2005
DOI: 10.1002/gps.1322
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Why caregivers of people with dementia and memory loss don't use services

Abstract: Caregivers of people with dementia incur significant strain and have substantial need for a variety of services. Nevertheless many caregivers were not using support services, mainly because of perceived lack of need or lack of awareness. Better public promotion of services, destigmatising dementia and encouraging referrals from health professionals could help overcome the barriers to service use.

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Cited by 415 publications
(463 citation statements)
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References 40 publications
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“…But by using various recruiting pathways, it was possible to affirm that a substantial fraction of the family caregivers had never used caregiver counselling previously, as would be expected in a representative sample. The fact that over 50% were non-users has also been seen in other studies (Brodaty et al 2005;Lamura et al 2006;Philip and Ghosh 1992;Toseland et al 1999). It is noticeable that only slightly more than half of the respondents (59%) know about caregiver counselling, which is comparable with statements by family caregivers in North America (awareness quotas between 55.6% and 63.2%) (Toseland et al 1999).…”
Section: Structural Quality (S): Non-personal Factors (S I); Person-rsupporting
confidence: 74%
See 1 more Smart Citation
“…But by using various recruiting pathways, it was possible to affirm that a substantial fraction of the family caregivers had never used caregiver counselling previously, as would be expected in a representative sample. The fact that over 50% were non-users has also been seen in other studies (Brodaty et al 2005;Lamura et al 2006;Philip and Ghosh 1992;Toseland et al 1999). It is noticeable that only slightly more than half of the respondents (59%) know about caregiver counselling, which is comparable with statements by family caregivers in North America (awareness quotas between 55.6% and 63.2%) (Toseland et al 1999).…”
Section: Structural Quality (S): Non-personal Factors (S I); Person-rsupporting
confidence: 74%
“…However, Brodaty et al (2005) report that the utilization of support offers by family caregivers is low, even though these are well known and even when the services are free of charge (Kosloski and Montgomery 1993). This means that there must be other more significant variables that determine utilization.…”
Section: Structural Quality (S): Non-personal Factors (S I); Person-rmentioning
confidence: 99%
“…17,18 This resonated with the participants having a huge caregiving burden, which they felt was present for 24 hours in the day.…”
Section: Views and Responsibilities Of The Caregivermentioning
confidence: 98%
“…16 It has emerged that caregivers of people with dementia engage in more caregiving tasks than other long-term illnesses, and, as already been reported, have decreased quality of life, and higher anxiety and depression than caregivers of people with physical illnesses. 17 The amount of time spent in performing caregiving tasks is expected to increase as the dementia progresses. 18 This too is not unexpected, as dementia is a serious neurodegenerative condition, with a progression over approximately 10 years from diagnosis to death.…”
Section: Introductionmentioning
confidence: 99%
“…5 Particularly low service use has been reported among carers of people with neurological impairments [5][6][7] and by carers belonging to minority groups 8 or living in rural areas. 9 Older carers may have particular problems in accessing services.…”
mentioning
confidence: 99%