Whose health is it? The views of injecting drug users with HIV infection and their professional carers

Carretero, María del Rosario Mendoza; Chiswick, Ann; Catalán, Jesús Castilla

doi:10.1080/713612414

Cited by 4 publications

(1 citation statement)

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“…Following the generic decision-making scale, we used a self-generated case vignette (in the same logic as previous studies using vignettes) 29,33 that described a COVID-19 infection and asked participants to imagine that they presented typical symptoms. This was followed by 7 items on a 5-point Likert-type scale that asked about specific COVID-19 decisions (see the Supplementary Appendix).…”

Section: Data Collection and Measuresmentioning

confidence: 99%

Shared Decision Making during the COVID-19 Pandemic

2021

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Objective The COVID-19 pandemic pushed some of the most well-developed health care systems to their limits. In many cases, this has challenged patient-centered care. We set out to examine individuals’ attitudes toward shared decision making (SDM) and to identify predictors of participation preference during the pandemic. Methods We conducted an online survey with a large convenience sample ( N = 1061). Our main measures of interest were participants’ generic and COVID-19–related participation preference as well as their acceptance and distress regarding a triage vignette. We also assessed anxiety, e-health literacy, and aspects of participants’ health. We conducted group comparisons and multiple linear regression analyses on participation preference as well as triage acceptance. Results In generic decision making, most participants expressed a strong need for information and a moderate participation preference. In the hypothetical case of COVID-19 infection, most preferred physician-led decisions. Generic participation preference was the strongest predictor of COVID-19–related participation preference, followed by age, education, and anxiety. Furthermore, both higher generic and COVID-19–related participation preferences predicted lower triage acceptance. Conclusion Our findings demonstrate potential health care recipients’ attitudes toward SDM during a severe health care crisis and emphasize that participation preference varies according to the context.

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Section: Data Collection and Measuresmentioning

confidence: 99%

Shared Decision Making during the COVID-19 Pandemic

2021

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Patient preferences for shared decisions: A systematic review

Chewning

Bylund

Shah³

et al. 2012

Patient Education and Counseling

683

518

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Objectives Empirical literature on patient decision role preferences regarding treatment and screening was reviewed to summarize patients’ role preferences across measures, time and patient population. Methods Five databases were searched from January 1980-December 2007 (1980- 2007 Ovid MEDLINE, Cochrane Database of Systematic Reviews, PsychInfo, Web of Science and PubMed (2005-2007). Eligible studies measured patient decision role preferences, described measures, presented findings as percentages or mean scores and were published in English from any country. Studies were compared by patient population, time of publication, and measure. Results 115 studies were eligible. The majority of patients preferred sharing decisions with physicians in 63% of the studies. A time trend appeared. The majority of respondents preferred sharing decision roles in 71% of the studies from 2000 and later, compared to 50% of studies before 2000. Measures themselves, in addition to patient population influenced the preferred decision roles reported. Conclusion Findings appear to vary with the measure of preferred decision making used, time of the publication and characteristics of the population. Practice implications The role preference measure itself must be considered when interpreting patient responses to a measure or question about a patient's preference for decision roles.

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Measuring the Involvement of People with HIV in Treatment Decision Making Using the Control Preferences Scale

Kremer

Ironson

2008

Med Decis Making

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In this study, HIV-positive people perceived a high level of involvement in decision making. Reliability and convergent validity of the CPS was high. Charles's classification was problematic because decisional roles and information exchange are distinct dimensions. Some people make risky treatment decisions on their own without being adequately informed. The CPS is a useful instrument to measure decisional role perceptions of HIV-positive people but needs to be complemented by an instrument measuring treatment knowledge.

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Whose health is it? The views of injecting drug users with HIV infection and their professional carers

Cited by 4 publications

References 0 publications

Shared Decision Making during the COVID-19 Pandemic

Shared Decision Making during the COVID-19 Pandemic

Patient preferences for shared decisions: A systematic review

Measuring the Involvement of People with HIV in Treatment Decision Making Using the Control Preferences Scale

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