Which measurement scales should we use to measure breathlessness in                 palliative care? A systematic review

Dorman, Saskie; Byrne, Anthony; Edwards, Adrian

doi:10.1177/0269216307076398

Cited by 135 publications

(103 citation statements)

References 74 publications

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“…There was no agreement among the reviews regarding which property was most important. Some considered content validity as most important [33][34][35], while others considered construct validity [36], responsiveness [29,36] or validity and reliability [37] as the most important measurement properties.…”

Section: Description Of Synthesizing Methodological Quality and Resultsmentioning

confidence: 99%

Evaluation of the methodological quality of systematic reviews of health status measurement instruments

et al. 2009

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A systematic review of measurement properties of health-status instruments is a tool for evaluating the quality of instruments. Our aim was to appraise the quality of the review process, to describe how authors assess the methodological quality of primary studies of measurement properties, and to describe how authors evaluate results of the studies. Literature searches were performed in three databases. One hundred and forty-eight reviews were included. The purpose of included reviews was to identify health status instruments used in an evaluative application and to report on the measurement properties of these instruments. Two independent reviewers selected the articles and extracted the data. Reviews were often of low quality: 22% of the reviews used one database, the search strategy was often poorly described, and in many cases it was not reported whether article selection (75%) and data extraction (71%) was done by two independent reviewers. In 11 reviews the methodological quality of the primary studies was evaluated for all measurement properties, and of these 11 reviews only 7 evaluated the results. Methods to evaluate the quality of the primary studies and the results differed widely. The poor quality of reviews hampers evidence-based selection of instruments. Guidelines for conducting and reporting systematic reviews of measurement properties should be developed.

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Section: Description Of Synthesizing Methodological Quality and Resultsmentioning

confidence: 99%

Evaluation of the methodological quality of systematic reviews of health status measurement instruments

et al. 2009

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“…5 Few parameters measured in pulmonary function laboratories heart failure but respond to treatment with signifi cant improvement in symptoms. Conversely, treating a pleural effusion will not benefi t a dying patient.…”

Section: Assessmentmentioning

confidence: 99%

Managing breathlessness in advanced disease

Powell¹

2014

Clinical Medicine

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“…This, coupled with the other concept of a "dyspnoea target", which also recognises fear and anxiety as major drivers of breathlessness in subgroups of people, underlines the importance of designing studies with mixed methods. Recent systematic reviews on outcome measurement of breathlessness and a consensus statement both of which call for unidimensional, multidimensional and qualitative assessment of the symptom reflect this stance (66)(67)(68)(69).…”

Section: Recommendations For Further Research (Questions and Design)mentioning

confidence: 99%

“…An appreciation of the subtleties of measurement of the sensation of breathlessness has also been important; there appears to be a diurnal variation in the perception of intensity, so assessment of "present" breathlessness in daily measurement needs to be measured twice daily (e.g., on awakening and before going to bed)(20). We have also improved our understanding in how best to use unidimensional measures such as the numerical rating scale, the Borg and the visual analogue scale, choosing with much more care which tool to use for which population, and in what situation (66)(67)(68)(69). Measurement of function is still an important but secondary endpoint.…”

Section: Recommendations For Further Research (Questions and Design)mentioning

confidence: 99%

The Evidence Base for Oxygen for Chronic Refractory Breathlessness: Issues, Gaps, and a Future Work Plan

Johnson

Abernethy

Currow

2013

Journal of Pain and Symptom Management

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Please note that any alterations made during the publishing process may not appear in this version."NOTICE: this is the authors' version of a work that was accepted for publication in the Journal of Pain and Symptom Management. Changes resulting from the publishing process, such as peer review, editing, corrections, structural formatting, and other quality control mechanisms may not be reflected in this document. Changes may have been made to this work since it was submitted for publication. A definitive version was subsequently published in Cities. Published Journal Articles (PJAs) Definition: A published journal article (PJA) is the definitive final record of published research that appears or will appear in the journal and embodies all value-adding publisher activities including copy-editing, formatting and (if relevant) pagination. Policy: Elsevier guarantees each PJA's authenticity, we work with others (e.g. national libraries) to preserve them for posterity and in perpetuity, and we invest to drive their usage. We strictly apply an absolute guideline regarding their location: every PJA will reside only on a completely controlled site because this is the only way that we as the publisher can guarantee each PJA's permanence, authenticity and that it is not altered. The continued viability of scholarly journals and their PJAs is also important to the research community. Publishers invest significant time, money and resources to create, maintain and develop both journals' reputations and the publishing process. The distribution of PJAs is therefore also subject to strict guidelines so that journals' ability to recoup the investments required to create them are not compromised. An author may use the PJA for personal use and internal institutional use (see above for definitions of these terms). In the interest of safeguarding the correct scientific record, however, Elsevier does not permit the posting of PJAs (Elsevier-provided PDF or HTML files) on any open websites. This is to ensure that the final published version of an article, which has been edited and peer-reviewed according to the publishing standards of an Elsevier journal, is always recognized as such only via the journal itself, whether in print or electronic format. PJAs may not be used for commercial use or for systematic distribution (see above for definitions of these terms). AbstractBreathlessness or "shortness of breath", medically termed dyspnoea, remains a devastating problem for many people and those who care for them. As a treatment intervention, administration of opioids to relieve breathlessness is an area where progress has been made with the development of an evidence base. As evidence in support of opioids has accumulated, so has our collective understanding about trial methodology, research collaboration and infrastructure that is crucial to generate reliable research results for palliative care clinical settings.Analysis of achievements to date and what it takes to accomplish these studies provides important insights into knowledge g...

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Which measurement scales should we use to measure breathlessness in palliative care? A systematic review

Abstract: The NRS, modified Borg, CRQ-D and CDS appear most suitable for use in palliative care, but further evaluation is required before adopting any scale as standard. This review has been registered with the Cochrane collaboration and will be published and updated as a Cochrane review.

Cited by 135 publications

References 74 publications

Evaluation of the methodological quality of systematic reviews of health status measurement instruments

Evaluation of the methodological quality of systematic reviews of health status measurement instruments

Managing breathlessness in advanced disease

The Evidence Base for Oxygen for Chronic Refractory Breathlessness: Issues, Gaps, and a Future Work Plan

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