (SMR 6.6). Methods: An adjusted Lived Lives exhibition, Lived Lives: A Pavee Perspective manifested in Pavee Point, the national Traveller and Roma Centre. The project was evaluated by the Travelling Community as to how it related to suicide in their community, how it has shaped their understanding of suicide and its impacts, and its relevance to other socio-cultural contexts, nationally and internationally. The project also obtained feedback from all relevant stakeholders. Evaluation was carried out by an international visual arts research advisor and an independent observer from the field of suicide research. Results: Outputs included an arts-science mediated exhibition with reference to elevated Irish Traveller suicide rates. Digital online learning materials about suicide and its aftermath among Irish Travellers were also produced. The project reached its target audience, with a high level of engagement from members of the Travelling Community. Discussion: The Lived Lives methodology navigated the societal barriers of stigma and silence to foster communication and engagement, working with cultural values, consistent with an adapted intervention. Feedback from this project can inform awareness, health promotion, education and interventions around suicide and its aftermath in IEMs.

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“Where are our costumes?”: the All Ireland Traveller Health Study – our Geels 2007–2011

Cited by 4 publications

References 15 publications

Results and Strategies for a Diversity-Oriented Public Health Monitoring in Germany

Results and Strategies for a Diversity-Oriented Public Health Monitoring in Germany

Experience of discrimination and engagement with mental health and other services by Travellers in Ireland: findings from the All Ireland Traveller Health Study (AITHS)

Lived Lives: A Pavee Perspective. An arts-science community intervention around suicide in an indigenous ethnic minority

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