Whose Voices Matter? Use, Misuse and Non-Use of Augmentative and Alternative Communication (AAC) Among Severely Disabled Children in Small Group Homes

Fylkesnes, Ingunn; Ytterhus, Borgunn

doi:10.16993/sjdr.748

Cited by 4 publications

(3 citation statements)

References 18 publications

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“…The process of supporting sick children can generally act as a source of motivation and satisfaction for teachers ( Lopez & Corcoran, 2014 ; Małkowska-Szkutnik et al , 2021 ), but our results suggest that interactions with children with CCC often lead to difficulties, especially in cases involving severe or complex conditions. To ensure that communication is reciprocal, teacher must focus on careful communicative approaches and responses when working with children with severe disabilities ( Fylkesnes & Ytterhus, 2021 ). However, this process can be extremely difficult when children have severe limitations, as suggested in this study.…”

Section: Discussionmentioning

confidence: 99%

Interactions between special education teachers and children with chronic complex conditions: A qualitative study

Fujino,

Matsumoto,

Mieno

2024

F1000Res

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Background The number of children with complex medical conditions has increased in recent decades. In this context, a complex chronic condition is characterized by multiple morbidities that require intensive or continuous health care according to the level of severity. Given their various health conditions, it is challenging to provide special education to these children, but there is still insufficient evidence regarding the practical experiences of educators. The aim of this study was to investigate special education teacher’s perceptions, experiences, and challenges while developing interpersonal relationships and communicating with children who have complex chronic conditions. Methods We recruited and interviewed 21 special education school teachers in Japan. The transcripts of the interviews were analyzed using thematic analysis. Results Our analysis revealed four themes, including “searching for the meaning,” “complex chronic conditions as a difficult reality,” “widening experience for the future,” and “priority for interacting with children.” These themes reflect the perceptions, experiences, and challenges of the special education teachers. Conclusions In cases where children have severe functional limitations, it is more challenging to understand child-teacher interactions. This highlights the importance of searching for meaning in educational practices used among children with complex chronic conditions. Our findings may provide helpful insight into the experiences and challenges faced by special educators who engage with these children.

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Section: Discussionmentioning

confidence: 99%

Interactions between special education teachers and children with chronic complex conditions: A qualitative study

Fujino,

Matsumoto,

Mieno

2024

F1000Res

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“…The process of supporting sick children can generally act as a source of motivation and satisfaction for teachers (Lopez & Corcoran, 2014;Małkowska-Szkutnik et al, 2021), but our results suggest that interactions with children with CCC often lead to difficulties, especially in cases involving severe or complex conditions. To ensure that communication is reciprocal, teacher must focus on careful communicative approaches and responses when working with children with severe disabilities (Fylkesnes & Ytterhus, 2021). However, this process can be extremely difficult when children have severe limitations, as suggested in this study.…”

Section: Meaning Of Interactionsmentioning

confidence: 98%

Interactions between special education teachers and children with chronic complex conditions: A qualitative study

2023

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Background: The number of children with complex medical conditions has increased in recent decades. In this context, a complex chronic condition is characterized by multiple morbidities that require intensive or continuous health care according to the level of severity. Given their various health conditions, it is challenging to provide special education to these children, but there is still insufficient evidence regarding the practical experiences of educators. The aim of this study was to investigate special education teacher’s perceptions, experiences, and challenges while developing interpersonal relationships and communicating with children who have complex chronic conditions. Methods: We recruited and interviewed 21 special education school teachers. The transcripts of the interviews were analyzed using thematic analysis. Results: Our analysis revealed four themes, including “searching for the meaning,” “complex chronic conditions as a difficult reality,” “widening experience for the future,” and “priority for interacting with children.” These themes reflect the perceptions, experiences, and challenges of the special education teachers. Conclusions: In cases where children have severe functional limitations, it is more challenging to understand child-teacher interactions. This highlights the importance of searching for meaning in educational practices used among children with complex chronic conditions. Our findings may provide helpful insight into the experiences and challenges faced by special educators who engage with these children.

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“…I omsorgsinstitusjonar vil naere relasjonar stadig kunne bli brotne, ved at tenesteytarar går i turnus eller sluttar. Slike brot kan bidra til utrygg tilknyting for unge bebuarar i ein barnebustad (Fylkesnes & Ytterhus, 2021). Dobson et al peikte i 2004 på eit behov for personalet som yt omsorgstenester til funksjonshemma menneske, til å auke kunnskapen om berøring og handtering av kroppskontakt i omsorgsarbeidet, deriblant korleis tenestemottakarane kunne erfare det å bli tekne på.…”

Section: Omsorg Som Arbeidunclassified

Berøring og intimitet – kroppen i skjeringspunktet mellom offentleg og privat. Omsorg for utviklingshemma barn og unge i barnebustad

Fylkesnes¹

2023

Barn

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Kropp og berøring i institusjonell omsorg for barn og unge er eit tema med aukande internasjonal forskingsinteresse, etter å ha vore eit tabubelagt emne på bakgrunn av tidlegare overgrepshistorier. Denne artikkelen handlar om utviklingshemma barn og unge i barnebustad, ei gruppe unge som vanlegvis går «under radaren». Dei unge har behov for omfattande hjelp gjennom døgnet og får bistand av kommunalt tilsette omsorgspersonar. Omsorgssamspelet mellom kommunalt tilsette og dei unge som har sin heim i barnebustaden, blir analysert og drøfta med basis i omgrepa body work, intimate labour og emotional labour. Kroppen som offentleg objekt og privat subjekt er i tillegg viktige analytiske element. Innanfor institusjonelle rammer får dei unge sin kropp ulike roller, men kan vere prisgjeven tilsette si forståing av omsorg og institusjonelle oppgåver. English abstract Touch and Intimacy – The Body at the Intersection Between Public and Private. Care in Small Institutions for Intellectually Disabled Children Body and touch in residential care for children shows a growing interest in international research. This subject has been tabooed based in earlier stories of abuse in residential institutions. This paper addresses children with profound intellectual disability living in small institutional residences, children that normally go “under the radar.” The young ones have comprehensive needs for practical support around the hours, provided by public employed care professionals. The interaction in care activities between the employees and the children is analysed and discussed related to the concepts body work, intimate labour, and emotional labour. The dichotomy of the body as a public object and private subject is also important analytical elements. Within institutional frames is the body of the residents given different roles but can make the children dependent on the employees’ understanding of care and their institutional duties.

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Whose Voices Matter? Use, Misuse and Non-Use of Augmentative and Alternative Communication (AAC) Among Severely Disabled Children in Small Group Homes

Cited by 4 publications

References 18 publications

Interactions between special education teachers and children with chronic complex conditions: A qualitative study

Interactions between special education teachers and children with chronic complex conditions: A qualitative study

Interactions between special education teachers and children with chronic complex conditions: A qualitative study

Berøring og intimitet – kroppen i skjeringspunktet mellom offentleg og privat. Omsorg for utviklingshemma barn og unge i barnebustad

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