Why did I get chronic fatigue syndrome?

Söderlund, Atle; Malterud, Kirsti

doi:10.1080/02813430500254034

Cited by 17 publications

(3 citation statements)

References 27 publications

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“…Patients with health complaints attributed to an exposure such as dental amalgam run the risk of being perceived as only accepting and pursuing this one explanation for their health complaints, and patients with subjective health complaints are often described as dismissive of psychological and social explanations for their complaints (Risør, 2009). The findings from our interviews do not support such interpretations for our study group, and other studies have also identified complex illness explanations held by groups of patients with medically unexplained health complaints and contested diagnoses (Risør, 2009;Soderlund & Malterud, 2005) The opening phrase of the interviews went something like: "The focus for this interview is possible changes in health complaints and quality of life after amalgam removal. However, we do know that things in life are connected, so we are interested in the big picture."…”

Section: Life Is Complicated-let's Fix It!contrasting

confidence: 77%

How unexplained health complaints were attributed to dental amalgam

et al. 2014

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Psychol.). Björkman and Bentung Lygre (Dental Biomaterials Adverse Reaction Unit) both have backgrounds in dentistry, whereas Dalen (currently working at the private practice nevropsykolog.no) and Binder (Department of Clinical Psychology, Faculty of Psychology) are both specialists in clinical psychology. My own background is also in psychology (Cand. Psychol./certified psychologist). The Faculty of Medicine and Dentistry granted me a three-year, full-time scholarship and one year of duty work. During these years, I was employed at the Department of Clinical Dentistry. As a Ph.D. candidate, I was enrolled in the doctoral programs at the Department of Clinical Dentistry, and at the Graduate School of Clinical and Developmental Psychology, Faculty of Psychology. The Biomaterials research group, Faculty of Medicine and Dentistry, and the (now dissolved) Group for Qualitative Research on Mental Health, Faculty of Psychology, have also been important for the conceptualization and realization of the present work. The Dental Biomaterials Adverse Reaction Unit covered the costs of the research project, with the exception of the qualitative part of the study that was partly funded by a research grant from the Meltzer Research Fund. The Dental Biomaterials Adverse Reaction Unit also covered the cost of a small part-time position for me in the period 2013 to 2014. The Dental Biomaterials Adverse Reaction Unit is funded by the Norwegian Ministry of Health and Care Services. First and foremost I would like to thank the patients and the dentists who participated in this study. Without you there would not have been a study. We are grateful and amazed that all twenty participants in the treatment group stayed with us through the five years follow-up. Thank you! Without my team of supervisors, I would not have been able to carry out and complete the present work. Even though the road we have travelled together has been bumpy at times, it has included life lessons, wonderful conversations and inspiring conference experiences that I will always treasure. Lars Björkman, thank you for the inspiring conversations we have had where we have tried to connect all the dots and made drafts of models explaining "everything". Gunvor Bentung Lygre, thank you for your patience and support and for always helping me simplify things. Knut Dalen, thank you for always being in a good mood and for your willingness to share your thoughts and expertise regarding ethical considerations in clinic and in research. Per-Einar Binder, thank you for your gentle supervision, mindful presence and wonderful insights. In addition to my supervisors, there have also been a number of other wonderful people in the environments where I have been working on my thesis. Every one of you deserves a personal thank you, and I hope you know who you are. Some people do however warrant a special mention: Vigdis Helland, you are a wonderful person, and I believe that I am a better person for having met you. Nils Roar Gjerdet, also a wonderful person I am happy to have met. Tha...

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Section: Life Is Complicated-let's Fix It!contrasting

confidence: 77%

How unexplained health complaints were attributed to dental amalgam

et al. 2014

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“…Similar experiences of explanations of external factors causing illness being rejected by health care professionals have been described by women with musculoskeletal pain (Johansson, Hamberg, Westman, & Lindgren, 1999), chronic fatigue syndrome (Soderlund & Malterud, 2005), orofacial pain (Wolf, Birgerstam, Nilner, & Petersson, 2008), and fibromyalgia (Gustafsson, Ekholm, & Ohman, 2004). These patients experience themselves as victims of an unknown disease and consider themselves misjudged by doctors and dentists when they are not been given a physical explanation for their symptoms (Johansson et al, 1999; Soderlund & Malterud, 2005; Wolf et al, 2008) (Wolf, Birgerstam, Nilner, & Petersson, 2006).…”

Section: Discussionmentioning

confidence: 64%

“…These patients experience themselves as victims of an unknown disease and consider themselves misjudged by doctors and dentists when they are not been given a physical explanation for their symptoms (Johansson et al, 1999; Soderlund & Malterud, 2005; Wolf et al, 2008) (Wolf, Birgerstam, Nilner, & Petersson, 2006). The same feelings of disgrace encountered by women in this study are summarized in the category “A blot in protocol” or like being a “spot” in the medical record.…”

Section: Discussionmentioning

confidence: 99%

“Struggle to obtain redress”: Women’s experiences of living with symptoms attributed to dental restorative materials and/or electromagnetic fields

Mårell

Lindgren

Nyhlin

et al. 2016

International Journal of Qualitative Studies on Health and Well

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The aim of this study was to explore the experiences of illness and the encounters with health care professionals among women who attributed their symptoms and illness to either dental restorative materials and/or electromagnetic fields, despite the fact that research on health effects from dental fillings or electricity has failed to substantiate the reported symptoms. Thirteen women (aged 37–63 years) were invited to the study and a qualitative approach was chosen as the study design, and data were collected using semi-structured interviews. The analysis was conducted with a constant comparative method, according to Grounded Theory. The analysis of the results can be described with the core category, “Struggle to obtain redress,” the two categories, “Stricken with illness” and “A blot in the protocol,” and five subcategories. The core category represents the women's fight for approval and arose in the conflict between their experience of developing a severe illness and the doctors’ or dentists’ rejection of the symptoms as a disease, which made the women feel like malingerers. The informants experienced better support and confirmation from alternative medicine practitioners. However, sick-leave certificates from alternative medicine practitioners were not approved and this led to a continuous cycle of visits in the health care system. To avoid conflicting encounters, it is important for caregivers to listen to the patient's explanatory models and experience of illness, even if a medical answer cannot be given.

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What is called symptom?

Eriksen

Risør

2013

Med Health Care and Philos

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Why did I get chronic fatigue syndrome?

Cited by 17 publications

References 27 publications

How unexplained health complaints were attributed to dental amalgam

How unexplained health complaints were attributed to dental amalgam

“Struggle to obtain redress”: Women’s experiences of living with symptoms attributed to dental restorative materials and/or electromagnetic fields

What is called symptom?

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