Which outcomes are most important to people with aphasia and their families? an international nominal group technique study framed within the ICF

Wallace, Sarah; Worrall, Linda; Rose, Tanya; Dorze, Guylaine Le; Cruice, Madeline; Isaksen, Jytte; Kong, Anthony Pak‐Hin; Simmons‐Mackie, Nina; Scarinci, Nerina; Gauvreau, Christine

doi:10.1080/09638288.2016.1194899

Cited by 193 publications

(119 citation statements)

References 61 publications

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“…Hamilton (2000), on the other hand, argues that people with post-stroke aphasia should be encouraged to maintain their pre-stroke identity. This is confirmed by the findings of Wallace et al (2016) who found recovery to normality, including "to be seen as the same person as I was before" (p. 1371) to be an important therapy outcome for people with aphasia. To maintain the pre-stroke identity, attempting to pass then becomes a desirable strategy.…”

Section: Stigma Symbols As Sign Makingsupporting

confidence: 74%

Signs of aphasia: Online identity and stigma management in post-stroke aphasia

Taubner¹,

Hallén²,

Wengelin³

2017

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Section: Stigma Symbols As Sign Makingsupporting

confidence: 74%

Signs of aphasia: Online identity and stigma management in post-stroke aphasia

Taubner¹,

Hallén²,

Wengelin³

2017

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“…Indeed, the ability to participate in conversation is a treatment outcome prioritised internationally by both people with aphasia and their family members (Wallace et al, 2016a). To achieve this, conversation must be targeted directly (Royal College of Speech and Language Therapists, 2005).…”

Section: Introductionmentioning

confidence: 99%

Professionals’ perspectives on delivering conversation therapy in clinical practice

2017

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Background: Aphasia and other acquired language impairments have the potential to impact greatly on quality of life by disrupting everyday conversation. Different intervention approaches are available to speech and language therapists (SLTs), such as targeting the language impairment itself and/or addressing activity or participation barriers. Conversation therapy is one approach that is gaining in popularity, with a growing evidence base. However, it is not clear how SLTs currently use conversation approaches and what factors may influence delivery. Aims: To investigate how SLTs (i) define conversation therapy, (ii) deliver it in clinical practice, and identify (iii) any challenges faced. Methods & Procedures: An online survey and focus group explored how SLTs working in the south east of England currently deliver conversation therapy to support people with a range of communication disorders, in particular aphasia. Data were analysed using descriptive statistics and thematic content analysis. Outcomes & Results: A total of 50 SLTs completed the survey and 6 participants attended the focus group. Conversation therapy was found to be widely employed by participants, however there was considerable variation in the approaches used, and a number of major challenges were raised. SLTs reported delivering conversation therapy with a range of client groups and preferably working with the client and partner together. Conversation goals predominantly reflected an approach based on: (i) strategy use and/or total communication (TC), and (ii) Conversation Analysis. Three overarching themes around conversation therapy emerged from the focus group: (1) What is conversation therapy? (2) showing it works, and (3) complexities of delivering it. SLTs acknowledged the benefit of conversation therapy but felt they lacked the tools and skills needed to deliver it. Conclusions: SLTs wanted to use conversation therapy and desired clear outcome measures to demonstrate its effectiveness, but were not accessing the available evidence base, highlighting the ongoing difficulty of translating research into clinical practice. Whilst these data are limited by the small number of participants, the study provides a first view of how conversation therapy is articulated in practice. Further investigation of conversation therapy delivery is warranted with a larger sample of SLTs based across the United Kingdom, as is comparison with practice in other countries.

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“…In fact, narrating experiences and events enables PWA to participate in family and social activities, and to (re)develop their identity after the disruptive life event of stroke [18]. Within the World Health Organization’s International Classification of Functioning [19], the ultimate goal of aphasia rehabilitation is to enable PWA to daily participate actively in their natural family environment and community with respect to autonomy, life roles and leisure activities, for example [20]. Activity and participation fosters a healthier quality of life as reflected by research on biographic-narrative intervention [17] and on treatment outcomes important to PWA and their families [20].…”

Section: Introductionmentioning

confidence: 99%

Evaluating Personal Stroke Narratives from Bilingual Greek-English Immigrants with Aphasia

Kambanaros

2019

Folia Phoniatr Logop

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Objective: For people with aphasia (PWA) and their significant others, narratives are intricately intertwined with quality of life, culture, and social participation. This paper reports stories told by bilingual people with aphasia (bPWA), describing the events or consequences of a stroke on their lives. Patients and Methods: Six participants with chronic mild-moderate anomia (mean age 70 years) spontaneously produced a narrative recounting their personal experience of stroke in their native language (Greek) and in their second language (English). All bPWA had learned English in early adulthood upon migration from Greece to Australia, not through formal teaching but on the job (e.g., in the factory). The bPWA had lived in Australia for 46 years (average) and were less than 4 years post-stroke. Results: Narratives in the two languages underwent quantitative (number of propositions, noun/verb tokens) and qualitative analyses (ratings of coherence, ratings of clarity). Most bPWA produced coherent “tellable” stories despite disruptions in language because of aphasia. Overall, stories were better told (length, complexity of content, temporal-causal sequencing, reference) in Greek – their native language. Conclusion: The results have implications for policy-makers providing health and welfare services to ageing immigrant populations. The findings are also relevant to other countries that have large immigrant populations of stroke survivors.

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Which outcomes are most important to people with aphasia and their families? an international nominal group technique study framed within the ICF

Cited by 193 publications

References 61 publications

Signs of aphasia: Online identity and stigma management in post-stroke aphasia

Signs of aphasia: Online identity and stigma management in post-stroke aphasia

Professionals’ perspectives on delivering conversation therapy in clinical practice

Evaluating Personal Stroke Narratives from Bilingual Greek-English Immigrants with Aphasia

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