Wie belastend erleben Angehörige den Diabetes?

Kulzer, Bernhard; Lüthgens, Birgit; Landgraf, R.; Krichbaum, M.; Hermanns, Norbert

doi:10.1007/s11428-017-0286-7

Cited by 14 publications

(10 citation statements)

References 27 publications

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“…First, diabetes has an enormous impact not only on the daily life of patients, but also on the daily life of their relatives. The DAWN 2 Study, a worldwide study regarding psycho-social aspects in diabetes treatment, revealed that psychological, financial, and emotional strains caused by DM equally affect patients and relatives [8, 9]. Kulzer et al [9] showed, for instance, that relatives are equally affected by diabetes-related stress and strains.…”

Section: Introductionmentioning

confidence: 99%

“…The DAWN 2 Study, a worldwide study regarding psycho-social aspects in diabetes treatment, revealed that psychological, financial, and emotional strains caused by DM equally affect patients and relatives [8, 9]. Kulzer et al [9] showed, for instance, that relatives are equally affected by diabetes-related stress and strains. However, they did not report whether relatives of patients with diabetes mellitus type 1 or type 2 perceive the diabetes-related stress and strains differently.…”

Section: Introductionmentioning

confidence: 99%

“…However, they did not report whether relatives of patients with diabetes mellitus type 1 or type 2 perceive the diabetes-related stress and strains differently. Moreover, they showed that relatives are more afraid of (nocturnal) hypoglycemia than the patients themselves [3, 9].…”

Section: Introductionmentioning

confidence: 99%

“…Second, Kulzer et al [9] found that one-third of relatives stated to feel frustrated as they did not know how to support or help the patient. Further, they showed that the discrepancy between this lack of knowledge, on the one hand, and the wish to support the patient, on the other, often leads to miscommunication and interpersonal conflicts.…”

Section: Introductionmentioning

confidence: 99%

“…There is also some evidence for adolescent patients that family social support predicts higher adherence to treatment and higher quality of life, whereas conflicts within the family decreases the quality of life in patients [10]. However, to address these sources of interpersonal conflicts, Kulzer et al [9] came to the conclusion that an education program for relatives of diabetes patients might benefit the relatives and the patients equally and might improve their quality of life. The education program developed contains social–psychological modules to show relatives an adequate way to express their support, concerns, and feelings in a more constructive and less criticizing way.…”

Section: Introductionmentioning

confidence: 99%

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Efficacy of DiaLife, an education program for relatives of adult patients with diabetes – study protocol of a cluster randomized controlled trial

Bernard

Müller

Hecht

et al. 2019

Trials

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Background The global prevalence of diabetes mellitus (DM) has been increasing over recent decades. In Germany, the prevalence for DM type 1 and type 2 in adults is estimated at about 7.7%. Hence, diabetes has to be classified as a serious public health concern. Being diagnosed with DM and facing possible sequelae might have a negative impact on patients’ mental and physical well-being. However, diabetes not only affects patients themselves, but also their close relatives. To improve the quality of life for patients and relatives alike, the German Association of Diabetes Nurses and Education experts (VDBD) elaborated the first education program tailor-made for relatives of diabetes patients. This article describes the concept and design of the trial evaluating the efficacy of this education program called “Dia Life —Living Together with Diabetes”. Methods This evaluation study is a cluster randomized controlled trial, in which the study centers will be randomly assigned either to the intervention group or the control group. Study centers will recruit relatives of and patients with DM type 1 and type 2. Members of the intervention group will participate in the education program Dia Life , whereas participants randomized in the control group will act as waiting-list controls. The study will assess the efficacy of Dia Life by comparing diabetes-related knowledge between the intervention and control groups as the primary outcome for participants. As the primary outcome in patients, the Hba1c value will be assessed. In addition, diabetes-related distress, family interaction, and other secondary endpoints will be considered as secondary outcomes. Long-term efficacy will be assessed 6 and 12 months after intervention. Hierarchical regression models will be used to analyze effects over time. Discussion While there is scientific evidence for the efficacy of education programs addressed to (diabetes) patients, there is a research gap with regard to intervention studies evaluating the efficacy of education programs designed for patients’ relatives. The study results will provide information on the efficacy of the Dia Life education program. In addition, factors that might hinder a successful implementation of an education program for relatives will be identified. Trial registration German Clinical Trials Register, DRKS00015157 . Registered on 24 August 2018. Electronic supplementary material The online version of this article (10.1186/s13063-019-3600-4) contains supplementary material, which is available to authorized users.

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Section: Introductionmentioning

confidence: 99%