Why Should Medical Care Be Family-Centered?: Understanding Ethical Responsibilities for Patients’ Family Members

Olson, Nate

doi:10.1353/ken.2019.0019

Cited by 5 publications

(3 citation statements)

References 39 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…42 43 However, when the decision to continue futile lifesustaining treatment is made by family members, the decision following the family member's perceptions of cultural and religious context may not accord with the patient's comfortable and dignified dying and death. 44 The continuation of futile life-sustaining treatment not only postpones the patient's death but also extends their suffering. This is linked to the second theme, perceptions of futile treatment by nurses and physicians.…”

Section: Discussionmentioning

confidence: 99%

Futile life-sustaining treatment in the intensive care unit – nurse and physician experiences: meta-synthesis

Choi,

Ho,

Lin

2023

BMJ Support Palliat Care

View full text Add to dashboard Cite

BackgroundContinuing futile life-sustaining treatment prolongs patients’ suffering and family members’ and medical staff’s psychological distress. Additionally, continuing futile treatment is inefficient in healthcare resource distribution. Although the withdrawal of futile life-sustaining treatment is ideal, the prevalence is variable.ObjectiveTo synthesise nurses’ and physicians’ experiences with continuing futile life-sustaining treatment in the intensive care unit.DesignThis meta-synthesis was conducted following the thematic synthesis. The Preferred Reporting Items for Systematic Review and Meta-Analyses and Enhancing transparency in reporting the synthesis of qualitative research statement were used in reporting the synthesis of qualitative research statements.Methods and data sourcesA systematic search was conducted following the inclusion and exclusion criteria in APA PsycINFO, CINAHL Plus, EMBASE, MEDLINE, PubMed and Web of Science in May 2023. Two reviewers independently screened and extracted the data. The extracted data were analysed using thematic analysis of qualitative research.FindingsA total of 16 studies were finally included, and 141 quotes were extracted and analysed. The main findings were categorised into four themes: (1) contextual and cultural diversity, (2) perceptions of futile treatment, (3) professional roles and responsibilities, and (4) emotional distress.ConclusionThe study highlights the influence of culture, religion and family members, as well as perceptions of futile treatment among clinicians, on continuing futile life-sustaining treatment. Also, nurses’ awareness of their roles and responsibilities in ensuring patients’ comfort at end of life was revealed. This study informs future research to explore the experiences of futile life-sustaining treatment across various contexts.

show abstract

Section: Discussionmentioning

confidence: 99%

Futile life-sustaining treatment in the intensive care unit – nurse and physician experiences: meta-synthesis

Choi,

Ho,

Lin

2023

BMJ Support Palliat Care

View full text Add to dashboard Cite

show abstract

“…In some passages, Olson seems pulled toward giving a determinative role, not to what participants find valuable or significant about the research team‐participant relationship, but, more objectively, to what is valuable about it. He writes that “since the obligation is to acknowledge the value of the professional relationship, a researcher could be required to provide help tied to his or her skills and training as a professional but would not be required to provide help that is not so connected.” 22 Yet Olson has not yet given an account of what the value or meaning of this professional relation is—though his subsequent article on family‐centered medicine offers some potential hints 23 …”

Section: Olson's Meaningfulness‐based Relationship Viewmentioning

confidence: 99%

“…22 Yet Olson has not yet given an account of what the value or meaning of this professional relation is-though his subsequent article on family-centered medicine offers some potential hints. 23 Further, the restriction to a professional-client relationship is uneasily superimposed on what individuals find meaningful. Suppose that an impoverished participant learns in a research interaction that a given research-team member is skilled at plumbing repairs (Olson's example) and comes to admire and relate to this person's combination of plumbing and medical skills.…”

Section: E R H E R Hmentioning

confidence: 99%

Can the Research Team‐Participant Relationship Ground Ancillary‐Care Obligations?

Richardson

2023

Ethics & Human Research

View full text Add to dashboard Cite

Discussion of medical researcher teams' ancillary-care obligations has long been dominated by partial-entrustment theory, developed in 2004 by the author of this article, in collaboration with Leah Belsky. Critics of the limited scope of the special ancillary-care obligations defended by that theory, however, argue that a better theory would take fuller account of the relationship that develops between individual research participants and members of the research team. Nate W. Olson and Thaddeus Metz have each put forward well worked-out versions of such a relationship-based account of ancillary-care obligations. This article critically evaluates these accounts, concluding that while each of them is vulnerable to various criticisms, each also crucially facilitates understanding of this relationship: Olson brings out well how research participants can find that role not just beneficial but also deeply meaningful, and Metz, drawing on African ethical traditions, emphasizes that when things go well, participants are involved as partners in the research effort. Yet the article closes by arguing that the partial-entrustment theory, surprisingly, can take on board each of these lessons. As so enhanced, it may actually be the best available relationship-based theory of this subject.

show abstract

Arguments Opposing Continuation of Organ Support When Families Object to Declaration of Death by Neurological Criteria

Omelianchuk

Magnus²

2022

Advances in Neuroethics

View full text Add to dashboard Cite

Why Should Medical Care Be Family-Centered?: Understanding Ethical Responsibilities for Patients’ Family Members

Cited by 5 publications

References 39 publications

Futile life-sustaining treatment in the intensive care unit – nurse and physician experiences: meta-synthesis

Futile life-sustaining treatment in the intensive care unit – nurse and physician experiences: meta-synthesis

Can the Research Team‐Participant Relationship Ground Ancillary‐Care Obligations?

Arguments Opposing Continuation of Organ Support When Families Object to Declaration of Death by Neurological Criteria

Contact Info

Product

Resources

About