Who provides care for people dying of cancer? A comparison of a rural and metropolitan cohort in a <scp>S</scp>outh <scp>A</scp>ustralian bereaved population study

Burns, Catherine; Grande, Eleonora Del; Tieman, Jennifer; Abernethy, Amy Pickar; Currow, David C.

doi:10.1111/ajr.12168

Cited by 17 publications

(29 citation statements)

References 21 publications

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“…Being part of a rural community and engaging in community support networks would compensate for the geographical isolation. Friends are more involved as caregivers in rural EOL . The implication is that local community support networks are replacing family in rural areas, particularly with the growing trend for family members to relocate to the city.…”

Section: Discussionmentioning

confidence: 99%

“…On the other side of the equation, the ‘rural virtues’ of resilience and self‐reliance confer on caregivers an advantage in being able to cope, but may be a double‐edged sword. More resilient caregivers may bear a heavier caregiver burden masking underlying caregiver depression and emotional issues which could follow through into bereavement . Different attitudes to death were manifested in rural dwellers being less likely to intervene to delay death and shaped the preferred attitude of primary care professionals, who were friends and neighbours as well.…”

Section: Discussionmentioning

confidence: 99%

“…As rural family structures change, more rural caregivers are younger and friends, rather than family members. Understanding how community networks mobilise and maintain support for patients and caregivers at the end‐of‐life (EOL) is crucial in planning PEOLC in the future . A deeper understanding of the impact of rural/urban differences in community EOL support networks on PEOLC need is also essential.…”

Section: Introductionmentioning

confidence: 99%

“…As the extended family shrinks, rural people turn to friendship/community networks for EOL care and support. Friends are less involved as caregivers in urban EOL . There is evidence that Indigenous and other ethnic groups PEOLC needs are shaped by their specific cultural needs.…”

Section: Introductionmentioning

confidence: 99%

“…Understanding how community networks mobilise and maintain support for patients and caregivers at the end-of-life (EOL) is crucial in planning PEOLC in the future. 4,5,11,12 A deeper understanding of the impact of rural/urban differences in community EOL support networks on PEOLC need is also essential. In contrast to urban caregivers, rural caregivers are more likely to be female, younger, 55-64 years and to provide intermittent care.…”

Section: Introductionmentioning

confidence: 99%

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Are rural and remote patients, families and caregivers needs in life‐limiting illness different from those of urban dwellers? A narrative synthesis of the evidence

Kirby

Barlow

Saurman

et al. 2016

Australian J Rural Health

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This review aimed to assess the evidence to answer the question whether palliative end-of-life care needs of patients and caregivers in rural and remote communities differs from those of urban dwellers. Peer-reviewed studies from 1996 to the present dealing with the experience of rural and remote patients and caregivers at the end-of-life compared with that of urban people were extracted for narrative synthesis. The eight studies included showed that palliative needs of rural and remote residents are related to context. Diagnosis and treatment are less well managed in rural areas. Rural differences include: people are more accepting of death and less likely to intervene to delay death; caregivers tend to be younger and include friends as well as family and local support networks are important. Rural and remote end-of-life needs are shaped by reduced access and availability of services which has a negative influence on outcomes. This is counterbalanced by an acceptance of death and local support networks. Well-designed longitudinal studies with samples comprised of rural and urban residents for comparison are required to monitor how end-of-life need might change with the approach of death. Clinicians, health services and policy makers need a better understanding of rural attitudes and of how rural community networks mobilise to support end-of-life care in their rural and remote communities.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%